Noticing changes

golfgranny47 · July 8

I'm only a month into my diagnosis. I had a conversation with my granddaughter today and mentioned to her that I feel like I will notice when changes happen. She thought that might be a good conversation here. Have any of you noticed changes in yourself as the disease progressed?

Dneige89 · July 8

Hello. I was diagnosed in December 2025 but now realize that the “brain fog” I had been experiencing for a couple of years was most likely a symptom of MCI/ALZ. My own experience at this stage has been mixed. I notice when I am struggling with names, correspondence, math, or have a dull feeling of lethargy. I understand that people at a later stage may not realize or accept that they have Alzheimer’s.

I am eating well, sticking to a sleep schedule (except for late World Cup matches!), socializing, and trying to exercise. My PTau is .22, the PetScan showed mild amyloid, and my EPOE is 3/3. I do daily puzzles, crosswords, WORDLE, and read. I just started Glalantamine ER 8mg per day. I hope it helps.

I am fortunate that I already live with my son and two of his friends. This arrangement started with Covid19. However, my son has multiple sclerosis. I handle all of our finances, laundry, light cleaning, and pets. I am aware that replacing my current role in our family will require careful planning.

Wishing you all the best.🤗

SecondStar · July 14

Hey, while I don't have Alzheimer's or Dementia I was my grandmother's primary caregiver for years and I was able to witness the progression and all of the subtle little changes and I can honestly say two things.

You have some serious guts by actually looking for and tracking changes, most people would slam their head into the sand and never come up for air. You are bravely deciding to look it right in the eye! Good...for...you!

A seriously strong action would be to start keeping a journal, not just of what you have possibly forgotten or a log of the day's events but a bit of a dive into your deeper thoughts. Alzheimer's and Dementia can start presenting itself in the deeper thought patterns, intimate ways that you think, feel and create meaning in your minute to minute day to day life and that can be a powerful insight into any changes, even giving you some information on their quality- gold to present to your doctor.

I wish I had had those insights when I was taking care of my grandmother- that little glimpse into her real inner world... I Hope this helps you, you be safe and take care of yourself!

golfgranny47 · July 16

https://alzconnected.org/discussion/comment/276870#Comment_276870

Thanks for your response. The only thing that I noticed was having trouble finding a word when I'm having a conversation. That's what prompted me to say something to my neurologist. Then it was blood work and an MRI. I will see a neuropsychologist in September. Then discuss treatment with my neurologist. I did start seeing a therapist yesterday. I feel like that's something that will help me. I do puzzles with a friend every morning, Wordle, 7 Little Words and Keyword. I also play Quiddler every week. It's a card game where you have to make words. It's my favorite. It also helps me stay social. You are lucky to be living with others. I live alone in a small apartment building. I do have good friends here who know about my diagnosis. I have granddaughters who love me and are always there for me. I hope you and I can keep in touch.

Dneige89 · July 16

Good morning.🌞 You’re doing all the right things. Let me know how you are doing. Happy to stay in touch! Take care.🤗

qusheba · August 10

https://alzconnected.org/discussion/76501/noticing-changes

Hi, I'm Fran. I was diagnosed in February 2026 with Alzheimer's. But it was already looking like I had it. A PET scan confirmed it. So, I do not know how long I have had this. My college classroom teaching began to deteriorate way back in 2016. (I had been an award-winning teacher at a large urban university.) Around the same time, I also started having trouble driving. I couldn't tell how close other cars were to me when I wanted to change lanes. I just thought this was anxiety. Little did I know I was losing my ability to tell where I am in relation to other objects. After I retired, I struggled to write a book that I thought retirement would free me up to do. This would have been my third book but I couldn't figure out why I just couldn't organize the thing. I suppose that was another sign my ALZ was progressing; I just gave up. More recently, I got a metallic taste in my mouth, which I gather can be caused by ALZ. This is a small change but it reminds me that ALZ is progressing.

GEH · August 10

https://alzconnected.org/discussion/76501/noticing-changes

Hi golfgranny47! Welcome to the Club no one wants to belong to.. but here we all are .. together for each other… 😊. I was diagnosed around three plus years ago. I was a senior accountant at an Intl Accounting firm and was a serious multi-tasker. I found myself losing my train of thought, multitasking abilities and sometimes did not understand what people were talking to me about…long story short.. I had early stage Alzheimer's. It had taken like a year to find a Dr. that took me seriously and I was diagnosed with i think a PET scan.. at first was just put only on symptom easing drugs that did not help very much but I research and found Leqembi Infusions were available and my Dr. got me set up infusions every two weeks I am going for my 21st one (i think , lol) tomorrow. I feel more alert, since starting on Leqembi and less foggy and no longer feel i am living down in the bottom of a well... still drive, I live alone go to Dr. appoints on my own etc... it might be alitte scary for you at first but there so much out there now to help us all.. . And we are all here for you if you have questions, concerns or just need to blow off steam. Please jump in when you feel like sharing more....

GEH

Noticing changes

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