I need help understanding this
Ive known for quite sometime now that something wasnt right with mom. Whether it was reconnecting all the connections on the TV and internet on each visit, fixing all of the clocks, and changing passwords to her accounts every other day. This went on for a few years. But then she hears her long time deceased parents in the other room, looses everything....... I have no idea how her family practitioner didn't see the signs. She was referred to a neurologist for something else but left being treated for alzheimers. This helped me understand that she wasnt seeking attention, she just needs tender care , patience, love and understanding. And now it is like I am the mother to a child. And I am not complaining, but somedays are extremely difficult for me. I am prone to panic attacks, and I have recently had 2 mini strokes. My doctor told me to always have my BP pill that I take just for emergencies with me when caring for my mom. I am learning as I go but I could really use some help on how to deal with her sometimes. Today it felt like my heart was going to jump out of my skin. And she refuses to accept that she has alzheimers.
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Welcome. Sorry you need to be here. She will probably never accept that she has dementia. This is called anosognosia and is pretty common. It is the inability (her brain can’t) to recognize her symptoms or limitations. It is a very difficult symptom to deal with. We hav a saying here, never try to reason with a person with dementia. It will only cause you both to become upset. I will attach the dbat staging tool. You may notice it actually gives a rough age equivalence at each stage. They are aging in reverse. The thing is you never know when she will lose that next skill. This makes it important to stay one step ahead in her level of care. What is her living situation? Living home alone at the stage you are describing is not going to be safe. If you are living with her, with your own medical conditions, this might not be safe for you. Have you looked into a facility. There can be a waiting list to get in some places. Do you have a DPOA? This is very important.
Different ways to approach problems- 1) If it doesn’t matter, she is just always right. Pick you battles. 2) Do what needs to be done without consulting her and sometimes without even telling her. 3) Never try to reason with her. Proof and logic won’t work. Live in her world and stop fighting to bring her back to reality. 4) Use a therapeutic fib. I know it seems wrong, but if a fib will ease her stress and anxiety, in my opinion it’s worth it. 5) Avoid topics that may cause stress and anxiety as much as possible. I would never bring moms house up in conversation. She is very angry I won’t let her live at home. It can be a bit like walking on eggshells. There are a lot of touchy subjects to avoid. 6)Accept that sometimes there is just no safe option that is not going to make her mad. Medication may help.
I will attach some resources.0 -
Hello and welcome to 'here', but sorry for the reason.
H1235 is correct. And do take care of yourself. Is mom living alone? That isn't sustainable and not safe any longer. You are correct in that you have become the parent. And yes, we know that is sad.
Perhaps look into adult daycare a few days a week? We called it the community center. MIL is even beyond that at this point, but for some folks, they can get some companionship, and you would get some respite. And yes, do look into some more permanent placement.
Rule #1: Never argue with a PWD. Rule #1: Must take care of yourself. Rule #2: See rule #1, both of them.
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Please get educated on this illness. You need to define your role. You'll always be a loving child. Seek guidance, whether spiritual or other, to find acceptance that this is your mom's current situation. Start going through the grieving process as it will be a long one. Your role may also be caregiver. If this is so, you need to allow things to roll off of you. If you are bringing her to the store, act like a professional caregiver. When she complains that you are always on your cellphone, whereas you are just gripping your phone to watch for a call back from her doctor, just say, "you're right mom, I do spend too much time on my phone". If you already feel your health is at risk, pull in the resources right now, e.g., in home care, potential placement, respite, home grocery delivery, or other. Please hang in there.
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For her safety, and your sanity …
If she is driving, she needs to stop. She doesn't have the capacity to make the quick, complex decisions that safe driving requires. If she has a dementia diagnosis, insurance likely won't cover an accident.
Those passwords to accounts that you keep changing? Change them one last time and do not share them with her. Poor judgment on financial decisions has cost many folks with dementia a big chunk of their resources. And they are an easy mark for scams. Take the credit and debit cards and the checkbook. Allow her a small amount of cash on hand. She won't be happy, but you will protect her assets for the care she needs.
It's so hard to take over the supervision and decision making for your formerly competent parent. Remember you are doing it for her safety and because you love her. I agree that it sounds as if she is no longer safe at home alone.
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My mother in some ways is very cognitively astute. She knows she has dementia. Does it help her? No. Does it help me? No. I'm sure it makes her very sad and frustrated. She was always very competent and independent. The intelligent, competent person I knew occasionally makes brief, cameo appearances. They are getting fewer and shorter. I have gotten used to her referring to me as "mother". I am in many ways the parent. We don't have the driving or financial issues to deal with. I set up some of the accounts so I have the passwords. She does not. My mother doesn't drive and I have the debit card. Still it leaves a lot to be desired.
Thanks for listening.
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Grenah, I'm sorry. First, do leave an independent post if you do not receive enough support here. Others may not see your post further down.
I agree on the sad and frustrated. Please add scared to the list as I believe that is a huge emotion for someone with dementia. Yes, you are the responsible adult now. Do plan now for future cognitive decline such that nothing later on becomes a fire drill. Please also ensure you have a support system for yourself in place as it will be a very lonely journey for both of you. We know you are doing your absolute best.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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