Time shifting
DH in middle stage of ALZ: lately he has had several episodes of time shifting, not the day or time, but in years. For example: last week he told our daughter that he had lost a few pounds (not) and could finally fit into the khaki pants he wore when he got out of the army. In reality, that was 70 years and 25 pounds ago. He has done something similar several other times. Looking online I found that this is called dyschronometria, and is a symptom of cognitive decline…and yet, he is still playing Sudoku and keeping a spreadsheet for our budge. Go figure. I just find it weird that he is seems to be living in the present moment then all of sudden he is back in the 1960s-70s. I guess, I am just kind of shocked to see this behavior so soon. According to what I was reading, this time shifting may soon lead to not being able to recognize his loved ones. Supposedly, he is in early middle stage.
I really don't even know why I am posting this…do I need advice? Do I just need to hear others' experience with this? I think that I am just in shock how fast this is moving.
Side note: the other night I couldn't get to sleep until after 4 because I had this terrible sense of impending doom and at the same time I've been rushing around and getting things ready for the next stage. For those of you who have been pregnant, I've had the same feelings as when I was nesting before the birth of a baby. I am guessing that on some deeper level, my subconscious knows things are happening. Yes, definitely experiencing shock.
Comments
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@Maru
Progression is always a sad reminder.
This kind of time travel isn't unusual IME. Both dad and my aunt, who were very different in presentation, did this. Fortunately, both seemed to revisit happy times in their lives; the wife of one of my IRL support group members got stuck in memories of hiding from Nazis in Belgium.
I found it hard, at times, to get a solid read on dad's progression as he retained certain abilities well into the disease process. I'm not sure if this was a function of considerable cognitive reserves, muscle memory (he was certified to teach both math and social studies) or perhaps just a function of the geographic areas impacted by the disease at any given time. About 6 months before he died from complications of aspiration pneumonia, he took a MoCA while I was in the room. The pattern of missed vs correct questions was striking— he could not recall the word "rose" (his mom's name) even with the prompt "a kind of flower" and yet he could do serial subtraction by 7s at least as quickly as I could.
FWIW, dad knew who mom, his brother and I were until the day he died. He was hazier on other people; he confused DS for his urologist, could not recall my DH of 35 years and had to be reminded my nieces were adults.
HB5 -
The brain is quite amazing and confusing. My DH can appear almost normal and then say or do something that shows he’s progressing. He tells his siblings that he’s lost 30-35 lbs recently and no one can explain why. It’s not true. In his rock climbing days he weighed 25lbs more than he does today. He was 55 then and 82 now. I can see him deteriorating at a faster rate of speed and I also feel like I’m in that nesting type phase but also in limbo.
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My Mom has done the exact same thing. One day out of the blue asked me about a neighbor that she had - when she was in high school. During the same conversation asked me if I had met her Dad. He passed well before I was born. I have noticed that my Mom has more difficulties around sleep/wake transitions and sometimes doesn’t know if something was a dream or real. She will sometimes wake herself up responding to something in a dream and believe that it’s real.
At this point, I honestly have no idea what ‘stage’ she’s in. She was at or below the 1st percentile for the majority of her neuro cognitive areas of assessment. She was not able to follow or understand the instructions for a fair number. The summary indicated that she has severe cognitive impairment across multiple domains. She’s continent, feeds herself, bathes herself, dresses herself (sometimes in things that don’t go together), reads, does her own meds, goes to the gym and washes her own clothes (whether or not they reliably get detergent is another matter). She didn’t know how to use the salt grinder that we’ve had for 20+ years though. She’s been here for 6 months and I drive her places multiple times per week. She doesn’t recognize my car in the parking lot. She tries to put visibly dirty dishes away regularly. I have really started to notice how impaired her short term memory is in the last 2 weeks or so. Non-existent most of the time. As recently as maybe 2 months ago, I didn’t think that she had any issues in that area. Her issues had been limited to word finding, logic, reasoning and math. She hasn’t been able to do serial subtraction at all for over 2 years. My Mom always loved to cook and not being able to follow a recipe was one of the first tip offs that something was amiss.
I tried to pin down the neuro psychologist to a stage after reading the report. Literally asked him on a scale of normal, mild cognitive impairment, dementia, moderate dementia, severe dementia where is she? His response was one of exclusion - she’s walking, talking, she can read so she doesn’t have severe dementia. She’s definitely in the moderate stage though. I thought that was interesting in that her cognitive impairment is considered severe.
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When a person with dementia stops recognizing their husband, it typically happens in the mid-to-late stages of the disease. This loss of recognition occurs because the brain’s timeline of life unweaves, causing them to mentally "time travel" to an earlier age when they viewed their spouse differently or did not know them
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Here's the DBAT document that will help you determine the Stage. If she has any behavior in a Stage, that's the Stage she's in.
DBAT:2 -
I recognize my DH in your description of your mother. If you don't mind a suggestion…I think that it would be safer for you to sort out and give your mother her meds. It would be too easy for her to taker too many or not take them at all. Coming from a nursing background, this became important early on.
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I don’t mind the suggestion at all - thank you. Interfering with her medication is one of the few things that makes her agitated. It’s nothing short of bizarre. She has a pill box for the week with daily compartments. 1st thing every morning she takes her meds for the day. She then immediately refills the compartment. Every day - completely defeating the purpose of a weekly pill box. I peek inside to make sure that the right meds are in there every couple of days or so. She does it in the kitchen at the table before she eats her breakfast where I can see her take them and refill the compartment. As crazy as it makes me, I’m just not going to fight that battle. And am willing to accept the consequences of a screw up that escapes detection. There is such a balance between letting her hang onto a sliver of independence and protecting her at all costs. I suspect the day will come soon enough that the task needs to be managed more closely.
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My DH is doing similar things. He will tell a story that happened when we were first married and act like it just happened. He confuses stories about his siblings with stories about our children. He is in stage 5 of Alzheimer’s and is starting to mix up his memories. He seems to be recalling more of the past but treating it like the present. He is starting to have trouble remembering names of his family members. We use photo albums to help him remember who people are. It seems like once he hit stage 5 some things started progressing quicker. It is sad and scary. It has led to sleepless nights, a lot of anxiety caused by fears of what the future will bring, feelings of loneliness and then the determination to do everything I can to help him.
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Maria N26, you are the first person that has related this particular "time shifting". That is exactly what I have been seeing in DH for over a year…it seems that he is perfectly aware of being in the present time, then will ask one of the kids if they remember something he did with his siblings when he was a child, and then slip right back into the present moment. There is no recognition that anything is amiss. Wishing you well on your journey.
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Sometimes that is the most amazing part about it. That they can flip back from present to past to present but make it all seem like the present. I wish you well on your journey too.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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