Mother diagnosed with MCI

Cricket2026
Cricket2026 Member Posts: 1 New
in Caring for a Parent
Looking for advice and help understanding this disease.

Comments

  • SusanB-dil
    SusanB-dil Member Posts: 998
    Fifth Anniversary 1000 Comments 250 Likes 100 Insightfuls Reactions
    Member

    Hi Cricket - welcome to 'here', but sorry for the reason. I take it you've become a caregiver?

    First thing is to get paperwork in order. DPOA and HIPAA accesses. If needed, consult with a CLEC (elder-care specialty lawyer).

    Most of us on the forum go by a 7-stage DBAT. A lot of doctors go by a 3-stage model. Most of us find that the DBAT is way more helpful. DBAT: https://us.v-cdn.net/6037576/uploads/B0XGDF5TALMA/dbat-287-29-281-29.pdf

    Come by to vent or ask. Somebody here has most likely been-there-done-that and can help or empathize.

  • RMremdler
    RMremdler Member Posts: 45
    25 Likes 25 Care Reactions 10 Comments
    Member
    https://alzconnected.org/discussion/77409/mother-diagnosed-with-mci

    Sorry you are here with us. This forum is a great resource and encouragement!
    My husband was diagnosed this summer with MCI. It’s like being in the black hole. There’s something off with some of his cognitive abilities but we do not have a why or what it is. He’s had blood work, MRI, EEG. All show scar tissue on the frontal lobe but no one has said he has AD or any other type of dementia. Meanwhile, I see him losing words, inability to function with simple things and I’m at a loss. I’m a fixer and I can’t fix this.
    My advice in addition to the legal and financial issues but be your Mom’s advocate and press on for answers and care.

  • H1235
    H1235 Member Posts: 2,411
    1,000 Likes 1,000 Insightfuls Reactions 500 Care Reactions 1000 Comments
    Member

    Welcome. My advice is learn all you can. It will help. There were so many terms I learned here that I had never heard before. It helped me to put a name to the symptoms and to realize others have similar issues with their loved ones. I will add a few links that might be helpful.
    One of the most important things to do in the beginning is see a lawyer. Someone needs a DPOA and finance’s should be looked at to consider if Medicaid may be necessary. Don’t wait! It stinks taking their independence away, but remember that their safety should be the number one priority. Unfortunately even above making them happy.

    Anosognosia and Dementia - AgingCare.com.pdf


    https://www.helpinghandshomecare.co.uk/care-advice/what-is-show-timing-in-dementia-patients/

    https://iona.org/therapeutic-fibs-ok/

    https://www.medicalnewstoday.com/articles/confabulation-dementia

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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