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Frequent Falls

Gigi S
Gigi S Member Posts: 23
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Hey all, I havent posted in a while here but wanted to get insight from other caregivers on when your loved one keeps having frequent falls. Background info is my mother has early onset alzheimer’s. Initially showcased symptoms in 2014 when she was 58. This past weekend she turned 70, and has been in a memory care unit for the past 2 years. Within the last 6 months, she’s experienced her most significant decline in weight (weighing 100 down from 180lb in intake) as well as having falls. She just had her second big fall in which it was unsupervised and she fell face first.

I know there isn’t anything to do to keep them from falling but what is the experience you guys have had? It’s been hard to see her keep getting hurt and I’m completely besides myself on this part of hospice. She’s the only one in my family to ever have had anything dementia related and as her only daughter I find myself struggling to take it all in.

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  • April23
    April23 Member Posts: 211
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    edited September 9

    My dad has LBD and since his motor skills are affected, falls were at one time frequent and a constant struggle. I first placed my dad in an MC AL with 40 residents — so it was a locked unit but he had his own bedroom and private bath which he could access unassisted since he was still mobile at that time. For him, this was too large of a facility and too much independence. He needed assistance walking at all times with his walker which he only sporadically received. The private bath was his downfall and I could no longer safely leave him there.

    I moved him to an RCF which is a home in a residential neighborhood and only has 8 residents. This was much easier for him to navigate and he was never unassisted. He has not fallen once in the almost 2 1/2 years he has been there. They also allow chair and bed alarms so if he gets up, the caregivers are alerted.

    For my dad, this was really the only solution. There comes a time in the journey where walking unassisted is a risk. I will repeat what I heard over and over which is once they start to fall, the falls will most likely continue. Her frailty may make it too dangerous and she may need to transition to a wheelchair. Even with supervision, they seem to always find a way. Walking is so far back in the memory bank that it never leaves them.

    Is she on hospice (you mentioned it so I wasn't sure)? If not, you could have PT come and work with her and perform a gait assessment. She should probably at least be using a walker if she isn't already (although it can still be challenging because they don't remember the need to use it). Does she get up unassisted at night? I don't recommend it. If alarms can be utilized, then caregivers would be alerted when she gets up, some places will allow baby monitors at night. Also make sure she has well-fitting shoes with good tread and there are no trip hazards in her room.

    It would probably be a good idea to have her vision checked as well as going over medications with her doctor to make sure nothing is causing dizziness and that her blood pressure isn't too low. You could also have her checked for a UTI if the falls started suddenly. Dehydration and anemia can also affect balance. Even with all these precautions, it will always be a worry I'm sorry to say. But they can be managed, although probably not eliminated entirely.

  • Gigi S
    Gigi S Member Posts: 23
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    Thank you for your reply! Yes, she is officially on hospice as of May. Never used a walker, so they don’t want to give her one since she won’t know to use it. And she’s completely non verbal, ultimately dependent on care. She hadn’t been mobile in a few months and all of a sudden started walking again in July and has had 3 falls since then. The place she is at is the only one her Medicaid will cover completely. She never saved up for care when she’d be older, and as a 20 year old at the time she was officially diagnosed, I also did not have any financial means of being able to get her more specialized care or residency unfortunately.

    The facility she is at is mostly labeled a “rehab” with the unit she is in being long-term care and often with dementia patients of some capacity. There are no solo rooms and she has a roommate. Doesn’t usually wander at night, although her first bad fall she had happened at 1AM (the call I got shot me out of bed). She is a notorious tippy toe walker and a speedy one which doesn’t help her fall risk :/

    It’s such a terrible disease.

  • April23
    April23 Member Posts: 211
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    Oh gosh I’m so sorry. She’s so young I just assumed she was still fairly mobile. But I know with EO it can be a quick decline. Can you talk to the facility or hospice and see if they have any suggestions? At one point I was so desperate before I moved my dad that we put his mattress on the floor so he couldn’t get up at night and I also had night sitters for a period of time. It’s a tough thing to manage believe me, I know. But she should not be walking unassisted is the reality.

  • caregiving daughter
    caregiving daughter Member Posts: 177
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    Can a transition be made to a wheel chair. It's difficult to recommend but this whole disease is just awful. My concern is that a fall and a break would be so incredibly painful.

    My mom fell in memory care. Physician said surgery absolutely necessary as she would not have been able to tolerate the pain of a adult diaper change without it.

    Please challenge hospice with what other resources may be available to keep her at peace, e.g., music therapy, massage, or other. I'm so sorry you and your loved one are going through this.

  • Grenah
    Grenah Member Posts: 55
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    My mother has vascular dementia and osteoarthritis. Mobility now is becoming a real issue. Last year she had a fall and broke her femur, which they surgically repaired. Of late, she is having trouble with her knees and has slipped and landed on the floor twice. The first one we needed assistance to get her up. She does use a walker but if the falls become too frequent I don't know what our options are as the house cannot accommodate a wheelchair. She is on Medicare, which pays squat.

    Thanks for listening.

  • Gigi S
    Gigi S Member Posts: 23
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    So sorry Grenah on your mom’s current state. This is where my mom is currently at, too. The falls are so disheartening as she can’t comprehend that she shouldnt be moving without help. No ethical way of course to keep her seated and not-mobile. Part of me is wishing she just forgot how to walk sooner just to spare her from any future injuries. Sending you care!

  • Gigi S
    Gigi S Member Posts: 23
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    Thank you for your reply. I am thinking about recommending wheelchair. I dont know if she’ll take. She gets up so abruptly and just starts zooming down the hallway. There are so many residents its hard for nursing to keep just eyes on her, unfortunately. At the hospital after her fall yesterday, they did find she has walking pneumonia and a UTI, treating her with antibiotics. It really is just one thing after the other.

  • caregiving daughter
    caregiving daughter Member Posts: 177
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    Pneumonia and UTI are horrible but they offer some hope that following recovery, she may feel a bit better. It's good you are working through all this with hospice.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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