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Long distance support

This is my first post. My brother and sister both have Alzheimers. Fortunately, my sister has family nearby and is in an independent living facility with her husband who also has dementia. My immediate concern is my brother. He has lived alone for over 35 years and is over 1100 miles from me. We have a family support group but the closest is a nephew who is 2 hours from him although he is in the area probably bi-weekly helping his mother who also has dementia. My husband and I visited with my brother for 10 days each in June and July. The goal was to help him clear out his house that he has been in for 42 years. He had massive amounts of confidential paperwork in his basement that we were able to shred during those visits. He also has many other things to get rid of. The goal is to prepare him to move to the independent living facility where my sister is. However, I'm not sure he will still qualify for that level, and I seriously doubt he would willingly go into any other level.

When my brother re-did his will after his son died, he named our nephew as the power of financial attorney although my brother does not want that to be enacted. His medical power of attorney is another nephew who is a physician but doesn't live close by. My brother says he wants to sell and move but it is very difficult to get him to that point. He thinks his property, and another one he owns, are worth double to triple what they are, and we can't convince him otherwise. According to my discussions with an Alzheimers counselor, that is his reality. We don't know how we are going to get him to agree to a sale when a good offer is made.

He is at the point we feel he cannot handle his own finances because he misses bill payments. I helped him set up auto pay as much as possible. I got the paperwork for the facility where my sister is but cannot help him fill it out since he says he's not sure where he wants to go and will not share all of the financial information needed to fill in the completed forms. We've seen parts of his finances to be fairly certain he can afford to move to one of those facilities.

My brother has some health issues and misses his doctors' appointments. I was able to go to one with him. He enjoyed having me there but I'm too far away to be there for all. He has lost weight which I thought was due to a medical condition but discovered when there that it's probably due to not eating properly. He says he takes all of his pills but I found many bottles that are more full than they should be.

I am at a loss of how to help him. I'm afraid it is going to eventually come to the point when my nephews will have to enact their powers and enforce him to move into a facility. Also, I think my nephews will be hesitant to do this. Can someone who has been through this situation please share with me how it is handled when the Alzheimer's person isn't cooperative? Thank you.

Comments

  • sandwichone123
    sandwichone123 Member Posts: 1,388
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    @jelizms Welcome! I'm sorry you have to be here, but it's a great, supportive group of people. You've come to a good place.

    The bad news is, the Alzheimer's person is never cooperative. If they were thinking clearly, they wouldn't have Alzheimer's. At some point, either before or after something catastrophic happens, he will need to be moved to an appropriate level of care and his POA will have to take over all of his finances. At that point, his properties will probably be sold, and he may never be informed of that fact as he is not able to understand such complex things any more.

    I think sometimes siblings are harder to make decisions for than either parents or spouses, but we have what we have, and it sounds like nephews are where the buck stops. He will need to be moved to be close to his POA. Having financial and medical decision makers that are different people can cause stress, and it sounds like they are in different places so they will need to coordinate closely in making plans, hoping they can reach consensus on every detail. In any case, he is likely not to understand his own condition or his own need for care and decisions will need to be made on his behalf.

  • H1235
    H1235 Member Posts: 2,362
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    Welcome. It’s my understanding that a typical DPOA is effective when it is signed. There is a specific kind of DPOA that needs to be activated (I believe it’s a spring form). I would have the nephew verify it is a spring form just to be sure. I believe his doctor would need to sign paperwork stating he is not capable of making decisions himself (it actually may need to be signed by 2 doctors). Do you think his doctor would do this. A lot of work needs to be done (especially in the beginning) to keep our loved one safe and properly cared for. It’s very easy (especially in the beginning) to fall into the trap of trying to reason with them an convenience them. We have a saying here, never try to reason with a person with dementia. Logic and reasoning just don’t work! Things need to be done without consulting him (once the DPOA is activated). Fibs can be used to ease some of his anxiety and allow things to go more smoothly 🤞. So if the property sells for less then he expects, fib and tell him you got what he was expecting. There is no harm and he is happier. Could you get the letter to activate the DPOA present it to the nephew and explain to him that he needs to make the decision and his uncle is probably not going to be happy about it (but that’s his responsibility as DPOA). As far as physically getting him to move, take him to visit his sister and maybe have lunch. During the visit have others move his bed and things into the room. After lunch, show him the room. Warn the staff he is going to be mad and I would leave as asap. My mom has been mad at me for 3 1/2 years. If I’m lucky I will just get an eye roll and an occasional huff, but some visits are worse. Medication has helped. It’s just the reality of dealing with a person with dementia.
    I hope something here is helpful.

    https://iona.org/therapeutic-fibs-ok/

  • notequipped
    notequipped Member Posts: 142
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    You have received some good advice. Just wanted to offer a bit of reassurance that the bar for memory care vs assisted living can be higher than you might think. My Mom was fairly cooperative going in though. I drug my feet longer than I should have because I thought she would need to go into MC and taking that step would have been very difficult me. It’s only been about 2 1/2 weeks and, for the most part, things are going well. I think things would have gone smoother if we had made the move several months ago.

    Sorry that your family is in this position.

  • Victoriaredux
    Victoriaredux Member Posts: 340
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    "I'm afraid it is going to eventually come to the point when my nephews will have to enact their powers and enforce him to move into a facility. Also, I think my nephews will be hesitant to do this."

    Some people select their agents but think the powers will only be needed after death. You've already seen that your brother has financial and health issues that need oversight today. Perhaps sending the 2 nephews a list of what you have noticed and that you are very worried about his condition will spur them to take action now.

    You could also suggest that they consider hiring a professional case manager or fidicuary/guardian if they don't have time/interest and finances allow . If the DPOA is active and your brother's finances are at risk of being scammed - that nephew should take notice or the money may not be there for future care .

    If they fail to act after seeing your list, then you could tell them it puts you in a difficult position - your brother is at risk and it is their responsibility to step up. Next step would be to consider calling Adult Protective or filing for conservatorship yourself. Your brother is fortunate to have you watching over him.

  • jelizms
    jelizms Member Posts: 2
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    I’m so sorry I didn’t comment sooner. Thank you all for the good advice. I keep pushing the therapeutic lying philosophy. I have to admit, it is a hard concept to accept for myself and them but I totally get why it is necessary.

  • brikerb
    brikerb Member Posts: 3
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    When someone with progressing Alzheimer's lives over a thousand miles away, the hardest reality to accept is that logic and reasoning simply no longer work.

    The belief that his property is worth triple its value, the insistence that he is taking his medication when the bottles are full, and his refusal to consider moving are classic anosognosia—his brain has lost the ability to perceive its own deficits. To him, he is functioning normally, which is why attempts to convince him feel like an unwarranted attack on his independence.

    Your nephews' hesitation to step in is also very common. Family members often hold back from activating power of attorney because they dread being seen as the 'bad guys' stripping away a loved one's autonomy. What usually breaks that paralysis is shifting the burden from family opinion to objective clinical reality. The weight loss, missed doctor appointments, and unswallowed medications are documented signs of failure to thrive.

    Since one nephew is a physician with medical POA, the most practical next step is for him to coordinate directly with your brother’s primary doctor to document cognitive decline and incapacity on paper, or request a formal in-home geriatric assessment. Having a clear physician determination takes the emotional blame off the family's shoulders and gives the nephews the legal backing they need to step in on finances and orchestrate a safe transition before a catastrophic emergency makes the decision for everyone.


  • BPS
    BPS Member Posts: 548
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    If he is willing to move I think you should move him and deal with all the house and property issues afterwards. He may not be willing to move later and that would make things harder. Then do what you need to do to sell the property without giving him all the details. Windows of agreeing don't always come so take advantage when they do even if it is a little early. The one with the POA should be able to get the financial information you need. The bank will need to review the POA, which could take a few days.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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