Remembering to Forget
As you get deeper into the Alzheimer’s journey there is a conundrum you face when dealing with the agitation or anger from your loved one. You have to remember to forget who they were prior to Alzheimer’s, and lose the expectations you once had of how they would handle fights with you. Maybe in the past you both would retreat to your neutral corners for an hour or so, only to return to each other and work through it. Or maybe you fought it out immediately in shouts and wild hand gestures.
Those days are gone. You have to remember that you can’t hold your loved one to those unwritten rules of engagement any longer. For them the agitation rises and they are no longer able to think quickly about how to process it. They retreat to their safe space, maybe a home office or a walk outdoors, and may take hours before that feeling of distress subsides. Sometimes they forget what they were originally angry about and come back to you wondering what upset you. YOU! I’m upset with you! Because you’re not you anymore, and I want the you from years ago back.
You grieve for what once was, try to push it aside to focus on what is possible now, and then lay awake at night in fear you’re losing the memories of how your loved one was before Alzheimer’s took hold.
Comments
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that’s so true. This illness sucks not fair
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I agree. Feeling the grief makes it possible for me to accept the confabulations, and to tell white lies when it's best. Things I'd never do in the Before Times.
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Your post truly hit home with me. Just this morning, we were going through some old photos and came across a photo of my DH and his twin sister at their first communion, with family all around. I was really happy to find this, since we don't have many images from his childhood. DH got really angry since he has a lot of delusions about his family (I should have known) and tore up the photo before I could retrieve it. This incident hit me way harder than I would have anticipated, partly because I really wanted to keep that picture which was so special to me on many levels, and partly because he was so aggressively mean and totally incapable of understanding my point of view at all. I find that I still expect him to understand things that are now completely out of reach for him. I went upstairs and had a good cry; now just sad about this cruel disease….
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My DH was diagnosed over a year ago. His meds are helping but I know they won’t always. He’s shown some behaviors that are so different from who he is. I’m grieving him while he’s still here.5
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Sometimes the change in how my DH handles "anger or feeling slighted" is so different from who he was. Many days he seems himself and then bam… Someone didn't talk to him at an event and he feels slighted. He can't seem to realize everyone was busy doing their thing and didn't ignore him. (Or just doesn't remember the conversation). I find the change in his executive thinking and emotional control much harder than the short-term memory. Cardenas, what you said is so true.
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I'm exactly where you are, my DW was diagnosed last August and I struggle with grief of what we once had. She's still in early stage, getting Leqembi infusions. but she's not her complete self anymore.
We've always made decisions together and it's already transitioning to me making them.2 -
Oh boy perfect post for me! Just had a confrontation with DH I lost it, feel horrible, he truly upset me and yet I know he has no recollection of the argument but I’m left with the loss sadness and guilt! 🤦🏻♀️
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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