New Phone/Communication issues

FrancieNolan
FrancieNolan Member Posts: 19
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I see a recent thread ("Dad almost totally impossible to communicate with") with a similar question but wanted to extend the conversation. My dad (just turned 88, vascular dementia) has been in assisted living for a few months and at first was calling over and over (both me and other friends and family.) But now not only have the calls stopped, he rarely picks up his phone and doesn't return calls or texts. 3 friends have contacted me in the past week asking if he was OK because they are calling and leaving messages and he isn't calling back. I was out of the country for a week and have called and texted several times since returning… nothing. My brother did finally get in touch with him and he claimed "there is something wrong with my phone" (of course there isn't.) I have encouraged him to ask someone there to help him with phone issues but I don't think he even has the ability to do that. I know the facility would call if something were wrong.

We live nearby and plan to drop in today to see him, which I guess is my only option at this point. But I'm sad that he is now cut off from contact with everyone else. My brother and other relatives are out of state. He never talks to his grandchildren. The friends who want to get in touch will eventually stop calling. I can't make him call them back.

I wish I understood what was going on in his mind. Does he care that he is losing relationships? Should I encourage people to keep calling, should I keep calling or just drop in when I can? I know apathy is part of the disease but I want to do what I can to give him some happiness- is that even possible? When I share news about my family he barely reacts, which is the saddest thing to me, he used to be a loving, proud father and grandfather.

Sorry to ramble, just frustrated with this new change.

Comments

  • Emily 123
    Emily 123 Member Posts: 1,014
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    Hi Francie,

    Since you're seeing him today you'll be able to see if there's any major changes that might be driving this (UTI?). From other posts it sounds like he's been slowly losing his ability to use the phone, so maybe this is a progression.

    Over time the person will become more untethered to their environment and what's going on in it. They won't interpret or respond to externals, like a phone ringing. They'll stop being able to use things like remotes and phones.

    I don't think it's a question of wanting to keep or lose relationships, it's more that the disease physically removes the ability to maintain those connections-there's no intent behind the lack of response.

    Another thing to think of is that the disease can change how things sound to a person, and eventually face-to-face conversations work best. He might not be able to make sense of a disembodied voice coming from a phone—you could call one of your family on your phone during the visit & put him on the line to see if he can have a conversation. If he can't, I'd just let his friends know. If he can, then you could set something up with his friends where you call them during your visits with your dad. The facility might also be able to give you a 'house' phone # friends can call and the staff will take the phone to your dad. Good luck.

  • April23
    April23 Member Posts: 214
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    This is not a conscious effort on his part. He is simply losing the ability to understand/use the phone as the PP described nicely above. My dad was already showing signs of not being able to use phone/remote/microwave, etc. even while still living at home. It's just something that they can no longer make sense of. Books and TV followed eventually.

    It could be that when you talk about other relatives, without seeing them, he has trouble remembering who they are or can't follow who you are speaking of.

    If there is a house phone at his facility, that is also my suggestion. The caregivers can hand your dad the phone for people to speak to him. Also something to think about is that it is best that the phone disappears, as it leaves him open to fraud or scams should he take a call from someone that means harm.

    He is still your loving father and grandfather. You are starting to see effects of the disease more now, that's all.

  • psg712
    psg712 Member Posts: 792
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    Agree with both Emily and April. Your dad's story sounds like natural progression of his dementia. I can relate to the pain of the apathy you are seeing too. You are right, it's the disease, but it hurts when someone who has always loved and supported you no longer takes an interest in your life.

  • terei
    terei Member Posts: 989
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    I agree with April and psg. This sounds like typical progression. Apathy, lack of empathy, etc. The only thing that perked my mom up was old music, bingo(not really able to play) and certain favorite treats. Mini drumsticks, onion rings etc. Honestly, life is much easier and safer for you and him without the phone use.

  • FrancieNolan
    FrancieNolan Member Posts: 19
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    Thank you all… it helps to hear from others that have gone through this that this is normal progression of this terrible disease and I shouldn't take it personally.

    My husband and I went to see my dad today, he was surprised to see us (of course because he hadn't seen any of his messages!) But the funny thing is, he was kind of right that there was "something wrong with his phone!" Somehow he had turned the ringer off (phone would only vibrate with calls) and muted sound for text messages. The calls and texts would still come through but he didn't hear them and wasn't checking for messages or voice mails. I fixed the sound but I don't think that's the problem entirely since he had 7 voice mails he hadn't opened and texts he hadn't read, that's where I think he is losing the ability to use the phone.

    He also gets a dozen junk texts a day which is super annoying because texts from actual people get lost. Wish I could stop those. (He's not at risk for a scam at this point as he has no access to his own finances and wouldn't know how to send anyone money.)

    I will try to see if he wants to call some of the people who were trying to reach him when I am there. There are a couple local people who I told to just call the facility and tell them they will be dropping by for lunch, not to try to schedule it with him. They don't understand how bad it has gotten but I hope they do visit.

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  • JulietteBee
    JulietteBee Member Posts: 632
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    Wow, @FrancieNolan! What you are experiencing is EXACTLY what I am.

    Mom is almost completely unable to use her phone. Up until last week Wednesday, she was living in an ILF. I was finding it increasingly annoying that her friends & relatives were calling me due to their inability to reach her. I had to tell them that I am having the same problem as they are.

    I have the privilege howe er, of being able to speak with her via the Ri g camera I set up. To test my hypothesis, I would call mom from my landline, while viewing her on the camera. I observed callers (myself included) getting one of three outcomes.

    1. Phone would ring from a nearby table, or sometimes while in her lap. She apparently no longer associate the sound with that of a ringing phone, so call goes unanswered.
    2. Phone rings. She forgets how to swipe to accept call, misses call, then gets distracted by whatever she was doing prior to the 'noisy disturbance' and never calls the caller back.
    3. Phone rings. She misses the call by the time she is able to figure out how to answer it. She does not remember to check call log to know who last caller was, then invariably calls me, saying, "Sorry I missed your call." Sadly, it wasn't my call she missed.
    4. As far as txt msgs, on the now rare occasions when she remembers that the msg app is located at the bottom of her "Home Screen," she has forgotten how to recognize unread msgs in her inbox. She no longer reads them. Most times, I am the one reading and responding to her msgs, many days after they were sent.

    We now live together. I am no longer freaking out when she does not answer her phone. I now KNOW with a certainty that it is no one of importance. Her only child, her only son-in-law, and only grandchild now know for certain where she is, and how she is, at ALL TIMES.

  • H1235
    H1235 Member Posts: 2,432
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    I switched mom to the jitterbug phone. It’s pretty simple to use. I created speed dials for all 6 of her contacts (she just presses and holds one number for each person and I printed a list of contacts with their speed dial number to post on the wall). She has no ability to check voice mail, use text messages or realize when she has missed a call. Her hearing is bad and she doesn’t know how to use her hearing aids, so she sometimes misses calls, but it works for now. I know even this will only work for so long.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more