Transitioning Colorado to Illinois
My parents are both in various stages of dementia. Father Lewy Body and mom Alztimers.
I do their finances, set them up with DivvyDose pharmacy, made sure they have no access to driving.
My father recently had a pacemaker put in and has slid downhill the last few weeks.
They are currently in Colorado and we will be relocating them to Illinois the end of July. My father will be very resistant and refuse to come outright.
We are thinking of using compassionate lying to get him here by saying my partner needs a knee replacement. It is true but not at this time. We just need to get them here.
I am not sure which stage either are in and if my mom's just look further along due to caring for him.
He is sun downing and she takes lots of meds to sleep. Therefore, she is exhausted.
Coming here will allow me to access everything so much better. I hate lying but know no other ways.
Have others of you transitioned your parents to a new state? How did it go?
I am grateful to be among others who understand. I've done a ton of reading about dementia but that is all so far. I am happy to join a group.
Comments
-
Welcome. I’m glad you found us. I think some kind of therapeutic fib is definitely the way to go. Do you have everything set with the facility you plan to move them to? There can be a waiting list in some places. Is there anyone checking in on? A lot of bad things can happen with two people with dementia living alone and unsupervised. You might want to consider a few hours of in home care each day til the move (if that’s not already being done). I have no experience with a long distance move, but I can tell you what didn’t work for our disaster of a move for 10 miles. My brother was opposed to any lie and insisted we tell mom up front. It was a disaster. She packed herself and had no idea what she needed. She packed cookbooks, king size sheets, cupcake wrappers clothes that didn’t fit…. When we tried to help she got snippy and mad. It might work best to have someone take them from Colorado to Illinois (I won’t let them travel alone) and then have someone else travel separately who can pack clothes special pictures and things they may want with them in Illinois. Having them present while you do that will probably not go well. I will attach a few resources just in case you haven’t seen them yet. You can also use the search on this website to find old discussion on the topic of moving. I hope it goes well.
https://iona.org/therapeutic-fibs-ok/
0 -
How are you getting them to Illinois? My spouse and I attempted to move Mom and step-dad from southern Alabama to Illinois. Stubborn Step-dad bailed at the last minute ( as in the movers were coming in an hour). He showed up in Illinois three days later ( he was still driving and had retained possession of the car). We moved mom, and the movers did their thing too.
If you are driving them - you need three people besides them. My spouse and I were barely enough to move mom. I would take her to the bathroom while he was getting gas or going to the bathroom himself. Then I would hand her off to him and go to the bathroom myself. Mom was so out of it ( she turned out to have an undiagnosed UTI) that we couldn’t leave her alone for one minute. She thought we were lost and was anxiety ridden all day. The doctor had given us medication to keep her calm for the trip, We spent the night in a motel, put her in the bed furthest from the door and put a chair under the door handle because we were afraid she’d wander. Mom tried to open the truck door at highway speed because she wanted to take the dog for a walk. Trying to take two on without extra help will be very difficult.2 -
The user and all related content has been deleted.0
-
I moved my mom 400 miles to be closer to me. I put out some vague statements before I got to her place about her coming with me for a visit in my town. Once we were at her place, I did tell her that she was moving to stay near me. She started calling old friends and distant family (went through her address book) to tell them she was moving against her will. I got a few interesting phone calls! Her packing was a disaster but I intercepted the useless items and made sure we had clothes, meds (get a 3 month supply if you can - it may take time to establish tgem with new doctors and pharmacies and maybe even insurance in the new area) important documents, most treasured photos, etc.
I was afraid she'd flat out refuse to get in the car, but she got in, along with her cat in his carrier (medicated, as we knew of his habit of wailing on the way to the vet - I wasn't about to listen to that for 400 miles). My husband and son were with me, and the trip wasn't too bad. I think that it would have been much harder if Id been alone with her. The presence of two males kept her in line.
We'd made arrangements to board the cat for the few days that mom stayed at our house before moving into her AL room - we had a young dog who goes wild when she sees a cat in the neighborhood. Mom was super confused at my house, didn't recognize it although she had visited many times. When we finally got her and kitty moved into AL, she actually settled down fairly quickly. She followed the published daily schedule like it was a job requirement. The structure was great for her at that stage. I realized how difficult it had been for her to manage life alone in her home. It was a challenge but absolutely the right thing to move her near me.
0 -
@HavenD
Hi and welcome. I am sorry for your reason to be here but pleased you found this place.
I've done this. My situation is a bit different because only dad had dementia (but mom was in serious denial for a decade) and because I had 2 houses to deal with.
Some tips. You will need a DPOA for both. I suggest seeing a certified elder law specialist to draw up the document as you want something that will pass muster with title companies, banks, investment houses, etc. The SSA does accept any POA, so you'll need to become the representative payee for both as well.
Definitely use a therapeutic lie, aka fiblet, to get them to IL. Asking for help during a TKR is a good one or a trip to visit. You'll need at least one other person with you to escort them— drive, fly or take the train. If you fly, look into the TSA Cares program.https://www.tsa.gov/travel/tsa-cares
If possible, get medical records forwarded to their new PCP and schedule appointments/get specialist referrals lined up for after they arrive.
You'll need government IDs for both. We were able to use dad's FL license as ID in PA, but it's recommended to get a new state non-driver ID.
Will they be living with you or somewhere else? You may find removing them from their familiar environment and routine results in a decline in daily function, so they might seem OK in AL but actually need a higher acuity MCF. I'd shop both if placement is in the cards now or at some point.
Once you have them settled, you can go back and deal with their home and its contents. I moved mom and dad into a 55+ apartment which they hated. Once their house in MD sold, she used the proceeds to buy a home in a 55+ active adult community. I wanted them to go into a CCRC, but mom wasn't having it. I rented their house in FL for the season while they settled in and then sold it. I was able to sell it turnkey, so I was able to travel down and clean out their personal stuff, ship their car and handle the settlement.
Picking a real estate agent is critical. They can be really helpful. The bozos mom picked in MD were a nightmare— just ghastly. But the professionals in FL went above and beyond and made the process easy.
HTH-
HB0 -
Thank you so much for your response. My parents will be moving into our home. We will be driving back to Colorado to collect them the middle of July. I will then go back and pack the house, figure out an estate sale place for a majority of their precious things, and then if my brother does not choose to live in the house get a realtor in a matter of days and get back home. Unfortunately, my brother is not willing to help with my parents at all as he says "he cannot handle it." That is fine. My primary focus is getting them safely here. I think the therapeutic fiber is the only way to go. Thank you for making me think things through even more. Sorry for it raking so long to respond as I lost the thread.
0 -
Also thank you very much for the links. I have not read or visited them yet but I definitely will. Sorry your mom also has this terrible disease.
0 -
What a stressful situation with your mom. I am sorry. We are going to rent a 6 person RV and plan on not letting anyone "out" till we get to Illinois. We do have a friend joining us. There are beds, kitchen, bathroom, and seats. After we arrive in Illinois I will have to go tie up many loss ends in Colorado. Two of my cousins my mom adores will be here with them. I hope it all goes smoothly. I appreciate you sharing your experience with me.
1 -
Thank you for sharing this hope. I am exhausted trying to manage everything from hundreds of miles away.
0 -
I appreciate the seeds of hope. Thank you.
0 -
Thank you harshedbuzzed. I don't know how to do any of this. I will find the list of abbreviations and take more time with your reply. I am my mom's POA, but we left my mom as POA when I didn't realize she was in early stages of AL. Now my father is incapable as is my mother to provide any signatures for his care. I know what he wanted prior to his slide with LewyBidy but it is not documented. The doctor still asks him to sign and agree even with dx. That is why I am bringing them here to figure it out and get good care. I hope. Thank you and I will sit with all your wonderful empathetic thoughts and suggestions.
0 -
If the doctor is requiring him to sign to ‘permit’ treatment, I dont see way you cannot have him sign DPOA to one of you. Just a thought.
0 -
I will try again. We asked legal advice from a free attorney at the senior resource center and they said if a doctor had documented his dementia he is declared incompetent to sign a DPOA. Thank you for encouraging me to look around more.
0 -
You will have to go to court to apply for guardianship of your dad since he cannot sign to appoint you DPOA. Posters here have said that you can reimburse yourself for the cost of filing from his money once you get the guardianship approved. Guardianship does require you documenting your actions annually ( court oversight).
0 -
The user and all related content has been deleted.0
-
Thank you so much for this info. I didn't know you could get possible guardianship. I am grateful.
0 -
That makes sense to me. He is no longer at a point to sign more than a "x". Thank you!
0 -
@HavenD
Your plan sounds well thought out. Making it a vacation road trip is brilliant!
Some abbreviations, acronyms and euphemisms for you—
POA— power of attorney. There are also DPOA (durable— continues beyond loss of capacity) and SPOA (springing version which needs physician's statement of incapacity)
TKR— total knee replacement
SSA— Social Security Adminsitration
AL— hospitality-model assisted living
MCF— higher acuity memory care facility/unit which is typically secure (locked)
55+ community/apartment— age-restricted housing that doesn't offer medical or custodial services
CCRC— a community that typically offers independent, assisted, memory care and skilled nursing on one campus offering a range of care a person can access as their needs change.
FL, MD, PA— official United States Postal Codes for Florida, Mayland and Pennsylvania
HTH (hope this helps)
HB (Harshed Buzz)2 -
Thank you so much! Very helpful.
0 -
As I go back and read this makes me laugh everytime. I need to laugh so much. TYCM 😉😂
0
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more
Categories
- All Categories
- 707 Living With Alzheimer's or Dementia
- 410 I Am Living With Alzheimer's or Other Dementia
- 297 I Am Living With Younger Onset Alzheimer's
- 19.2K Supporting Someone Living with Dementia
- 5.9K I Am a Caregiver (General Topics)
- 9.4K Caring For a Spouse or Partner
- 3.4K Caring for a Parent
- 250 Caring Long Distance
- 207 Supporting Those Who Have Lost Someone
- 13 Discusiones en Español
- 1 Vivir con Alzheimer u Otra Demencia
- 1 Vivo con Alzheimer u Otra Demencia
- Vivo con Alzheimer de Inicio Más Joven
- 12 Prestación de Cuidado
- 3 Soy Cuidador (Temas Generales)
- 8 Cuidar de un Padre
- 23 ALZConnected Resources
- View Discussions For People Living with Dementia
- View Discussions for Caregivers
- Discusiones en Español
- Browse All Discussions
- Dementia Resources
- 8 Account Assistance
- 15 Help
