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Anyone else have trouble getting sibling memory tested?

My brother is 25 days post-op from a procedure to remove his prostate, which he had on August 10, 2026. Before the surgery, I spoke with him every day by phone ( we live in diff. States) and noticed his memory slipping for over a year. Since the surgery, those changes have grown more pronounced, including forgetfulness, mood shifts, difficulty following through on decisions, and trouble with hearing and comprehension that seems tied to more than just his ears.

He's always been a know-it-all, someone who insists he has everything figured out, and that personality trait makes this whole situation harder. It shows up as resistance to input from me, his doctors, and anyone else trying to help him see what's happening.

His primary care doctor raised neurological testing with him directly at my request, and he refused it. I hold Power of Attorney for him .

The hardest part lately involves watching him make choices that don't match what he says he wants. He moved into a new apartment and told me directly that he can't keep living the way he was, then continued sleeping in an abandoned house instead of the new place. Communication with him has grown inconsistent too; sometimes a full day passes with no contact, and I live in another state, which makes tracking all of this from a distance even harder. His girlfriend has reached her limit as well, worn down by the disrespect and strain of everything happening.

He has more appointments coming up in the next week. I'm preparing questions for him to bring since I can't be there in person.

I'm here looking for insight from anyone who has walked through early cognitive decline or dementia symptoms in a sibling, especially when the person affected doesn't see it in themselves yet.

Comments

  • RMremdler
    RMremdler Member Posts: 33
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    Member

    I’m very sorry you are experiencing this with your brother. My husband last year had the same procedure. Prior to the surgery, had some short term memory problems but otherwise doing ok. After the surgery, he totally became a personality I’ve never known. Anxiety, increased memory loss and communication/word finding difficulties. After watching this for months but never seeing a return to normal, he agreed something was off and talked to his PCP. One of the things I told him to encourage this conversation was that many of the new medications can help slow down the neurocognitive changes. That spurred him to be proactive.

  • J.A.
    J.A. Member Posts: 8
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    Member

    Thank you for your comment. I have tried having a conversation with my bro. re: memory tests and he doesn't seem open to the idea. I was wondering did the prostate removal accelerate his memory and behavior decline? He himself did mention that the surgery caused him to act like this. Hmmm. At least it is noted in his PCP chart. I just have to keep learning how to deal with his behavior and try to get him tested.

  • Maru
    Maru Member Posts: 544
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    Member

    You said that you have power of attorney, but do you have his medical power of attorney? Assuming that you have his MPOA, your ability to use that (as I understand) depends on his being diagnosed with dementia or some other disabling disease. Your hands may be tied here…(I am not an attorney). Regardless of that, you can contact his doctor to inform him of specific things that lead you to believe that he has dementia…like sleeping in an abandoned house instead of his new place. Basically, without an outright dementia diagnosis, he is an adult legally capable of making his own medical decisions.

    In response to his having surgery…yes, anesthesia can cause mental issues that may or may fade with time.

    I appreciate your concern about your brother. My elderly bachelor brother dealt with stage 4 lung cancer while I worried about him from 500 miles away. It's a heartbreaker. I understand how helpless you feel right now. Keeping you in my prayers this morning.

  • RMremdler
    RMremdler Member Posts: 33
    10 Comments 5 Likes 5 Care Reactions
    Member

    I think the anesthesia can impact a person who is already experiencing some dementia-like symptoms. I have another relative who has AD and he needed emergency surgery. It caused more confusion and amnesia than his pre-surgery status. He did regain some of his cognitive functions but it was a few months.

  • J.A.
    J.A. Member Posts: 8
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    Member

    Thanks for your info Maru. I have a DPOA and I'm listed as his health care proxy on his Advanced Directive for Health Care. We drew these documents up really fast online bc of his health situation with prostate. I hope I can make decisions for him when he can't make them. It's challenging for sure. I will keep you in prayer as well for your bachelor bro.

  • J.A.
    J.A. Member Posts: 8
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    Member

    I feel so sad when I think of my bro or speak with him on the phone. I just want to cry, but I haven't. He is not the big brother I knew. A part of me is hoping that maybe I'm wrong about his behavior and memory. maybe bc it's so hard for me to face. I'm wondering if I've been in denial for these pass years. I mean he still lives alone, and is independent, however the things he says and does are not always rational. And the surgery seems to only make him worse. The last surgery was Aug 10th…his body is healing, but the mind, not so much. I'm grateful for this community . It gives me knowledge about the disease and allows me to release all the emotions I'm feeling. Thank you.

  • H1235
    H1235 Member Posts: 2,339
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    Welcome. Many with dementia suffer from anosognosia. This is the inability to recognize symptoms or limitations. My mom is so oblivious to her symptoms she often talk with such confidence and conviction about her plans to do things that if you didn’t know the situation you would believe she is capable of doing these things. Trying to convince a person with dementia they have symptoms or need help is usually unproductive and often ends with everyone upset. It’s often best to find workarounds. Tell his doctor what is happening. I found a patient portal worked well or send an email. No need to tell him about this. It’s ok to fib. I know it seems wrong, but safety comes first. Have you contacted adult protective services? He needs care! I would start thinking about what you think that will look like. Unless you’re up for 24/7 care in your home I would recommend you start looking at care facilities near you. There can be a waiting list to get into many, it might be worth getting him on a list so there is a place ready for him when you can act. Getting him to understand his need for care will probably not go well. You will probably need to fib, blame the doctors or just accept he his going to be angry when the time comes. I will attach a few resources that may be helpful. I hope you can figure something out.

    https://iona.org/therapeutic-fibs-ok/

    https://www.helpinghandshomecare.co.uk/care-advice/what-is-show-timing-in-dementia-patients/

  • J.A.
    J.A. Member Posts: 8
    First Comment
    Member

    Thanks for the info regarding anosognosia. This seems where he is at.

  • Maru
    Maru Member Posts: 544
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    Member

    Ty, sadly my brother has passed, but prayer is never wasted.

  • J.A.
    J.A. Member Posts: 8
    First Comment
    Member

    Maru,

    My heart goes out to you on the passing of your bro. No, prayer is never wasted. I send you blessings on top of blessings.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more