Recent Diagnosis

it is difficult to receive a diagnosis for which there is no cure. However, there are treatments available and I encourage you to speak to your neurologist. I have found that our fellow travelers on this journey to be supportive, knowledgeable, and happy to share their experiences. I was diagnosed last December but I have chosen not to get infusions. I am 75 with other health conditions that make it more risky. I have a local neurologist and I had a consultation at the Mayo Clinic. Things to do: eat healthy, exercise, socialize, sleep, and do cognitive training such as puzzles, crosswords, etc. I wish you all the best🤗

Hi to each of you! I'm 68 years old. I started seeing a neurologist for short term memory loss. It took two years for me to convince my doctor to test me for Alzheimer's. Until January this year, I was the executive assistant to our CEO and started to make too many mistakes for me to handle. I took a big step back on pay, but thankfully the company has given me a less stressful role. I'm "Grammy" to my four grandkids (5-11) that share my home (with their mom and dad too), and I work a part-time job at a bingo hall on Sunday nights. I reconcile the cash and inventory with pencil and paper at the end of the night (at midnight), but I also believe that made a difference in my ability to last this long.

I also believe my intense memory job I was doing for the last 25 years kept the diagnosis hidden a longer time. I've been tested and show positive for P Tau 217, positive for Amyloid PET, and am APOe4/4. My company insurance will not pay for the Kisunla or Leqembi, so I'm ending my time with Cigna and will be starting Medicare in October.

My neurologist is a generalist and seem like he isn't interested in honing his Alzhemier's knowledge, so I also have an appointment with a new neurologist at a Baylor Scott and White in October, so I'm hoping I can get more aggressive treatments. I am thinking Leqembi would be best because has a less chance of causing bleeding. I'm also interested in trials, if they let us do that while doing the infusions. I've seen some reports that they have show some the next steps of the treatments that are actually making new memories that stay around.

I'm driven to do the best I can for my shared-home family, hoping I can hold it all together and not be too hard of a burden once the worst comes. I'm still figuring finances (from the increase in Medicare cost compared to company insurance) and starting wills and understanding the best ways to try to help my family once I'm gone. Our house is in my name. I also have an older son, and I am planning to leave him most of the cash that from my insurance policies, but would love for my grandkids to still be able to live in the only house they have ever lived in.

It has taken me since January to now to start really thinking about how to move forward. As a single mom, I worked multiple jobs and spent all my time and effort into my family. They are terrific and plan to help me through this, but I don't how to do anything but work. I need to figure out how to get my body out there to move, to manage a healthier diet, and keep my brain moving forward instead of wallowing in feeling sorry for myself.

I'd love to hear how this is all working out for you all and any good ideas to make these last years be the best as possible.

Thanks for listening!!
Laurie

Make sure you have a variety of the types of "brain games/activities." Easy choices don't exercise your thinking enough. I use an app called, ELEVATE. It has dozens of extreme and challenging brain exercises; hard puzzles, exercises in math, reading, written expression, memory games. Each category has hard and very challenging activities. I play 2-3 hours a day (in increments) and love it. There are also some exercises that are audible, which really exercise your brain's listening comprehension (this is an area that I have great difficulty with, when conversing with people, due to a new brain processing problem due to the Alzheimer's disease).

***I forgot, the game also shows how you stand with other players; everyone uses anonymous names, of course.I love gaining the points, while competing.

My NeuroScience neurologist and my niece (R.N.) advise and follow my progress with my brain exercises.

I was diagnosed one year ago with Mild Alzheimers. I think I am doing well after one year. I try to stay healthy and keep a good attitude once I got over the shock of the diagnosis.

I understand well, with a ten-month diagnosis. You do need a specialized neurologist to guide you through this experience. They are neurologists who work in the "neuroscience" area in medicine." I am currently taking LEQEMBI, for 9 months now and luckily no adverse side effects.

The difference between KINSULA and LEQEMBI is; KINSULA reduces fewer amyloids (the protein clusters which damage our brains) from your brain and focuses more on improving the symptoms of AD…i.e., difficulty with word recall, slower brain processing when listening to a conversation; and other little memory lapses. LEQEMBI focuses on removing the amyloids, and can also detect future amyloids in our tissue. So, LEQEMBI destroys amyloids and improves the symptoms of the AD.

After seeing a specialized neurologist, please GOOGLE and read information from reliable research articles and the pharmaceutical information on each infusion product, too. This forum will also have numerous commenters to give you even more information, So, keep on asking questions, someone will answer.