Feeling Hopeless

womaninblue555
womaninblue555 Member Posts: 1 Member
I seriously don't know how to manage this. My stress levels are through the roof and I don't want to go on. My Mom had agreed to move into AL and then turned around yesterday (about a week before it was time to move) and says 100% no way. She isn't safe at home. I'm not safe to keep up this nonsense. I'm not cut out for this and I'm so freaking tired. I know moving her would be the best for so many reasons but my sister says if she wants to stay, she should stay. We'll all end up totally broke paying for in home care. How am I supposed to manage this? I'm supposed to be enjoying my one and only child's high school years and instead all I do is take care of my Mom and feel like dying. It's depressing. How to survive this hell? I'm broken.

Comments

  • easy23
    easy23 Member Posts: 453
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    Hi. Sorry you're so stressed out - unfortunately it goes with the territory.

    Have you talked to an elder law attorney? Have you set up a durable power of attorney and health care proxy for your mother? Who ever is the DPOA gets to decide where your mother lives.

    It is a good idea to not discuss your mother's moving with her. Most people just bring their LO to the facility on moving day using a therapeutic fib; such as going for lunch and then have the staff take over while you leave. Is your mother going into memory care?

    Your sister needs to get on board with you. Your mother cannot live alone anymore and you are doing what is necessary to keep her safe.

  • H1235
    H1235 Member Posts: 2,411
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    Welcome. Hopefully you are the one with the DPOA. I have had a lot of problems dealing with a difficult sibling. He has his head buried deep in the sand and refuses to accept moms limitations and has no interest in educating himself on symptoms or best practices. I can’t tell you how many times I have heard about moms rights. It just makes everything so much worse. Here is my prospective. If a small child is playing with a knife what do you do? You take it away from them! You don’t worry about how mad they are going to be, you just do what needs to be done it to keep them safe. She doesn’t understand (like the child) how unsafe living alone is. She also doesn’t understand the hell she is putting you through. As DPOA I signed all the paperwork for assisted living. My mom was absolutely furious! My brother insisted we tell mom 2 weeks before the move. I am so thankful and lucky she was willing to get in the car. Some here have said they took their loved one to lunch while other family members set up the room. After lunch they are brought to assisted living. I would warn staff it might be ugly. My mom barely spoke to me for weeks and after that it was months of anger. It wasn’t easy, but she’s safe. Even if your sister holds the DPOA (or your joint) she can’t force you to pay out of your pocket for your moms care and she can’t force you to put in more time than you are able. Stand your ground! DONT feel guilty! I found mom did so much better after she moved to Al. She made friends, participated in activities and just had a reason to get dressed in the morning. Her doctor also prescribed some medication that has helped a lot. I talked with my doctor about anxiety medication for myself. It’s made a big difference for me.

  • cdgbdr
    cdgbdr Member Posts: 318
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    Agree with all the above and you have my virtual care and hugs. It is not fair and you need not give up your life when there is an affordable option. I would suggest memory care vs AL if there are significant cognitive concerns. The facility should have assessed that.

  • SusanB-dil
    SusanB-dil Member Posts: 998
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    Also agreeing! H1235 and easy23 are correct. Please. Step back from this for a bit if at all possible. Could you at least get mom to adult daycare?

    Caregiver burnout is real. It is actually dangerous to physical and mental health.

    I really would hope you could still get her to AL or even MC at this point. The goal is for her to be comfortable and safe.

    ((Hugs))

  • Victoriaredux
    Victoriaredux Member Posts: 355
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    If you aren't already the sole activated DPOA /health care proxy I'd tell your sister in writing that you aren't paying one cent more towards home care. Money gets people's attention . If you share the position with your sister - tell her you are resigning .

    Point out that all oversight is now on her shoulders and that you will be sending a list of your concerns to Adult Protective Services so that they can over see the quality of care she will be now be providing in the future. List factual items of concern you've noticed - missed bill paying, old food, missed meds, wandering whatever .

    Some people just don't understand or want to understand dementia. They are like people who buy dresses too small hoping they'll fit when next summer's cousin's wedding rolls around.

    If you are the activated DPOA then it isn't your sister's call. Have the lawyer that drafted the documents write her and say , not her call and list your concerns.

    It is totally draining , we try to understand and use logic especially with a parent but we can't . They aren't wired anymore to be able to understand their situation. The home you selected should be able to give you help on how to handle move in day , does that location also have a MC unit ?

  • pamu
    pamu Member Posts: 143
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    edited October 23

    You will get through this. Who has DPOA? It sounds like you and your sister need to come to an agreement regarding your mom’s long term care and what you’re realistically are willing and able to do. This applies to if your mom stays in her own home or if she moves to AL. My mom was diagnosed in 2018 and we have had many big, ugly bumps in the road where I wasn’t sure I’d come through unscathed. I work FT, have a husband and two kids at home. I’ve probably said “I can’t do this anymore “ a thousand times. My mom has struggled with mental illness her whole life and now her dementia is progressing (agitation, paranoia and delusions). She had a short stint in AL last year until she eloped after 18 days and was found at a house down the street (police involved). She was brought to the ER for a psychiatric evaluation and was released from there to a lockdown nursing home where she lives today. She was already on Medicaid so things moved quickly. If you haven’t already, check with your mom’s state department of aging for information and resources. We are in NH and mom qualified for a home care program while she was living in her apartment which she utilized for 5 years. It was a godsend and bridged the care gaps (home aides, AL voucher) until the crisis occured and she was placed in a lock down nursing home. Come to this forum often for support and information.

  • lilacgirl
    lilacgirl Member Posts: 103
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    I wrote a similar post here probably about 7 months ago. I was on the verge of a nervous breakdown while dealing with similar issues. I thought I could never feel normal again, let alone happy. I’m here to tell you, it will get better. I saw my PCP for anxiety meds and started therapy for the first time in my life, and while things are still difficult with my mom, I am much better able to handle it and able to feel normal and happy again.

    Re: your mother, you’ve been given good advice above. You might also want to consult the AL director for advice; they are certainly used to dealing with this kind of situation! Once she’s there, you will feel so much relief! It took my mom a couple months to settle in and she still complains and tells me she’s mad at me for making her live there, but overall it has been so good for her — the predictability, the activities, and the socialization have helped her anxiety and cognition to some extent

    Good luck. You will get through this!

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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