Need to vent about my brother

H1235
H1235 Member Posts: 2,410
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Mom is diabetic and has edema in her legs. She refuses to wear support stockings and eats any sweet treat she is offered, yet asks me every time I bring her snacks if they are low calorie (not low carb), because she is worried about her diabetes. If I buy her low carb stuff she doesn’t like it, so I’m usually vague and tell her I tried. She remembers her sil had to have a leg amputated because of an infection (she eventually died from complications of the amputation). Lately she has had some dark spots on her legs. The doctor prescribed a cream, but that has done nothing. She was reevaluated and they now believe it is an infection and have prescribed antibiotics. The nurse called to let me know since I’m the DPOA. I generally try to avoid conversations with my brother, but I called to tell him, because I thought it was the right thing to do. He had already talked to mom and knew exactly what was happening. He takes everything mom tells him as absolute fact. It’s worth noting that while I immediately called him he felt no need at all to inform me of his recent conversation with mom. I have to remember to just not call him. I told him I was concerned, since our aunt had to have a leg amputated due to diabetes, edema and an infection. He tells me “yea I talked with mom about that (my aunt losing her leg) and told her she really needs to be paying attention to what she eats and her sugar levels.” She has dementia and he thinks scaring her is the answer. Or that she has the ability and self control to manage this. It boggles my mind that someone could be so stupid. I’m sure mom is very upset by all of this with her leg and he just piles on by reminding her of my aunt. I know he was brought her sweet treat, yet he is telling her to be more careful🙄. Wow! She will complain to me that the facility is not giving her a proper diabetic diet as she accepts a cookie they just came around to offer her. During a care meeting they said they would stop offering her the sweets if she wanted, but she said absolutely not. Her blood sugar levels are under control with medication. Shortly after diagnosis I was expecting that we would get her diet back on track, but I eventually accepted that she should be able to eat and enjoy what she wants at this point in her life and fighting her on this was just not worth it. Especially since I was the only one that seemed to have any concerns at all about her diet. I once saw her fill a plate with 3 different desserts at my brothers house. When I expressed concern to my brother he told me to chill and let her enjoy herself. What a mess. Thanks for reading my long rant.

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  • SusanB-dil
    SusanB-dil Member Posts: 996
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    sounds like brother doesn't 'get it'. uuughh!!

  • zabka
    zabka Member Posts: 7
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    edited July 15

    How frustrating. Your brother... doesn't sound like he cares. Similar to mine.. I used to call with updates but when I have, his only reply is "your such a good daughter for taking care of mom, and thanks for the update'. I got tired of hearing this with him not offering any support or advice. Obviously not caring at all .. So I told him if you want to see mom before she completely forgets who you are and passes, now's the time. He just said thanks. His wife perked up (must have been on speaker phone and I didn't know it) and she said well you know.. we have our own things going on and just don't have time. I asked if they were ok, and her reply was yes we've just been busy travelling and biking. I ended the call at that time.

    Its sad, but do yourself a favor, stop updating and causing yourself more stress is my advice.

    Sounds like you are doing a wonderful job trying to take care of your mom.

    Here for you. We all need a good rant session. ❤️

  • caregiving daughter
    caregiving daughter Member Posts: 218
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    Try to get yourself out of the middle. Even an hour of facilitation from a geriatric care manager could have an objective person educate your brother on appropriate care and nutrition. You would no longer be the bad guy. If he still does what he wants, after the session, you would know you have tried and could take the steps such that she is not able to leave the facility with brother. He could, and should, still visit, and there are risks there, but you can only do what you can do. I had a cousin bring a tin of holiday butter cookies—yep, they were gone in one night and my mom was sick for a couple days. It's not possible to influence who can give my mom a gift. However, when cousin called me and asked me to meet her and my mom at my mom's old house, I said no.

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  • jen ht
    jen ht Member Posts: 240
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    I'm sorry @H1235 It is frustrating and scary. Care and responsibility are so much more complicated than I used to think they were. I feel for you.

    JHT

  • craftygalinstl
    craftygalinstl Member Posts: 15
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    I’m so sorry you’re going through this. It sounds like we have the same brother! I can totally relate to everything you said. I’m learning that almost every family has a “useless brother.” A “useless” family member is manageable if you lower your expectations to zero. What you have is a brother who is both useless and causes problems that you will have to be the one to deal with. What’s the legal situation with your brother? Is he an alternate POA? Mine is not, making it easier for me to put a stop to behavior that is harmful to them.

  • H1235
    H1235 Member Posts: 2,410
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    Thank for your understanding. My brother is alternate DPOA, so he only steps in if something happens to me. But he is co medical poa. How is it you put a stop to your brother’s behaviors. I have come to accept that I have no control over what he says to mom. I doubt the facility would stop him from visiting. As much as he stresses her, she would be frantic if she couldn’t see him. I’m not sure keeping him away would be good for mom either and I’m sure I would be the bad guy. If I tried mom would completely stop talking to me. My brother is her favorite and can do no wrong. Mom still has her phone so she can always talk with him. Even if things were bad enough that I wanted to try to cut him out of her life, he would without question take me to court and mom would be furious! What has worked best for me is to just limit my contact with him and try to keep it to texts. Mom is going to be stressed by my brother no matter what I do.

  • Emily 123
    Emily 123 Member Posts: 1,008
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    I think it's a tough place to be—With her in a facility and her daily needs met his point of view may be that she should take whatever small pleasures are left to her regardless of the consequences. Will it be great if she ends up with ulcers or amputated toes because of the diabetes? No-it won't. It might even push her over to skilled nursing rather than MC when the time comes, but you can only do what you can do, and at this point that might be to let it go. Preserve yourself.

    Given the consistency of his behaviors, much of this is about control and their relationship and how they use an adversarial relationship with you to meet their needs. Your mom gets to do what she wants, and your brother gets to be the 'good guy'. None of this is about what would be best for her— he's following a playbook where he's been primed to prioritize your mom's wants over anything else. He mirrors her anosognosia and treats her as if she still had full functioning capacity. He gets his validation from her by supporting 'whatever she wants', even though she doesn't have the capacity to recall that what she wants may be harmful to her. Bonus points for him as the golden child when he's able to 'protect' what autonomy she has left, right?

    You can't adjust this dynamic if two parts of this triangle are oblivious to it, especially when one part of the triangle has dementia and the other one can't deny the impulse to keep mom happy regardless of her lack of judgemental capacity. Your brother just doesn't have the objectivity to take a bird's-eye view of the situation. Time has shown you that it's an exercise in futility.

    Probably the healthiest thing is for you to continue to disengage—you've already identified that any battle will be uphill, where you're unlikely to make any progress and only resulting in frustration for you. It's so much healthier to continue to limit interactions and focus on your peace of mind, because I think this pattern will persist until your mom reaches a stage where she's less engaged. You can't stop every cookie that passes by her.

  • H1235
    H1235 Member Posts: 2,410
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    Thank you. I think your assessment of the situation is spot on. I have given up any hope that she will eat a diet, exercise, wear support stockings, elevate her legs…a couple of years ago. I agree, let her enjoy the ice cream and if it causes problems, then that’s just the way it is. Unfortunately I expect that even when mom becomes less engaged he will still cause problems. I can picture him insisting on taking her to his house for a holiday celebration even after that no longer a wise choice. When she enters the last stages I expect him to argue and not want to stop medication that is unnecessary (I probably won’t tell him). I can picture him telling me I’m just giving up on her. She has a living will, so that should help some. But if he were to beat me to the hospital, he would never stop them from preforming cpr/putting her on a ventilator even though she is DNR (by her choice) (which the hospital has on file, but you never know). To be honest even once mom is gone (we are co executors to her estate) I think he is going to continue to make my life miserable. I want to be as prepared as possible for the next stages, but at the same time I can’t fret and drive myself crazy wondering what trouble he is going to cause next.

  • terei
    terei Member Posts: 988
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    Sorry to say, i would have disengaged from this dynamic a long time ago. If he knows best, I would just step back and say, well, you know best…take care of it all and make occasional visits to mom, but leave her care to him basically 100%. I wonder if you did this, and stayed out of it, if he would last more than a few weeks and beg you to take over again with HIM staying out of it. What a dufus he is.

  • H1235
    H1235 Member Posts: 2,410
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    edited July 26

    She lived with him for a short time. Even then he was oblivious. He works full time and treated her more like a roommate, insisted she could make her own decisions, let her spend money on things that made no sense. It was all about her ights, never her safety. She had several falls in a matter of months, but when I asked if she was showering regularly he had no idea. She showered while he was a work and he didn’t see how that might be a problem. If I had not insisted she be moved to Al I believe without question she would not be alive today. I can’t even imagine how he would have handled Medicaid qualifications. He told me we should have hired someone to be the DPOA because I didn’t know what I was doing. Mom only had about $60,00 in the bank and a rundown house when she was diagnosed. If someone had been paid only minimum wage for the time and work I put in, it would have cost her her entire life savings. How do you pay someone to manage money and finances when she has practically non. He just doesn’t get it. I love my mom. I can’t leave care decisions in the hand of an idiot.

  • craftygalinstl
    craftygalinstl Member Posts: 15
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    To answer your question about how I put a stop to my brother’s behavior, I didn’t. He’s never going to change. What changed is the legal paperwork. About 6 months ago, my parents dismantled their entire estate plan, removing him as the alternate DPOA. At that time, my parents also resigned their position as DPOA for each other and themselves, leaving me and two other family members in charge of their lives, medical decisions, finances and bills. About 1 month ago, they both had a medical emergency that sent them to the hospital, then to a skilled nursing rehab facility and ultimately to a Memory Care Facility. During last 30 days, he’s visited once, at which time, he took my Dad’s watch. I got the watch back, and now I’m certain that the legal decisions made were the right decisions.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more