Loss of mobility

yes, unfortunately many people with dementia lose their ability to walk. The part of their brain affected by the disease causes it. I would ask for a hospice evaluation. The next step in progression may be becoming bedridden. So sorry. 💜

If you haven't already, please have a medical evaluation to see if there is a medical reason this may be happening - especially as it is sudden.

Hi @BarnesL

Most people think of hospice as the people who are there at the end of life. With dementia, hospice can be there a lot sooner with staff and resources to help caregivers. Medicare part B and most insurances pay for hospice. Lack of mobility, failure to thrive, and other conditions that can overwhelm the caregiver are reasons to call and request an assessment.

I also learned that palliative care is also available for dementia patients. The difference between palliative care and hospice is that the patient can still receive life sustaining treatment like IV’s, tube feedings, hospitalizations in palliative care whereas hospice is when the caregiver decides on only comfort measures for their loved ones. Palliative care can also refer to hospice when the time comes. With either, you can take the patient off their list whenever you think you can handle things on your own.

You can self refer to either - no need for doctor’s referral. And if the patient does not qualify at the time, they are usually placed on a list for a 6-month follow-up evaluation. I highly recommend contacting hospice when you reach the point that the care is beyond your capabilities/stamina.

so good to hear from, you, @CindyBum

I agree with all that has been said so far. I would also have your loved one checked for a silent UTI. My DH ability to walk declines significantly when he has a UTI.

Cri, is your LO on hospice? They provide those things. They can be very helpful—worth looking into.