This disease has made it impossible to _______

tonyac2 · May 23

Any one of us could fill in the blank, this disease has made it impossible to_________.
I have many answers for that blank, but my current answer would be, to dress my DH. Putting on and taking off shirts, especially over the head has become impossible. He fights it, and having a contracted left hand plastered to his belly doesn’t help either. It’s amazing how good I’m getting at finding work arounds so we can keep moving on. My work around for this problem is, Silvert’s. I donated all of his shirts and replaced them with Silvert’s adaptive shirts. This has greatly reduced his agitation around getting dressed and saved my sanity.
I’m just curious, what would your _________ be?

Jeff H · May 24

I'm glad you have found something that works for you. Filling in the blank would be an exhaustively long list.

Chris20cm · May 24

….have a mutually enjoyable celebration with meaningful conversation on our upcoming 61st anniversary .

Dan520 · May 24

Feel like a team. We always used to say, we are a team.

I will say it to make her feel good but it certainly doesn't feel like it anymore. PCA at 62 sucks.

jgreen · May 24

….. get quality sleep!

Thanks @tonyac2 And for the tip on Silvert’s shirts

blacksparky · May 24

Impossible to think about my future dreams as I am 24/7 caring for my DW.

Sunfish47 · May 24

Impossible to (1) get enough actual restful sleep, and (2) have a real adult conversation about topics other than Are you hungry? or Do you need to pee?

Kat63 · May 24

As others have posted…ditto. 1) cannot have a conversation or any meaningful dialogue 2) sleep. It’s been at least 2 years since my DH has slept through a night and therefore me as well.

Call me Gram · May 26

This disease has made it impossible to… remember how things felt before the diagnosis.

rockymtngrrl · June 6

This disease has made it impossible to… have meaningful conversations about almost anything, especially in the evening. Our travel is severely curtailed. I see the table manners going. He's in charge of dishes and now I check and re-wash some.

Impossible to move to a smaller house that I can manage, he starts getting angry and aggressive if I bring it up. I promised I would keep him here but my fingers were crossed behind my back. I believe by next year he will be much more apathetic than he is now and I can just do it.

Bowerbird · June 6

Well, since my LO is in MC, I am no longer on high alert, but it is impossible to shed being on what I think of as medium alert, always aware that, if I'm not with him, the phone could ring at any moment with some bad news.

Scooterr · June 6

SLEEP!!!, Oh how I miss a good nights rest or even a afternoon nap. I think my body would go into shock if I had 6hrs of straight sleep.

persevere · June 7

Impossible to travel. Since ceasing our trips across the state to see children and grandchildren after the first of the year, I/we haven’t been more than 25 miles from home and never will until this is over.

CharlieS · June 7

Impossible to keep my home in some sort of order. DH moves kitchen items to odd places. Puts his boots, shoes and belts in a corner of the living room. Rather than keep his underwear in his dresser, he uses the floor in our closet. I could go on and on. I ran out of patience, but I keep it to myself. It does no good to bring it to his attention or argue about it.

rockymtngrrl · June 7

https://alzconnected.org/discussion/comment/274253#Comment_274253

My DH will get frustrated with an appliance and end up breaking it. I was able to fix the coffee pot; the very expensive TV had to be replaced. 😑

harshedbuzz · June 7

Have nice things.

Jeff H · June 8

https://alzconnected.org/discussion/comment/274253#Comment_274253

I hear you. I'm in the same boat.

kath1054 · June 8

https://alzconnected.org/discussion/comment/274184#Comment_274184

Exactly! After 6 years of caregiving at home, I moved DH to MC 2 weeks ago. He’s been to the ER 3 times. The alert status still exists 24/7. I’m trying to find discussions on other LO’s transition.

Abby627 · June 8

https://alzconnected.org/discussion/comment/274182#Comment_274182

Hi there,

I completely understand your desire to move into something smaller and manageable. When I first started talking to my DH about moving, I was met with much resistance. I gave up because it just caused too much anxiety for him. Now, 2 years later, he’s fine with it. I put the house in the market and am hoping for a sale. Hang in there! Chances are you will be correct in thinking he will change his mind in a year and just not be aware enough to care. This disease stinks!

JDancer · June 8

….enjoy life.

Chris20cm · June 8

Nailed it!!

WIGO23 · June 8

This disease has made it impossible to hope that things can ever get better.

sgowans · June 8

live

Snipe · June 8

I think having any type of meaningful, understandable, conversation. Also watching any kind of show or movie with an actual plot. I get tired of zoo shows and Dr. Pol.

This disease has made it impossible to _______

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