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Dying of boredom

The total silence, the reproachful stare because I can't figure out what will entertain him, the complete lack of awareness of the state of the world, his family, me. Someone on this site said, wisely, we can't make them happy, only make them safe. But what do we do with our days while they sit and wait for us to make a meal, take them to the bathroom, switch the tv to another channel? He is too crippled by arthritis to get any meaningful activity ; we take a ten minute painstakingly slow stoll passing a house or two on our street. He walks so slowly I want to run away in frustration. I have found some youtube people who do very simple weight exercises with 2 pound dumbbells, but he won't look at the t.v.; he wants me to tell him each part of each exercise. I know he can't look at the tv and know what to do; and my explanations, if they are more than three words, make no sense. I am sure there is an existential play about my life. And I know that inside that crippled brain he is probably bored too, but I have given up trying to figure out how to alleviate his boredom. Or mine. I just visited a memory care facility that will probably be fine (after visiting at least a dozen or more, ranging from corporate owned to small 10 person, activity-less but caregiver rich places. I will be on their waiting list and hope I make it until they have a space, but fear I will just give up in the unending endless scorching days and put him somewhere just to have the burden gone. Thanks to all of you for listening.

Comments

  • BethL
    BethL Member Posts: 1,491
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    Regarding the exercise videos - rather than you trying to explain them to him, you do them too and he can watch what you do.

  • CindyBum
    CindyBum Member Posts: 789
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    Oh honey. I hear ya. There was nothing my DW was interested in doing and I learned how to just sit there with her. That alone nearly drove me nuts. Both of us were once high energy people, so to just sit day after day? Not great for my own mental health. I do appreciate that I now can sit and enjoy the view before I want to run off to the next thing, but I do not miss those long days of nothingness at all now that I'm in Stage 8.

    Best of luck with the move of your spouse to MC. It's a good move to make for you both.

  • Maru
    Maru Member Posts: 550
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    Member

    My DH has only recently entered into stage 4 and still entertains himself. Reading the other responses was informative. I esp. liked the response of "just sitting with and holding their hand." DH and I are both praying people. I think that when that stage comes to him that he would find peace in my sitting with him and saying the rosary out loud, or reading psalms.

  • tucson anne
    tucson anne Member Posts: 77
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  • janeedee
    janeedee Member Posts: 37
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    I see you, I hear you - I am you. You don’t need advice on how to do MORE. This is like another piece of yourself dying each day. The Calvary is Not Coming. I don’t know what to say, but know that someone understands exactly how you feel

  • tonyac2
    tonyac2 Member Posts: 314
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    I used to carry this burden of keeping my husband entertained. He used to be administration and approve/initial several things. I’d keep old bills and insurance EOB’s and ask him to initial them. He loved going through the stack and writing on them. Or rides, he loves rides. Now he sleeps around 19/20 hrs a day and the house is so quiet and still.

  • sandwichone123
    sandwichone123 Member Posts: 1,388
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    Find an exercise video YOU like and follow along. Get yourself some weights as well. Read books or read on your device while you sit there. Find ways to care for yourself and keep your head alive while you're sitting with him.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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