Technology Question
Hi all,
I am lucky enough to still work and have part time care at home. DH has lost the ability to use his phone (no executive functioning). At the beginning of the year I purchased a Memory Board to set up reminders (that I had fed the dog, that I would be home at X time, etc.). For the first few months he checked it regularly and would read it to our caregiver and she would reinforce the messaging. Of late he has not been checking it, although she still reads it to him when he asks her a question.
I’m thinking of moving on to an Amazon Echo. I am not a gadget person and have resisted having “the internet of things” in my home, however, it seems that he could simply say “Alexa, call my wife” and the device would call me. I think it would also allow me (with the app) to “drop into” the kitchen to say hello, and call out his name.
Has anyone had experience, good or bad, with this device?
Thank you for being here - everyone’s helpful messages keep me hopeful that we can keep going.
Comments
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I bought an amazon echo after visiting my son's family in NC last summer. DH and I stayed in communication via telephone multiple times every day. I tried texting him but he said "the phone was broken" because he struggled to text. We just called instead. My sin recommended an Amazon Echo so he could call me without having to deal with his phone. I decided to try it. DH doesn't use it to call me because he has relearned talking and texting on his cell phone. I love the echo. We play music, get weather reports and ask it all kinds of things. It can add items to a shopping Iist, accessible from my phone, use it as a timer etc. I use it more than he does but when he can no longer use his phone, it will be there as an option. I also looked into a simple phone that has pictures the caregiver programs in and the user just pushes the picture to make a call.
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Will he remember that he can just say, Alexa, call my wife. It’s very easy to do, but I just do picture a pwd understanding they can do that. It’s something totally new and that can be hard for a pwd to get used to.
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@Kweisser
This is highly unlikely to work for a number of reasons.
Firstly, working and short-term memory are needed to learn new things. Since he's well into the disease process, he isn't going to learn new-to-him tech even if it is simpler.
Also, what memory persists tends to be LIFO. If a person had a flip phone long enough, they might be OK moving from a smart to a Jitterbug or back to a landline.But the bigger piece is the executive function— i.e. problem solving. It's unlikely he'll recognize he the Echo as a solution to calling you.
It might be a nice way for you to drop in but he may be unnerved by your voice coming out of nowhere and talking to him.
HB2 -
I appreciate all your comments - thank you!
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I wish you luck and everyone is different especially with the progression of this awful disease. We tried all sorts of communication equipment but as harshedbuz says you still need short term memory to use even minor equipment and to leave them alone for a period of time isn’t safe or pleasant. At this stage with my DH the only communication he now has is limited speaking with me. I have had to find other outings and activities that we can do together and give up volunteering at the grandchildren’s school tuckshop, kayaking, my market stall and replace them with Sailability, an outlet to sell my bags so I just do the making at home, and the dog park. These all work but you have to be in their moment. Good luck.
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any technology or notes are temporary if they can learn them at all. If he can’t use a phone I would not leave him alone for any length of time. He wouldn’t know how to get help. He could start a fire. Or he could wander off. Sadly it happens too frequently.
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I was just thinking and wondering the very same thing. Dang that gizmo really sounds like a wonderful addition.
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Don't expect him to utilize it at all, he likely won't remember it exists or what to say. Most PWD cannot learn any new technology. But it would allow you to drop in any time if the settings are set up correctly. I also like apple watches or similar on people with dementia and (and have one on my other parent without dementia just because he's elderly.) They have fall detection that will alert the caregiver and call an ambulance, and you can also track where he is. More of a personal safety tool than for communication since he won't know how to use it. We switched to a simple white board for reminders, but eventually any reminder becomes kind of useless when their loop is so short.
There are simple phones out there that may be helpful if you want him to be able to call you.
Here is a link to see some.0 -
As long as you are prepared to deal with the disappointment of failure, I think it is worth a try. DW is early stage 6 but she still is able to surprise me with some of the tasks she is able to perform. I think it is harmless to make a minimal financial and emotional investment and then give it a try. If it works, then great; if not, just put it aside and move on.
What I learned over the years was that it was important to recognize when a skill is lost and to stop trying to "teach" it. Also, seeing a skill get lost does not bother me as much as it used to. I don't get frustrated or upset with DW when the disease robs us of another capability. I am able to forget about it, make the necessary adjustments and move on to the next challenge.
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We have an Amazon Echo and use it for various things, such as weather report, as well as answering some of DH questions that are so off the wall, yet he expects me to know the answer. We have also programmed it to remind him to take his medicine at specified hours. So, at 9am, Alexa will ding and say, "DH, this is your reminder from DW to take your morning pills." This has worked great for us, so it may be an option … Good luck!
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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