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Should I tell my mom that one of her best friends has died?

kzwilliams
kzwilliams Member Posts: 11
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Even typing this out, I’m wondering if the answer is no. I apologize. I couldn’t find a specific thread for this.

Mom is in MC, and moderate. She can leave the facility, but not very easily. She loves outings. I live out of town, but plan to travel for the service which is next week. I had planned to tell her the day before, and let her know I would pick her up to go to the service the next day, and then go with her. Usually at any function, she doesn’t want to stay for too long, so I would leave when she wanted to leave.

She gets very agitated knowing if there’s an event coming up, so I did not want to tell her until I knew when the celebration of life would be.

She has not seen this friend since she moved into the facility in April. Her other good friends who have seen my mom recently feel that I should tell her. Marjorie, who passed, was the life of the party, and many of ‘s good friends will be there who she has not seen in a while.

When she was better, she absolutely would have wanted to know, and would have wanted to go to the service, and mourn and celebrate her friend. Now, I’m not quite sure what to do. I feel like that there is more to tell here, I apologize if it doesn’t make sense, but I wanted to put this out.


Thank you

Comments

  • JulietteBee
    JulietteBee Member Posts: 620
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    edited August 14

    I am sorry you have this predicament to face. I think your telling her or not is dependent on your knowing your mom and her current level of awareness. I just told my mom about the death of a close family friend.

    She said, "Oh really?" Got confused about, and fixated on, the car crash details. She then ascribed the death to someone else, and very shortly thereafter forgot who we were even talking about and went on to some other non related topic. Word of advice: don't be surprised if the death announcement is not received as something consequential or of importance to her…ijs🫂

  • H1235
    H1235 Member Posts: 2,324
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    Funerals alway make for tough decisions. Sorry you have to deal with this. How is her memory? Will she forget the person even passed by the next day? My sil took my mil to a funeral out of state. She was so confused I’m not sure she even understood whose funeral she was at. The day after her return she had forgotten her sister had passed and was complaining she hadn’t called lately. Sadly even that was short lived and she never mentioned not talking to her sister again. How do you think she will do interacting with others at the funeral? Will she behave appropriately? It sounds like this might take a lot out of her physically. Is it worth it. Do you think your mom will enjoy getting out and seeing old friends, or will she be confused and possibly overwhelmed by the crowd of people. You know your mom best. I would not let a friend who stops by for an occasional visit influence your decision. Most casual visitors really have no idea.

  • harshedbuzz
    harshedbuzz Member Posts: 6,931
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    @kzwilliams

    Funerals are a tough one to figure out— there are so many moving parts and no do-over if you make the wrong call resulting in genuine pain for your LO.

    For someone in the earlier stages of dementia, many feel the respectful choice is to inform the PWD of the passing. Once. It might "stick"— news with a strong emotional component often does in earlier stages. If she forgets, you'd just deflect around the news to avoid the worst version of Groundhog Day ever.

    Others take a more protective approach sparing their LO any painful information that a PWD would not have the bandwidth to process emotionally.

    Your options, as I see them:

    Don't tell mom. If she finds out from friends, you can feign ignorance. This might mean she doesn't have the needed support when she gets the news.

    You could share the news but not attend the visitation or funeral. Or attend just the one you think would be easier on her.

    If you do go, you'll want to be ready to leave quickly if mom's overwhelmed or if her behavior (lack of social filter or forgetting it's not a party in the usual sense) is upsetting to the family.

    You know your mom best, trust your gut on this.

    HB

  • pamu
    pamu Member Posts: 137
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    edited August 14

    My mom (88YO) is in MC. She's between stage 5 & 6 and does NOT leave the facility due to exit seeking behaviors that have landed her at the hospital geri-psych. Mom still recognizes and can recall family and friends. She no longer has empathy though. With that said, her younger brother passed unexpectedly last month - he was in poor health but it was a surprise. My sister and I were undecided whether to tell her and asked her charge nurse and the psychiatrist for advice if we should tell her. They both told us that it wasn't a good idea. He and my mom hadn't seen each other in over a year and a half despite living in the same town. They were not close and mom never had anything nice to say about him. A couple days later, my sister spilled the beans to her during a "good" visit. Mom's reaction was odd (cold and distant but at the same time she acted like they were close). The services were up in the air for a week so we told her we didn't know what was going on. We had not intention of taking her because we'd never get her to return. Mom's twin sister explained this to their other brother but he must have forgot because he told mom all about the funeral and burial. Mom of course was really mad that she didn't know about it. Just when we thought she forgot about it my sister was talking about another elderly relative and mom said she wanted to go see her "before she croaks" (her exact words) because she wasn't able to see her brother before he died. In some ways I wish everyone had kept their mouth shut but I also understand that it's sometimes impossible to keep this kind of news from someone. Does your mom have enough cognitive reserve to remember if you tell her? You could always tell her and limit her appearance at the services.

  • ARIL
    ARIL Member Posts: 552
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    This is a tough one, and there are no “rules,” just your best judgment based on your knowledge of your mom and the situation.

    A relative of my LOWD (stage 6) died last month. I told him. Once. He understood, was sorry but not upset, and said, “What must we do?” I suggested sending cards to the deceased’s children; I had cards with me, and we did that immediately. He signed his name. Even during that task he lost track of who had died, who the children were, etc. I have never mentioned it again. I went to the funeral myself and sent flowers from my family and my LOWD. That worked out for us.

    The thoughts others have offered seem very good to me. There’s whether to tell her (one decision), and there’s whether to take her to the funeral (another choice). As for the latter, I’d consider the impact on her and also on the grieving family. Can she manage the trip? Can you manage it with her? Will she understand the emotional tone of the event? For whose benefit is it for her to be there?

    In earlier years I sometimes went to family funerals just because it was too hard for me to travel to pick up my declining dad and then take him to a funeral and then back home (in the example I have in mind, this involved three states). In that case I said, “I will go to represent the family.” That sufficed, although at the time he regretted his absence—and some of the family told me I should have brought him…and even volunteered to drive through the night to go get him themselves. It was hard work for me to put a stop to that. But I did.

    In other words, these things are difficult. Make decisions you think are best for your mom, for yourself, and for the family in mourning. You know best. We are with you!

  • caregiving daughter
    caregiving daughter Member Posts: 171
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    No

    Dementia impacts folks ability to reason. The key is calm days to ensure a peaceful care plan.

    I am sorry to hear of the loss

  • Billmo
    Billmo Member Posts: 8
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    Makes sense to me. I have mixed Alzheimer’s Disease in moderate stage and Vascular Disease and Dad has same but in last stage.

    I guess I would ask her if she remembers the person by name. If she says no, I would not tell her. If she says yes, I would only tell her the person passed away and nothing else unless she specifically asks. I say this because you mentioned she gets upset in such surroundings. My 90 year old father in law likes to go to restaurants, and just stares at the people around and does not mingle with anyone but asked. He loves hugs from mainly females. I am 72 years old different, I will converse with dad, but when we do not have much to say, I either stare out a window or at a TV screen or at a wall. I do not want hugs and kisses from anyone and when there is a lot of people around me I am extremely nervous and agitated. I am not aggressive since I am medicated for that, but I still do not want to be around people I do not know. When we go to restaurants, he miss his meal and drinks for 3 hours, while I am done in the first hour, and am not happy to feel I am forced to be there for 3 hours. I feel more comfortable at home.

  • sandwichone123
    sandwichone123 Member Posts: 1,380
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    I would tell her that the friend has died, if she remembers the friend. Then, based on her response to that information, whether it's caring and appropriate or instantly moves on or gets hysterically upset, I'd consider the funeral. In any case, I would not mention the funeral until time to go. Then that morning, "Remember Dorothy? I told you she died? Her funeral is this morning." Then, again, I'd see what the reaction is before taking her.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more