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Excessive Sleeping

Of course I am taking him to the doctor and consulting them about this. Still, I have found other people's experiences helpful on this dementia journey we are on. 

My dad recently fell, luckily he didn't hit the floor hard, I was able to slowly lower him to the ground. His legs became noodles and he couldn't hold himself up at all so I just helped him slowly lower to the floor. He was in rehab for about 3 weeks. 

For a few weeks prior to his fall, I started to notice he was sleeping a lot more during the day and night. We kept him awake as much as we could but after a while it's pointless to even try. He still sleeps all through the night no matter how much he sleeps during the day. His doctors aren't too concerned about the change since he still sleeps all through the night and won't be making any changes or recommendations anyway until his appointment in a couple weeks after they run tests, etc. 

What I am wondering is if your loved one with Alzheimer's/dementia had at any point started to excessively sleep? If so, what did their doctor say?  What came next for your LO after the excessive sleep stage?

Comments

  • Rescue mom
    Rescue mom Member Posts: 988
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    In my experience, and what I’ve heard in support groups, it’s a common thing. Many dementia patients do sleep a lot, and during the day. As long as doctors found no medical problem, I would not be too concerned.  Many say it’s better that they sleep than get into “trouble.” It may not be a “stage” that passes, but what comes next, or what else may happens when he’s awake, is impossible to say, it varies so much with the person.
  • King Boo
    King Boo Member Posts: 303
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    Sleeping can be a way the body heals.  If Grandpa had a recent infection or illness or sleep distruption.   Urinary track infections of course, a common medical issue.  Rule this out.

    Sleeping a lot is also a hallmark of the disease.  In later stages, they may only be awake for limited hours during the day.  Does he wake and eat for meals?

    Sleeping a lot in later stages can also be a signal that the end, while not necessarily imminent, is approaching.  The final 6 months of my LO's life involved a whole lot of sleeping.

    Generally, trying to wake them for daytime activities beyond eating is not productive.

    It's how the symptoms go - once underlying medical cause is ruled out.

    Never try to feed an asleep PWD.

    What comes next?   More sleeping, less rousability.    It is probably a good idea to ask (not wait for an MD to recommend, because most MD's have little understanding of hospice)  to ask for a hospice evaluation.  It adds an extra layer of services that are very helpful for quality of life provided the family is ready to let go of excessive (but not all) medical intervention.

  • LicketyGlitz
    LicketyGlitz Member Posts: 308
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    We went through the same thing with my mom, LongBee, after she came down with COVID. It made sense when she was first sick, but then a month or two later she was still having 16 - 18 hour days/nights of sleeping. Her doctors said the same thing as your grandpa; they weren't worried, she was still healing, etc.

    Eventually she got back to a normal sleep schedule for her, but those odd weeks when she's sleep her life away concerned us for a bit. Then, if I'm honest, we kinda enjoyed the freedom!

    I hope you and your grandpa are doing well now.

  • jfkoc
    jfkoc Member Posts: 5,361
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    Did they rule out an UTI done with culture?

    I would go to a site like drugs.com to investigate the side effects of all drugs including OTC and possible interactions. 

  • MN Chickadee
    MN Chickadee Member Posts: 1,032
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    It very well could be progression of the disease and a sign that he is taking a final decline. I don't want to give advice if it's not relevant, but since it was a factor for my LO it feels worth mentioning - you could ask the doctor to asses whether all current medications are necessary as a precaution. Especially ones that fall in the psychotropic category. My LO was on a carefully concocted cocktail that worked really well for years, but then she started sleeping all the time. And falling all the time. Even though we figured it was likely an inevitable dementia decline we worked with her doctor and tinkered with the meds  a bit. Turns out her brain chemistry had changed, and the meds needed to as well. We cut her SSRI down and it woke her up. She became far more alert during the day and even started walking a bit better. That combined with a physical therapy evaluation for some things to get her stronger bought us some time, as it were. So it may be worth making sure the current drug regime is appropriate for current circumstances. I would also echo that any health event, such as UTI, falls, infection, minor colds etc did result in a lot of sleep to recover. 

    However if drug interactions/effects are not at play, and it sounds like he has a a medical team looking at blood work for infections and other things, it may be time to bring in hospice. If he continues to sleep all the time it is likely that he is in a new phase of the disease and you will need to change the approach to comfort care. The hospice team can offer services to make him comfortable and help you make decisions, understand what is to come, and assist with tangible services for physical, spiritual, and emotional needs. 

  • Mobile AL
    Mobile AL Member Posts: 28
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    My daddy had been sleeping a large part of the day and night but then started getting up at night so I had to stay up with him. He was getting his days and nights mixed up. His PT suggested I wake him up and make him get up during the day, not just at mealtimes.  

    The doctor agreed that he should be woken up and for me to walk beside him if he was stable but otherwise let him sleep or doze in a recliner during the day with the TV on to try to avoid him sleeping too deeply during the day. Doctor also said it was a progression of the disease and would eventually worsen. 

  • Battlebuddy
    Battlebuddy Member Posts: 331
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    Excessive sleeping is going on at my house. DH is on Hospice and they are monitoring it. I just called them today because my DH is beginning to sleep through lunch. He is also falling asleep at the end of meals.Before that he was at least awake for meals and a little more after that.Hospice said to let him sleep. I’m now keeping a journal ,not of how many hours he sleeps, but how many he is awake. It’s down to about 3 or 4 hours a day .In that time I have to feed, do hygiene, and meds.
  • Lanatori
    Lanatori Member Posts: 1
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    I am experiencing fatigue lately and want to sleep all the time. I don't know what can be the cause..
  • Brigv
    Brigv Member Posts: 15
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    I had the same question when my dad started sleeping more than usual. At first, I thought it was a side effect of medications, but having checked the description on the Canada Drugs site https://www.canadadrugsdirect.com/, I understood it wasn't the reason. Then I asked a doctor. He told me that sleeping excessively is a common feature of later-stage dementia. Also, I asked him about a sleeping schedule (I noticed in the posts above people faced this problem). Patients with dementia might be tired during the day, but not be able to sleep well at night. It is best to keep the same sleep/wake times and routine as before dementia began. Some drugs used to treat dementia may also affect sleep. It is good to nap during the day and the best time for this is before lunchtime.
  • toolbeltexpert
    toolbeltexpert Member Posts: 1,591
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    Lanatori wrote:
    I am experiencing fatigue lately and want to sleep all the time. I don't know what can be the cause..
     Lavatories welcome to the forum it hard to do very much without  proper sleep. You will probably get more replies if you start a new topic a. It's at the top of the message board"add topic"  I am hoping you'll get better sleep. Feel free to vent or rant. It's part of caregiving sometimes.
  • ChHodge
    ChHodge Member Posts: 9
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    You should see a doctor if you feel tired all the time, if excessive daytime sleepiness affects your daily life, or if you think this may be a sign of an underlying disorder.
  • May flowers
    May flowers Member Posts: 758
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    I would definitely get checked out, Lanatori. So many possible causes, vitamin b deficiencies, stress, chronic fatigue, Lyme disease, seasonal allergies, etc. My sister has long Covid syndrome, has been unbelievably fatigued since having Covid in January. Her doc has put her on supplements that have helped her turn the corner, thankfully. Hope you get answers soon.

    Mobile, my FIL was sleeping all day (we thought he may be near the end) and now he is awake all day and cannot sit still. I never know what to expect. 

  • livlea
    livlea Member Posts: 37
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  • JPJardinel
    JPJardinel Member Posts: 67
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    What you're describing, more sleep during the day and still sleeping through the night, matches a well-known pattern in mid-to-late stage dementia. As the brain's internal clock gets disrupted, everyday tasks also take more energy, and both can push total sleep time up. You're not imagining a shift.

    Still, worth ruling out things that mimic progression but are actually treatable, especially given the timing right around the fall: UTI, dehydration, thyroid changes, medication effects, or pain from the fall itself. It's worth asking directly whether the fall plus the sleep increase together might point to a stage change, not two separate events.

    One practical note: try to avoid sleep medication if it comes up. Non-drug approaches (daylight, routine, limiting late naps) are recommended first, partly because sedatives raise fall risk, the last thing he needs right now.

    I hope these resources are useful:
    https://hopebridge.care/excessive-sleeping-in-dementia-patients-what-it-means/

    https://en.wikipedia.org/wiki/Sleep_disorder

    https://www.nia.nih.gov/health/sleep/managing-sleep-problems-alzheimers-disease

  • ARIL
    ARIL Member Posts: 560
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    @JPJardinel So, I have to ask: What are you doing? This post is FIVE years old. As usual, you are unearthing an old post, offering a technical response (I am guessing, AI-generated?), and including a link to the same home health agency.

    Can you tell us your goals in being here?

  • SusanB-dil
    SusanB-dil Member Posts: 967
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    @ARIL - Agree. I also messaged direct with no response. And I flagged this one.

    Bringing up old posts, the same cold techno-info, and really, a lack of empathy. ??? The info in and of itself may be just ok, but it is rather cold, in the same format each time.

  • Chance Rider
    Chance Rider Member Posts: 390
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    I also flagged and reported this “individual”. Very robotic/AI type responses.

  • H1235
    H1235 Member Posts: 2,339
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    This makes me feel uncomfortable! This is our safe place. AI does NOT belong here!

  • pastordoug
    pastordoug Member Posts: 1
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    As a first time reader, I appreciated what I read in jpjardinel's response. I guess I can see why it being the same message as 5 years ago is concerning because their loved one has likely gone through changes over the course of time. As for me, my LO had taken a severe downturn, (meaning an increase) in symptoms two weeks ago. After many tests in the hospital, the only explanation seems to be that he missed about 5 days of Donezepil. The Neurologist confirmed this can happen. I wish I had known when I slowly noticed the doctor hadn't responded to the pharmacy. Now we are waiting and hoping he will return to some of his same competencies and attention span. As it stands he can sleep 8 hours during the day after having had a full night's sleep. I don't know now if it means he is in the later stages of dementia. His type of dementia came with Parkinson's 20 years ago, and progression of both diseases had been slow. This especially sad for me since I blame myself.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more