Dying of boredom
The total silence, the reproachful stare because I can't figure out what will entertain him, the complete lack of awareness of the state of the world, his family, me. Someone on this site said, wisely, we can't make them happy, only make them safe. But what do we do with our days while they sit and wait for us to make a meal, take them to the bathroom, switch the tv to another channel? He is too crippled by arthritis to get any meaningful activity ; we take a ten minute painstakingly slow stoll passing a house or two on our street. He walks so slowly I want to run away in frustration. I have found some youtube people who do very simple weight exercises with 2 pound dumbbells, but he won't look at the t.v.; he wants me to tell him each part of each exercise. I know he can't look at the tv and know what to do; and my explanations, if they are more than three words, make no sense. I am sure there is an existential play about my life. And I know that inside that crippled brain he is probably bored too, but I have given up trying to figure out how to alleviate his boredom. Or mine. I just visited a memory care facility that will probably be fine (after visiting at least a dozen or more, ranging from corporate owned to small 10 person, activity-less but caregiver rich places. I will be on their waiting list and hope I make it until they have a space, but fear I will just give up in the unending endless scorching days and put him somewhere just to have the burden gone. Thanks to all of you for listening.
Comments
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Dear Anne, my heart goes out to you. I know how hard it is. Maybe it would help if instead of trying to find something to entertain him, you tried to create a few moments of joy in his day. Just sitting quietly and holding his hand or massaging his shoulders or watching a sunset together can bring a moment of joy. Instead of trying to get him to exercise maybe put on a funny cat video or a nature video. Something he can watch without having to figure out a plot. You could even watch it with him for a little bit. That could bring a moment of joy too. As for the slow strolls around the neighborhood. Think of it as walking with a two year-old who just can’t take very big steps. Sometimes it’s the little things that can mean the most in a day. Sending you a big hug.
Brenda
8 -
As we are just starting this journey, trip, I am trying to carve out small chunks of time now, that are mine. I know LO won't always be able to be alone but for now, as we start, me time.
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Regarding the exercise videos - rather than you trying to explain them to him, you do them too and he can watch what you do.
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I feel for you, as your situation was similar to what I experienced when my DH was still at home. He was bored and would expect me to entertain him. No TV, barely able to read, no music (which he used to love). The only things he enjoyed were very practical stuff, like drying the dishes and putting them away. I would try to come up with similar tasks, such as taking all the silverware out of the drawer so I could "clean it" and having him put the silverware back in, though he needed my cuing. We would exercise by tossing a ball or balloon back and forth. The one thing he really enjoyed was ripping up paper, usually junk mail, catalogs and thin cardboard such as cereal boxes.
He is now in MC and I had hoped he would participate in the activities there, but it has taken him 3 months to just occasionally attend activities and only when I am not there. I still bring him my junk mail to rip up and have instructed my siblings to collect theirs so that I have enough to keep my DH entertained for a few minutes.
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Oh honey. I hear ya. There was nothing my DW was interested in doing and I learned how to just sit there with her. That alone nearly drove me nuts. Both of us were once high energy people, so to just sit day after day? Not great for my own mental health. I do appreciate that I now can sit and enjoy the view before I want to run off to the next thing, but I do not miss those long days of nothingness at all now that I'm in Stage 8.
Best of luck with the move of your spouse to MC. It's a good move to make for you both.
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My DH has only recently entered into stage 4 and still entertains himself. Reading the other responses was informative. I esp. liked the response of "just sitting with and holding their hand." DH and I are both praying people. I think that when that stage comes to him that he would find peace in my sitting with him and saying the rosary out loud, or reading psalms.
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Haha—I do, but he can't copy me!
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I see you, I hear you - I am you. You don’t need advice on how to do MORE. This is like another piece of yourself dying each day. The Calvary is Not Coming. I don’t know what to say, but know that someone understands exactly how you feel
3 -
I used to carry this burden of keeping my husband entertained. He used to be administration and approve/initial several things. I’d keep old bills and insurance EOB’s and ask him to initial them. He loved going through the stack and writing on them. Or rides, he loves rides. Now he sleeps around 19/20 hrs a day and the house is so quiet and still.
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Find an exercise video YOU like and follow along. Get yourself some weights as well. Read books or read on your device while you sit there. Find ways to care for yourself and keep your head alive while you're sitting with him.
4
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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