Have any questions about how to use the community? Check out the Help Discussion.

Engagement problem

dcare45
dcare45 Member Posts: 224
250 Likes 100 Comments 100 Care Reactions 25 Insightfuls Reactions
Member

I am having trouble getting DW to engage in any activities throughout the day. In the morning and right after the afternoon potty break, she will sort/shuffle her papers and talk for about an hour to an hour and a half. Then sits down and really is inactive in the between times. She used to work in an office environment and handled documents all day. I found if I give her the "mail" she will stay busy for a while shuffling it around. I try to keep her talking in the between times however she has some aphasia so it's really not a conversation. More of partial sentences and made-up words. But I can see engagement in her eyes even if I don't know what she is actually trying to say. I feel badly that I cannot keep her mentally active (as much as possible). We are stage 6.

We have been through puzzles, cards, pictures, games etc. and she no longer has interest in any of these. Going out to eat is no longer really possible. She gets too anxious in restaurants, has the Alzheimer's shuffle so going for a walk is out. No longer enjoys just going for a ride. DW seems relatively content. I am just having a hard time with the blank stare.

Thanks for listening.

Comments

  • sfrsythe
    sfrsythe Member Posts: 47
    25 Likes Second Anniversary 25 Care Reactions 10 Comments
    Member

    I’m sorry!!!!

  • BikingOldMan
    BikingOldMan Member Posts: 56
    25 Care Reactions 25 Likes 10 Comments First Anniversary
    Member

    You are not alone. You describe what I've been dealing with perfectly. Life does return briefly though when around other people. It's hard.

  • harshedbuzz
    harshedbuzz Member Posts: 6,935
    Ninth Anniversary 1,500 Insightfuls Reactions 1,500 Likes 5000 Comments
    Member

    @dcare45

    However painful this is for you, you are doing an excellent job meeting her in her world.

    My aunt had been an executive admin years and years ago. She was very content to copy things and staple them together.

    HB

  • annie51
    annie51 Member Posts: 816
    500 Likes 500 Care Reactions 250 Insightfuls Reactions 500 Comments
    Member

    I agree with. @harshedbuzz that you are doing an excellent job meeting her in her world. I went through this with my DH when he lost interest in puzzles, games, etc. and he too had severe aphasia. He never lost his interest in walking and car rides though so I was lucky there and I could get him to watch some television. I could also pull out his old high school yearbook or some picture books (those big coffee table books) we had and look at those pictures with him. If your DW seems content when she’s not doing anything, I wouldn’t worry too much about keeping her engaged. Keep up the things you’re doing and keep talking with her to make her feel comfortable and safe. You’re doing great!

  • Maru
    Maru Member Posts: 543
    500 Likes 500 Care Reactions 100 Insightfuls Reactions 100 Comments
    Member

    She may enjoy music, especially music that she might have been familiar with when she was young…church music, music that was popular when she was a teenager, classical music. Music often reaches people in ways that words cannot.

  • EarlInCA
    EarlInCA Member Posts: 15
    10 Comments 5 Care Reactions 5 Likes 5 Insightfuls Reactions
    Member

    My DW was a talented artist, champion golfer, and avid book reader. During the past couple of years, the painting became more and more naive, then stopped completely but she won't let me get rid of her easel. She will no longer golf with the ladies groups, but will still golf with me however she forgets where her ball is and what club to use. She now pretty much limits her reading to a few pages before she puts the book down and later tells me she has read it. All that remains is the stare and non-stop questions about when we do the next activity. It's a terrible loss and a terrible disease.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more