At the end

JDancer
JDancer Member Posts: 614
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Day 5 of no food/water. Emotional rollercoaster. I've spent years anticipating this, but I didn't expect it to be this difficult. Yesterday I found a pressure ulcer on his coccyx because I've been avoiding the pain of repositioning. As a retired nurse, this absolutely gutted me.

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  • Nosokoma
    Nosokoma Member Posts: 9
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    This must be a devastating time for you. I too am a retired nurse, and watching a loved one slip away physically or cognitively is deeply personal. Be gentle with yourself, you are doing the best you can and that's all anyone can ask. I wish you peace and strength.

  • SusanB-dil
    SusanB-dil Member Posts: 996
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    Even anticipating and knowing - does not make it easy.

    ((hugs))

  • Chance Rider
    Chance Rider Member Posts: 401
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    {{{Hugs}}}
    Please be gentle with yourself.

  • Emily 123
    Emily 123 Member Posts: 1,008
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    I am so sorry. While we have a long time to brace ourselves it's still a difficult time. I was relieved that my mom was no longer tethered to a body and mind that were failing, but it didn't make getting to that point any easier. Am praying for you both…

  • Sunfish47
    Sunfish47 Member Posts: 147
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    You are doing God’s work. I hope I can be there with my DH when he reaches the end. I hope someone who cares about me will be with me at the end.

  • JDancer
    JDancer Member Posts: 614
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    I feel so blessed to still have him at home, in a hospice provided hospital bed

  • Kat63
    Kat63 Member Posts: 240
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    Certainly understand feeling blessed to have him home with you. Sending prayers to you.

  • Jgirl57
    Jgirl57 Member Posts: 902
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    (((Hugs))) as you travel the end of this awful journey. You are doing the best you can, bed sores happen. Hopefully hospice can help with re-positioning pain. (((HUGS)))

  • Russinator
    Russinator Member Posts: 381
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    ((HUGS))

  • Maru
    Maru Member Posts: 574
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    Sending hugs and prayers.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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