What to expect at the end
If talk of death/dying upsets you, please skip.
My husband died last night. Thanks to hospice, he was able to take his final breath in a hospital bed in our living room. As a hospital nurse for 20+ years, I witnessed many deaths. While each situation is unique, my husband's passing followed a fairly predictable course. With this in mind, I'd like to hare our experience in the hopes that it may help others.
Dying is the body shutting down. Food and water consumption decreases and often stops, reducing bowel and bladder output. My husband didn't have a BM for 10 days and only small amounts of dark urine. Consciousness can fluctuate. In his last days, my husband squeezed my hand several times and reached out to stroke my face. It's hard to be at the bedside when someone's dying, but the more time you spend the more likely you'll receive these gifts. People can hear you in their final days. Say all those things you want them to hear !
Day one-Something was different. Intake was sporadic for several days. Breathing heavy. Pulse was 140, respirations 30. Oxygen saturation above 90%. I called hospice to inform them we were near the end.
Day 2- No food or water. Able to respond with a nod to yes/no questions. Gave pain and anxiety meds crushed in applesauce. Pulse 110-135. resp 30-36. Oxygen sat above 90%
Day 3-Same as day 2, Resperations rapid, but very regular. Stomach rises and falls with each breath.
Day 4 Rarely responds, other than frowning. Crushing meds in a small amount of water and placing under tongue, Pulse 120-130. Resp 30-36. Unable to get an oxygen saturation.
Day 5- Barely responsive. Laying quietly with eyes open. As a person loses muscle function, it's difficult to close eyes because it requires muscle action. I occasionally close his eyes, but they open after a few minutes. Arms and lower legs slightly cool to touch.
Day 6- One foot is turning blue. One hour before death respirations became irregular and labored. Lower jaw opens with each breath. Morphine can help with this, it's called air hunger. Lower limbs begining to mottle, starting at the feet and progressing toward the head. As he took his final breaths, respirations slowed, then stopped. There's sometimes long pauses before breathing stops. Eyes remain open and jaw slack after death. I held eyes shut and mouth closed for a minute to correct this.
Feel free to ask questions if you have any. This is so much easier to discuss eletronically than verbally
Comments
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jDancer. Thank you so much for this information. My DH passed away 6 years ago and I remember all the things you said. My DH went through all of this, it was peacefull. Now its time for you to take care of yourself. Big Hugs being sent to you. 🫂 Zetta
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I am so sorry for your loss. Take care of yourself. Your post will help a lot of people. You were spot on with your information.
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Thank you. Writing it out helped me process the experience, it was cathartic
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@JDancer
I am sorry for the loss of your beloved husband. May you have peace and strength as you move forward into stage 8.
Thank you for sharing your experience here.
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I am so sorry for your loss. Take care of yourself.
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@JDancer thank you for such an informative post. I appreciate your openness and insight with this, and other, posts you’ve made.
I’m sorry for your loss and hope you’re able to focus on caring for yourself now.
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Thank you for sharing and so very sorry. Peace to you and your family. (((Hugs)))
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@JDancer, please accept my condolences. I am so sorry to hear of your husband's death. 🫂
I am an RN and can attest to the things you laid out. Your post will serve as a compass for others coming behind. Death is such a natural part of life, that it is sad that we do not discuss it more, removing the fear and secrecy from it.
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So sorry to hear of your DH’s passing. Thank you so much for posting the events of the final days. It is helpful to know what’s ahead. May God bless and comfort you in the days ahead.
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My condolences on the death of your husband. I wish you strength for the days ahead, and time to remember his life in its fullness.
Thank you for documenting his last days. This is a gift to everyone here.
As it happens, in recent days I have been seeking out this kind of information, so I can better understand what happens in this natural process. I have listened to some Julie McFadden podcasts and YouTube videos (Hospice Nurse Julie). They are useful.
Your timeline and the details are very much appreciated, and I hope you are comforted to know that you are helping us even in this sad time in your own life.
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I wish you peace, may his memory be a blessing.
Thank you for explaining these stages. To be strong enough to be with your loved one at the end is a gift to them. My mom went thru these stages in her last days, and I held her hand and talked to her for many minutes as she passed from this life. I felt she could still hear me talking, and I told her we would all be okay, and that her husband, my father, was waiting for her and he wanted her to come to him. It was peacefully calm.0 -
@JDancer I'm so sorry for the loss of your husband.
Your description is fairly close to what I experienced with my sister. Even though I was heartbroken, I remember being glad that her death was peaceful.
Your post couldn't have been easy to write, so thank you for this gift to all of the caregivers here.
I wish you peace in the upcoming days and months.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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