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Mental illness and memory care

Hi all! I'm facing a decision about increasing my mother's level of care, and I'm getting very different messages from professionals. I'd appreciate any advice or input you have about what questions to ask or factors to consider.

My mother has longstanding mental illness with various diagnoses that features an explosive temper. She also has mild to moderate vascular dementia. She lives with my father in a studio apartment in assisted living. Right now, her only supports are medication management with meals and transportation provided. My mother is becoming more and more confused, and, as a result, more agitated.

My father is struggling to manage and understand her symptoms. They have not had a healthy relationship for years, and he also struggles with a memory impairment and lifelong major depression.

I am considering memory care for my mom. The director at the assisted living thinks it is too soon for memory care and suggested more supports, including having aides accompany her to meals and activities. Yesterday, I had to take her to the emergency psych ward because she was very agitated. The psychiatrist there urged me to move her to memory care. I don't know how to evaluate their input and make the decision.

Comments

  • H1235
    H1235 Member Posts: 2,339
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    Welcome. I wonder if the Al director is simply trying to keep her there as long as possible for the financial benefit of the Al. I would tend to believe doctors at the emergency psych ward since they have no skin In the game. The dementia is only going to get worse and she is only going to need more care. The latest person to move into mc is probably going to be the person that is able to function at the highest level. That doesn’t mean they don’t belong there. I think your parents relationship has to be considered as well. This should be about what is best for both of them. In my experience Al did not have well trained and knowledgeable staff. I see it as a place for those in the very stages of dementia. The care offered was very minimal. I don’t think a good mc facility will take someone that doesn’t need to be there. I think they would come to her and do an evaluation or ask Al for information about the care she requires. If the latter happens I would make sure the mc facility receives the accurate information. So based on the description you have given my advice would be to move her to mc. Dementia is so complicated and decisions can be difficult. You are clearly thinking this through. Just do the best you can.

  • harshedbuzz
    harshedbuzz Member Posts: 6,936
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    @Crudenduck

    Hi and welcome. I am sorry for your reason to be here but pleased you found this place.

    The intersection of mental illness and dementia is a challenge. Having 2 parents with dementia with competing needs simultaneously is also a special challenge.

    In reading your post, I came to much the same conclusion as H1235 did. I wonder if the director of the AL has different priorities than you do. She may be concerned she'd be losing 2 residents if you opt to move them both together. Would the enhanced care she's suggesting be privately hired or something the facility would arrange and bill you for?

    I would take the advice of the mental health experts about the sort of care mom needs now and going forward. A purpose built MCF with dementia-trained staff and dementia-informed programming might help your mom be less triggered. Transferring her directly from the geripsych unit with the help of the social worker will be easier than doing tis on your own. They would presumably know which facilities are willing to work with people who have more challenging behaviors.

    Good luck.
    HB

  • Crudenduck
    Crudenduck Member Posts: 3
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    Thank you so much for your comments! The AL actually has an on-sight MCF, and that's the one my mom would go to so I don't think there's a financial motivation at play. However, today my mom's AL case manager said he didn't see any signs of memory issues with her. That is just bonkers. She re-sets about every 30 seconds on a bad day and 5 minutes on a good day. So I think that answers why the director said what she said!

  • SDianeL
    SDianeL Member Posts: 3,421
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    great advice here already. I would be concerned about the Case Manager making that determination since your Mom has a diagnosis of dementia. Unless the caregivers are with her constantly they may not realize what stage she is in. PWDs can showtime for periods of time which causes people to second guess the diagnosis. I would trust the Geri Psyche doctor and move her from the hospital into MC.

  • cdgbdr
    cdgbdr Member Posts: 314
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    The AI director obviously doesn't see the big picture. Your mother's objective testing results should be used to determine her MC appropriateness. My DH was evaluated at 2 facilities, and, trust me, the rudimentary assessments they completed supported the need. Unless your mom can ace memory tests, the clock, etc. that will validate her condition.

  • H1235
    H1235 Member Posts: 2,339
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    You should also keep in mind that the mc structured environment, not just the medication may be some of the reason for improvements you see. My mom of course didn’t like freedoms being taken from her, but over time she has done so much better without the weight of these things on her.

  • JPJardinel
    JPJardinel Member Posts: 67
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    It’s completely normal to feel disoriented by conflicting advice. The facility sees your mother’s daily capabilities, while the ER psychiatrist is focused on acute crisis risks. To help evaluate your options, ask the assisted living facility if they are specifically equipped to handle both dementia and mental illness simultaneously. Even if her dementia is mild, a memory care unit might better manage her explosive temper. Additionally, consider that your father sharing a studio with her adds another layer of risk. For clarity, seek a third opinion from a geriatric psychiatrist who can assess the full complexity of her condition.

    I hope these resources can help:

    https://hopebridge.care/memory-care-placement-decision-how-to-know-when-it-is-time/

    https://en.wikipedia.org/wiki/Assisted_living

    https://www.aarp.org/caregiving/basics/memory-care-alzheimers-dementia/

  • EvaBee
    EvaBee Member Posts: 10
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    On the AL leader resisting moving a resident to Memory Care, unfortunately there might be one more factor. In the Senior Living community my mother is in, MC is full, and there are too many residents in AL who are getting close to needing MC. There was an AL resident who was found wandering outside along a very busy road late at night, and it still took several weeks to get her a MC slot. So, from a business standpoint, they have a strong motivation to recommend AL rather than MC.

  • pamu
    pamu Member Posts: 137
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    edited August 24

    Just noticed the original post is from last year. PWD present themselves differently to different people. My mom's neurologist saw her three weeks before a major wandering episode. He thought she was "charming" and had mild cognitive impairment. It was her first visit to him and she was able to showtime. She was diagnosed with Alzheimers back in 2018 (along with lifelong mental illness). At that last appointment she was able to draw a clock, count backwards in series of 7's and have a somewhat fluid conversation. Had she been there another 20 minutes, the wheels would have come off the bus and her cognitive decline would have been exposed. We had been reporting her decline but not everyone saw it. Fast forward 18 days and she had a major wandering episode that landed her in the ER for a geri psych evaluation (along with paranoia and delusions). The doctor there said she definitely needs MC at this point. The director at the AL was surprised by this - with that said they required her to be stabilized before she could return to AL. We knew at that point that we had to make the decision based on her "bad days" instead of crossing our fingers that we would have to place her later on down the road after another crisis. Mom is probably the highest functioning person in her unit which can be difficult because she can do more than the other residents although she has pretty severe behavioral symptoms. She still has delusions, paranoia and agitation but we know she is safe and is being monitored.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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