So much!
First, I am glad to have the connection with you all as it does help to read others' posts and ideas for dealing with this disease.
Also, not sure why I am listed as a he/him - I am the wife and caretaker of my husband.
My hubby really has left me with such anxiety and worry the past 36 hours. He keeps walking out the house (I have a tracker on his phone and wallet), wandering the house all night long, sets off the house alarm, and said he needs to get away from me as well as his constant talking with people that aren't there (but they are for him) so we have to whisper. Yes, it is time to pursue memory care and so that alone is overwhelming. What to say to him, getting all the paperwork at the memory care location which I prefer application etc, and getting furniture lined up. The actual move - it hopefully happens before he puts himself in more danger - he does not trust me at all right now so all I do is watch him 24/7. Any thoughts from anyone who has already made that journey from home care to memory care is appreciated. Thanks for reading.
Comments
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I just made that journey a couple of months ago. Here is my story. I woke up one morning in June and knew at that time I was ready to put my DW into memory care. I started to check out the various MC facilities to have my plan B ready to go as most had waiting lists. I finally chose the one I liked. Not the newest one but one that I felt would give her the best care. Yes there was a waiting list and we were third on the list. Luckily this MC facility didn’t ask me for a deposit. About a week and a half later, I received a call from the facility telling me that the two families ahead of us decided they weren’t ready and there was an opening. I wasn’t prepared for such short notice do I asked if I could pass and go back on the list. They said that was no problem. I then wanted to confirm that we would be third on the list and they said actually we would now be 8th on the list. Wow I thought who knows how long that might me. This was a Monday and I told the MC facility that we would take the opening and asked how much time I had to move my DW. They said Wednesday. Another Wow hit me. So I got a family member to come sit with my DW on Tuesday for a few hours and went to the facility bringing her clothes and decorations for the room. Got it all done and Wednesday I told my DW that we had a Dr appointment. When we got there the staff came out into the lobby and took her into the facility. It’s been two months now and my DW has acclimated just fine. She likes it there and has friends now. I hope your journey goes as well as mine. Here’s a picture of my DW’s room.
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Thank you for the encouragement and I am hopeful that a place that I liked will work out! There is s 9 month wait list on that first choice so going to try and get on at another facility that I also liked. YOur story gives me hope!! I appreciate your post and experience!
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I made that journey last October with my DH. He was a wanderer and also was getting physically aggressive toward me. But unlike many others’ experience, my two favorite facilities did not have waiting lists. So once I made the decision, it was a go. My first choice was one that, like @blacksparky, was not the newest or the shiniest, but was clean and had a design that I felt would be beneficial to DH. The rooms were furnished so I didn’t have to arrange to bring furniture. The day before I had friends take DH for a walk and brought clothes and personal items as well as familiar pictures and books that he liked. I did bring a few small pieces of furniture later. The story I used was that we were invited to a new place for lunch. The facility was aware of my story and welcomed him with big hugs, brought him in to the lunch room and sat with him, while I quietly disappeared (the worst part of the story). He acclimated pretty well, although the in-house doctor had to make med adjustments the first few weeks to calm him some. They communicated all changes to me for approval, which I appreciated. It was a hard, hard time, but you know when it’s right for you and your husband. I hope things can go well for you.
As for your comment: Also, not sure why I am listed as a he/him - I am the wife and caretaker of my husband.
If you click on your profile at the top right of the screen, then click on “Account & Privacy Settings”, then Edit Profile Settings. You’ll see these settings that you can change.1 -
Thanks so much for the help and sharing your experience. I am dreading the future, for sure.
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Hi, Sunny D, my story is a little different. My DH went straight from the hospital to MC. I had known for a while that I needed to place him but kept putting it off. Then he got pneumonia and was so weak he couldn't walk on his own. I knew then that it was time so I talked to the social worker at the hospital. Then the doctor called me and said I could no longer care for him at home and it was time to place him. I already knew what facility I wanted him in and they had an opening. The social worker took care of everything and the hospital arranged transportation to get him there. It was both a relief and the saddest day of my life. It took quite a while for him to fully adjust but after 2 1/2 years, he has finally settled in and seems content. The facility is not new but it is clean and the staff takes good care of him and is very friendly. I hope you can find a place for your DH soon. Also, if you haven't done it already, you need to see an elderlaw attorney and make sure you have a durable power of attorney in place. If you will need Medicaid for your DH, the attorney can help you with that, too.
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Thank you so much! We are on a wait list and I feel that it won't come soon enough. Flight is ongoing, even when our alarms are on. Meeting with an in-home agency tomorrow and hoping I can get some sort of schedule for my own need to exit the building!
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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