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Goldilocks or The Princess and the Pea

lilacgirl
lilacgirl Member Posts: 92
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Sometimes we just have to find the humor in some of the ridiculousness this disease causes. The saga we have gone through with my mom surrounding her bed is just so off the wall, it's funny.

She has complained about her various beds for years and years, blaming her back pain on every single one of them. She got a new adjustable bed about a year ago; we thought that was going to be the answer. But of course, it was not.

Fast forward to April of this year when we were moving her into her ALF. She repeatedly told us NOT to bring her bed from home because she hated that adjustable thing. She just wanted to use the twin bed provided by the facility— as long as we brought two risers to raise the head of her bed, due to her acid reflux…. Seemed fine for a couple weeks, then she started to complain that the blankets kept getting messed up (the bed's fault, of course). Then she complained that she couldn't sleep after housekeeping changed her sheets because of the way they made the bed. Then it was the sheets that were "too slippery." Then she complained that the box spring was too hard (it had a platform instead of springs), and we had them swap out for a conventional box spring. That new box spring didn't do it, so I gave her one from my house.

Last week, I had enough and I took her shopping for a new Queen-size bed. (Pro tip: The smartest thing I ever did was go to the store ahead of time and work with the salesman to narrow down her choices to just TWO things to choose from. It was a good thing I told him about her, because when I came back with her, she told him she lived "in a dorm at the college." But I digress.)

We got the new bed the next day. Had to fashion a whole crazy configuration to be able to put the risers under the head of this one, but it seemed okay for the first night. Then: "The bed would be PERFECT if it just had a headboard for her to lean her pillows against." Then: "Housekeeping staff told her to try propping up her pillows with a body pillow instead of worrying about a headboard" — so I took her to Walmart to get a new body pillow.

She slept well last night on this configuration, but she can't remember which way she had it: small pillows on top of the body pillow, or body pillow on top of small pillows. So she's stressed out trying to decide how to sleep tonight.

It's NEVER ENDING and I am tired of twisting myself into knots to try to bring her some comfort and peace every.damn.day. But my brother and I have learned to laugh about The Princess and the Pea, and just wonder what tomorrow's complaint will be.

Is this weird FUSSINESS just a part of AD???

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  • H1235
    H1235 Member Posts: 2,333
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    You are a way better daughter than me. I would have been done with that nonsense long ago. I want to make mom happy, but have accepted no matter how many hoops I jump through it will never be enough. I sometimes wonder if it’s away for mom to exert authority and control when she has lost to much. I’m glad you can find humor in your very frustrating situation.

  • ARIL
    ARIL Member Posts: 559
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    Agreed that your patience is exceptional! You tell the story well—it is funny, although I am sure the frustration is deep too. Kudos to you for finding the humor in it!

    My dad’s recent fixation is the shaver I bring each time I visit. He wants razor blades instead. We go through a whole routine each time. Today I tried, “Well, you can go buy a replacement tomorrow, but right now this is better than nothing.” He said, “Barely.” I laughed. So did he.

  • JulietteBee
    JulietteBee Member Posts: 620
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    @lilacgirl, I am with @H1235, I would have been done with that from it started.

    Prior to moving mom into her ILF, she complained of her mattress for MONTHS, so I gave away her old bed and bought a new one, mattress included. When it was purchased, I told her point blank, "this ends all future complaints about your mattress." She hasn't complained since. Phew!🥳

  • pamu
    pamu Member Posts: 137
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    I always like reading your posts. I'm sorry that you're going through this but I feel like we have the same mother and your posts hit home with me. LOL. My mom is super fussy as well. My thought is that this is their way of being in control. She'll tell you what she wants - then when she gets it, she will hyper focus on it or will want to change it. When my mom was living on her own she decided she wanted a hospital bed. I think in her mind she was thinking ahead of what she might need. After she got it she wanted a different mattress. Her neighbor had the exact mattress she wanted (mom claimed it was on a hospital bed). She gave me the info and of course it was too thick (which I suspected and we discussed). Mom thought it was wonderful. We ended up having to put chairs on either side because the mattress was higher than the rails. Of course within a couple of months she fell out of bed and ended up in the ER with a contusion. Oh, and the hospital bed came after we already bought her a new frame and mattress. She also went through four phones in three years. Now she's in MC and the behavior continues. She wanted new eyeglasses. She wanted single focus lenses this time, not progressive. Everyone tried to explain to her that she's been wearing progressive lenses for a very long time and it's not a good idea to make the change now. She was so adamant that we ordered her what she wanted. She received them and claimed they were exactly what she wanted. Fast forward a month, she decided that she didn't like them and wanted to get bi-focals (no convincing her to go back to progressive lenses). We arranged it and she got bi-focals and kept the other glasses. Fast forward another month and she's complaining about these glasses saying that there's a line on the lens (expected and explained when she ordered them). She now tells me every visit that she wants to go to a new eye doctor to get glasses. Then there's her underwear and socks that she's obsessed with. It gets too much at times and it's hard to not emotionally carry this in our own lives. My answer to your question is "yes, fussiness is part of AD"!

  • lilacgirl
    lilacgirl Member Posts: 92
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    Haha, oh my goodness, they really ARE the same!!!!

  • Sissy1
    Sissy1 Member Posts: 6
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    I just have to laugh as I read your post, not at you mind, but definitely with you as I have had a very similar experience with my mom who has AZ and LBD. Her Goldielocks issue is with her chair. We have been through 6 chairs to get the right one. She has gone back to her original chair after every one we've purchased and returned or simply put into a different room. She decided that one of the new chairs that she said at first, "hurt her back", is actually comfortable in the living room, but wasn't when it was in her bedroom. Then I switched her bedroom when my son moved out bcs she likes his room better, now she misses the view from her old window and insists her old room was bigger ( it is exactly the same size). But I put my foot down on this issue. Now she has decided that she wants her living room chair in her bdrm, but it won't fit through that door due to the angle of the hall. So I gave her one of my chairs bcs her old original chair hurts her back. Then later she wanted her old original chair back in her room, so we switched it. This lasted 2 weeks until we put my chair back in her room. Fast forward to Labor day weekend, guess what we did? You got it, we went chair shopping! She has had chair # 7 for a little over a week, just waiting for the inevitable! (Also, I gave away her old chair so she can't go back to wanting it!)

  • lilacgirl
    lilacgirl Member Posts: 92
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    Your post made me laugh, too— it sounds SOOO familiar!! LOL!

  • kateyc
    kateyc Member Posts: 4
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    I appreciate this post so much. Our situation is meaningfully different, but it involves furniture discontent and a bed as a metaphor for feeling out of control and having no agency.

    My mother has wanted to live alone since she was a little girl. I have all kinds of armchair psychologist theories about this, but it is objectively true. She LOVES her home, her yard, her furniture and her things. She worked hard and was responsible with her money her whole life. She kept meticulous care of her home.

    When we moved her into our home 4 years ago, I was overwhelmed and felt so sad for her and so guilty. She was so gracious "When you tell me it's time, I trust you." I moved a fair amount of our furniture and stuff out of our house to move hers in. I couldnt deal with the logistics and the emotion of selling her stuff and at the time we did think she could live independently near us. In the end, her bedroom furniture ended up in our room because she has a king size bed. A full-size bed, one of her beds, fits in her suite we have for her. Not long after she came to live with us, it became very clear she couldnt live alone. Even now, 4 years later, she talks about getting her place and possibly going back to work.

    She has been disgruntled intermittently about her bed. " She deserves a proper bed" and "I have several beds. Dont know where they got to." "Somebody is sleeping in my bed." Hint: it's me, her daughter. She passes by my room and it confuses her. She sees her furniture.

    We have tried a mattress topper. It ? worked for a time. I considered a different headboard. Intuitively I know the bed is fine. She told me the other night, when I said we can get a different bed, but it would have to be the same size, she said "I really just need to get my own place."

    Told her we would call a real estate agent in the morning.

    Learning curve is steep.

  • Pmmommie
    Pmmommie Member Posts: 26
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    I feel as though we all could create one hell of a reality show! I also feel like I'm living in this crazy world I also call "Daddy's World". I sing my theme song nightly to the toon of Elmo's world just for a little lightness.

    His obsessions are many and amusingly frustrating. First off, the bed. He's not having it at all. He sleeps on the couch in his living room. His bed that he has had for years, is too hard even though there's a very expensive mattress cover that he was enamored with and I've had to remove the lock from his bedroom door since he keeps locking himself in so, no one can surprise him with entering his apartment. He also is obsessed with lanyards and key chains. He especially likes the lanyards that have the detachable key holders but, he must have a Marine Corp key chain on each lanyard of choice. He will not use any other color aside from blue or red and don't even try any other color. AND it can only be the special Marine Corp blue. Again, don't even attempt any other color of blue. To top it off, he has been putting his key in his pants pockets and wearing a lanyard!

    Can we discuss the to go containers they give him for his desserts??? Do Not throw them away! He keeps a count of them and will check his trash several times a day to make sure each is present and accounted for. Socks you say? He has 50 pair of crew socks. Yes, 50 pair. He wears 2 pairs together daily. I've tried but, had no success even with his loafers or Hey Dudes. Somethings are just not worth a battle and more about a chuckle. To this day, he has 5 bottles of body wash,5 shampoos,20 packs of wipes,24 rolls of toilet paper,15 rolls of paper towels, 8 toothpastes and 10 toothbrushes along with 5 disposable razors. He has now called 15 times today to ask a serious question and favor. He's running low on somethings and needs to get his checkbook so he can go to the store to stock up on the above items! Gotta love him!!

  • kateyc
    kateyc Member Posts: 4
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    "His obsession are amusing and amusingly frustrating." This is poetry.

    Can I borrow the song idea?

  • zuzu37
    zuzu37 Member Posts: 1
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    Thank you all for these posts! I'm laughing AND crying because I see our situation in each of yours. We have been dealing with my mom's dementia for several years now, but lately things have progressed and we're in the process of getting her qualified for Medicaid so that we can move her into a MC facility. The incessant calls every single day, the hyperfocus on her glasses or the fact that she "needs to learn how to drive again" because she "has to go to work." It is overwhelming and frustrating…knowing we are not alone helps!

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more