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Are there any positive experiences for Memory Care?

pjasso
pjasso Member Posts: 110
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edited June 26 in Caring for a Parent

I am not questioning the need for Memory Care. My mom, with ALZ, is still in AL, but I am trying to be prepared for when MC is needed. I read a lot of sad posts like dbarrylewis on When to Reconsider Memory Care and it was very emotional and sad, and it made me wonder if anyone has experienced a positive outcome. Having to place a LO in MC will always be sad, but I'm wondering, if any of the LOs seemed to have a better experience, a more accepting experience—- is that even possible? My challenge someday will be the "when" to make the move.

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  • BrookeG
    BrookeG Member Posts: 1
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    My mom has been in MC for over a year. She lived by herself, and my brother and I weren’t in a position to move her into our homes or move into hers. She wasn’t eating, and was only drinking Vodka. She has always lived with a drinking problem, but the dementia made it so much worse. We were able to find MC that is for people with high functioning dementia. It took her several months to acclimate. I had to block her phone calls because of the number of verbally abusive calls I would receive. Now she is used to it, participates in activities, got an award for being a good neighbor. She helps make sure the new residents feel welcome. It’s a wonderful place. My advice is to find a facility with an active community. They take field trips, go to lunch, exercise, have presentations, bring in therapy dogs. They have frequent events and activities to bring in family members and make us feel part of the community as well. There are good facilities out there!
  • harshedbuzz
    harshedbuzz Member Posts: 6,932
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    @pjasso

    My aunt positively blossomed in memory care. She was in mid-stages when she was placed. Before joining the community, she was living alone and was very isolated and anxious. She wasn't eating well and her hygiene wasn't great.

    Her sister moved her to a lovely CCRC where she started in MC but often was included in AL's crafts, activities, and days-out. The socialization, healthy diet and assistance with ADLs reduced her anxiety. Her function improved with the move and she was happier.

    HB

  • AmandaF
    AmandaF Member Posts: 70
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    My mom is way happier in MC. It took a few months to adjust (and those months were pretty rough for all of us, anger/sadness/confusion/upsetting phone calls/etc.) but now she has friends, a schedule, gets to see live music sometimes, and has people around to make sure she eats enough and stays clean. I still can’t believe how well it has worked out after everything we all went through - feels like a miracle.

  • psg712
    psg712 Member Posts: 787
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    By the time my mom moved to MC, I couldn't say she was happy ... the apathy of dementia had taken over ... but it seemed to give her the peaceful environment that she needed, and she appeared to be content most of the time. The activities and chatter in the AL had become too much for her, she no longer had the skills to socialize and interact, so MC suited her better at that point. She actually sat in the common area at MC more than she had in AL, I think because there was less commotion.

  • ARIL
    ARIL Member Posts: 559
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    I think this forum leans into problems because most of us come here when we feel stressed or uncertain, not when things are stable. Your question inviting positive statements is an interesting change!

    It was sad for me to place my dad in MC, but it was the right choice. He has been healthier, and medication management and better nutrition have been game changers. Early on, he made friends (less so lately). My uncle thinks my dad would not be alive now if I hadn’t made the move to MC. He may be right.

    That said, the disease progresses, and he is often not “happy”…but the disease progression is not caused by MC. He is safe and far better off than he would be in any other scenario right now. I am grateful this is viable for him.

  • SiberianIris
    SiberianIris Member Posts: 135
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    edited June 27

    My mother has been in MC for 10 months. It has given her a new lease on life that I never would've thought possible for someone with dementia. We made the decision to move her to MC when she required 24/7 supervision. There was a waiting list for MC for about 10 months, during which time she had 3 shifts of caregivers. As time went on, she was having more frequent falls, losing her ADLs, communication skills, zipping through stage 5 in a matter of months, and dipping a toe in Stage 6. 96 at the time, I didn't think she'd see her next birthday.

    Living in an environment designed for people with dementia and staffed by people knowledgeable about dementia who love their jobs, Mom has positively blossomed. She is now 97 and much better physically and cognitively. Ten months later, she's still in early Stage 6.

    Always the social butterfly, she is once again in an environment where she can interact with a lot of people and stay busy with a variety of activities. The initial transition was tough and required some extra meds for a few weeks. I knew we'd turned a corner about a month in. I was walking her into the dining room, and a table of ladies were smiling and waving at her to come sit with them. She'd made friends - that made me so happy! When the dementia started, her friends sort of disappeared, though to be fair, most of them had already died off.

    She gets to go on field trips. She proudly shows me her art projects, and her favorite activity is playing in the MC band. Prior to dementia, she would've been too self-conscious to attempt such things. She has smiled more in the past 10 months than in the previous 3 years, when her dementia journey started.

    Now, if I were to ask her if she wanted to go home (I don't), she would probably say "yes", because in her mind, she does not realize she needs help with all her ADLs. One day, out of the blue, she said "I'm probably too old to live at home anymore. The people here are nice and the food is good. We do some fun things sometimes." I've told my husband if I get dementia, don't feel guilty moving me to MC. From what I've seen with my mom, I think I'd be good there, even though I'm a bit of an introvert.

  • pjasso
    pjasso Member Posts: 110
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  • pjasso
    pjasso Member Posts: 110
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    Thanks- so promising

  • pjasso
    pjasso Member Posts: 110
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    Thanks- yes, the MC I visited had some of their residents go out to the AL activities, and they had a pretty active schedule. Makes sense

  • pjasso
    pjasso Member Posts: 110
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    Thanks, that makes sense.

  • pjasso
    pjasso Member Posts: 110
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    Thank you. I agree, we tend to turn to this forum seeking help and advice. I've had my share of need in this area and find this group so incredibly supportive and it just helps to be heard and to listen to others.
    With that said, I have worked hard these last 3 years and have found "solutions" to many of the challenges, that I like to share, if they could help others!

  • cdgbdr
    cdgbdr Member Posts: 314
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    My DH has been in MC 9 months. I moved him out of the first one due to the facility being poorly run. This one is much better. I couldn't have provided the care that he needs at home. His room is his home now. They have activities and he had been on field trips. He's more active than he would have been at home and safer. It was the most difficult, gut wrenching thing I've ever done. But, I really like where he is now and I know he's cared for.

  • pjasso
    pjasso Member Posts: 110
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    Thanks, that is so refreshing to hear! Gives me some hope, or at least a lot less trepidation for things that might be coming our way.

  • Victoriaredux
    Victoriaredux Member Posts: 333
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    I read dbarrylewis' post and they said on their LO's MC : "They do a great job of making sure she’s clean and active all day and eating healthy. " Doesn't sound sad to me.

    I think a lot of people look at MC through their lens - that they'd dislike a locked unit, not getting out much, having a fixed routine. Exactly the framework and support a PWD needs. Changes and a lot of input creates stress for the decaying brain .

  • pjasso
    pjasso Member Posts: 110
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    thanks for sharing. I can only imagine how gut wrenching it was, but I'm glad it has worked out for you

  • pjasso
    pjasso Member Posts: 110
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    Thanks, from what I understand about this disease, is that our LO feels safer in a controlled environment, controlling the "input" as you say.

  • dbarrylewis
    dbarrylewis Member Posts: 27
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    I wanted to comment since my post was referenced. I agree with the replies you’ve already received. I just returned from my mother’s MC and there are lots of people doing well. I see friendships and the MC encourages independence while providing lots of activities. When I left after dinner the I noticed the activity room was full of chatter as they prepared for a movie.

    My mother is still really struggling as we go into our third month but that isn’t everyone. While healthy meals are provided she’s now stopped eating. If it were only homesickness I would be okay. In her situation we need to look at alternatives but completely agree with others. The environment and routine can be very positive! Please don’t let my post worry you. I hope your mom does well with a future transition!

  • pjasso
    pjasso Member Posts: 110
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    Thank you for this perspective. I agree, even though my mom isn't there yet.

  • pjasso
    pjasso Member Posts: 110
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    I just got back from an overnight trip with my mom- it was supposed to be 2 nights, but she was so discombobulated and out of her routines that she was stressed, I was super stressed and we came home early. She kept expressing how she was looking forward to getting back to her own apt (AL) and was so happy when we entered it! I know it isn't MC (yet) but she feels safe and comfortable there— her routines and the safe structured environment takes the cognitive load off of her.

  • mqb2026
    mqb2026 Member Posts: 1
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    This gives me so much hope! On Day 3 of my Mom being in Memory Care and it has been so, so hard!

  • pjasso
    pjasso Member Posts: 110
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    That is so good to hear . . . hard to imagine yet for my mom, but promising. Thank you for sharing

  • pjasso
    pjasso Member Posts: 110
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    Wow! That is so good to hear, very promising, hard to imagine now. Thanks for sharing

  • pjasso
    pjasso Member Posts: 110
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    I feel my mom "sees herself" like the independent residents in her AL and believes she is fine. That is my biggest fear, is that she will have to be moved and she will observe all the people who sit on the sofas, not engaging at all. My mom is still a social butterfly, although I'm sure she annoys people!

  • sandwichone123
    sandwichone123 Member Posts: 1,385
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    It can take several weeks for it to get better. The key to happiness in memory care is that new residents need time to get to know the staff and other residents. Once they know the residents, they'll see them as individuals, not as "all those old people," and the perceived age differences tend to disappear. But again, it typically takes several weeks.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more