Telling siblings

If your spouse is ok with it, I would tell close family, then when your LO starts progressing they will not be shocked.

I agree with others. If he has anosognosia or is sensitive about the diagnosis I would not include him. If you do include him and they start asking too many questions or questions that might be uncomfortable for your husband ( I would try to be very attuned to your husband’s reactions during the conversation), i would wrap it up quickly and get back with them later with more details if you want. I think siblings should probably be told. At a family reunion, they might pick up on things more than you would expect. We took my mil to a funeral early on and I had multiple family members come to me worried about her and asking questions. We were in the process of getting her diagnosed at the time. If you include your husband, what would you do if he says he doesn’t want them to know? Pwd don’t always think things through clearly. This would leave you in a very awkward situation if they notice things, express concerns and ask questions. I assume they would eventually need to be told, but you would be faced with when to do that and would at that point be going against his wishes (which would not feel good either).

@Elaine2, We had a similar situation to yours. My DW didn't want to tell anyone but I found it necessary to slowly tell people about Dx. I would do this prior to lunches with friends, girls get togethers or other events where she would have close interactions that would likely raise questions about her health. I would msg or call them in advance and give them the back story so that they were prepared. This really helped especially with coordinating events with DW not being able to drive. It also helped them to understand why communications from my DW were difficult or had simply dropped off. All I asked them to do was not to let DW know they were aware. So far so good after about 20 or so of these calls over the past year. It has been a ton of work, but really improved her relationships, with a few people unexpectedly leaning in to help.

After success with friends and neighbors, I started selectively telling family. All were very discreet with some relationships even improving once people realized why DW behavior and communication had changed. Good luck!

I would tell them together if he is willing. Better sooner than later. It was so hard my husband didn't want me to tell his parents or children! after we got the official diagnosis we went to visit his parents and told them. We also went to see his two adult children and told them , afterwards he thanked me and said if i didn't make him he had no idea how he would tell them or if he even would! he is well aware of his DX for now its so hard and heartbreaking to watch someone you love struggle with simple things everyday! we also had genetic testing and he is negative, when I asked Dr " then how did he get this?" he said its a random case!