Time for Memory Care
We have finally reached the point where full time memory care is what my DH needs. He is still aware enough to know what this is but is now starting to have angry outbursts and incontinence. I still have to work full time so I have finally come to the place it is better for him and me to do this. With that being said any words of wisdom of when and how to tell him. He is scheduled to be placed this coming Monday. I want to make this as easy for him as I can.
Comments
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I recently placed my DW into MC two weeks ago. She was sceptical about where we were going. I had to fib and tell her we were going to see her mother. That still clicks and she agreed to get in the car. When we arrived the support staff took over and treated it like a physical exam. They took her to her room and took her vitals. My DW was very cooperative. At that point, the support staff recommended a shuffle to the door without any formal goodbyes. It worked. They also recommended not to visit for at least a week. It has worked. My DW has been adjusting well.
In my opinion, I would not recommend saying to your DH that he will be placed into memory care. Ask the MC facility about their options also.
I hope your transition goes well.10 -
Thanks for the response…another question. Did you allow her to keep her cell phone? I don't know what to do about that either.
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I don't subscribe to the "don't visit for a week" rule. I do a brief daily visit for the first week. The staff needs to see I am involved and monitoring care. My loved one knows they were not abandoned. I pop in once a day and ask about what they needed. There were many small needs that were addressed during the first week. Your robe doesn't have a belt? We will fix that now. You don't know where your toothbrush is? It's right here. Oh your toothbrush is always yellow? I'll get you a yellow toothbrush now. They don't supply tissues? I'll get tissues now.
There is no guilt. And there is only right now, since they have memory issues. No negotiating. Just confirm that is a lovely place. You need to stay here for a while. I will check on you tomorrow. No long chit chat, as they need to start interacting with their new neighbors. This won't happen if they have long conversations with me.
For the question, "Why am I here?" Blame an outside authority. Insurance is requiring a week long observation. Or it's doctor prescribed rest. Then pivot to something different. Don't embellish further. Just repeat the reason. Keep your affect pleasant [which is hard, I know]. It is ok to say this is hard. Change is hard. But end with, "But you are doing great with all of this. I am proud of you with how you are handling all of this change."
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I placed my DW last July. She was further along on the stages than I think your DH is. She stopped knowing how to use her phone about a year ago so I didn’t have to worry about that. My only concern with you allowing the phone to be kept would be who is monitoring what he is doing on the phone. Hopefully he isn’t able to access any financial records or buy anything with his phone. If he is still capable of dialing your number, be ready for numerous calls daily. If he doesn’t really use his phone, maybe forget it at first and if he keeps asking for it you can bring it later.
As far as staying away for a week, my DW’s MC facility suggested a week at first to allow my DW to acclimate to her new surroundings and home, but told me that it was my decision to make whether or not to wait. I waited a week and when I visited, my DW was happy and mostly settled in. Bottom line is you need to do what works best for your situation. There is no wrong decisions. Let us know how it goes next week. You’ll be in my thoughts.5 -
My DW is too far along to use her phone. I wish you the best.
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thank you all for your responses and advice. After talking to the memory care director and the hospice nurse I have decided to initially tell him this is just a temporary rehab to see if they can help his memory. As far as the phone I’m going to keep it for at least the first week and tell him it is being repaired. And once he is settled and if he remembers he had a phone give it to him then. The lying to him is a hard thing to do since I haven’t lied to him in 45 years….but I will do whatever if it makes this easier for him.
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how does everyone pay for MC?
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Honestly, there is no chance we will be able to pay for any memory care. Early on-set dementia at age 48 has just about sent us to the proverbial poor house. I do everything planning that DW will end her life in our home or in a worst case very sadly in a nursing home.
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DH has been in MC a little over a year. It was the most difficult thing I've ever done. I had his sister come along and we told him it was a fancy rehab place to get him stronger. We scooted out while he was at lunch. We did not adhere to the no visit rule. My DH could no longer use a phone so I didn't have to decide that.
I hesitate to add this, but I did have to move him after about 5 months. The facility could not maintain any leadership and even working through all usual channels, they could not improve. He is in a much better, although more expensive facility now. Like you, I still work and arranging care at home is difficult. More and more I see what they do with the residents there and I know it's so much more than he could get at home.
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Consult an Elder Law attorney. That attorney will be able to advise you of your options based on your financial situation. I would post this question as a new post to get more responses. Others can give you their advice and experiences.
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I agree with @Michele P to consult an elder law attorney, just to see if there is a path for you to get some or all of it paid for. I regret not having purchased long term care insurance because that would certainly help the cost. As Michele said, post this question as a new post to get more advice.
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@Momx3 My DH was further along than your DH I believe. For me, it worked to fib and say we were invited to go to lunch at a new place. I had left him at home with a companion caregiver the day before so I could get his room set up with some personal things. The staff was aware of my story, and greeted him at the door with big hugs, then brought him inside to lunch while I turned and left. I was lucky in that he was 78 and I was 68 and my working life was done - working full time surely adds to the stress of caregiving at home. I hope this will work out well for you…keep us posted.
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Honestly a year ago I wouldn’t have been able to. I have worked for the same husband and wife team for 21yrs. They paid my car off and are about to pay my house off. And they pay me very well. This will make it possible for me to pay for his care. I am blessed beyond measure.
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Yes, this should be posted as a new post. Consult with an elder law attorney. The trouble is, if you are financially okay, you are going to have to pay for it yourself. To get Medicaid assistance, Medicaid has a 5-year lookback rule. If you move any finances, cars, home, etc. to lower your income during that 5-year lookback Medicaid will see that. An elder law attorney will help with financial loopholes. Even then, you have to "spend down" your funds to get below the Medicaid threshold for assistance.
I am currently paying for my DW's memory care with funds augmented from my retirement money market account. It will last almost 3 years.
I am not an attorney. This is what I have been told. Consult your own elder law attorney for advice.2 -
I have had move three immediate family members into memory care over the years and most recently my DH. Generally people with dementia forget things and they are not good at figuring things out. I just moved them and visited often. In the 6 months my DH was in memory care he only asked to go home once. I pushed him in his wheelchair around the facility and then took him outside for awhile. We went back in after an hour or so and he never asked to leave again. I visited him every day and before I left him I would announce that I had to leave and ask if that was OK. He always said yes. Then I told him that I would be back soon and that I would always be back and that I would never leave him. It worked for us but everyone is different. As a rule I never shared anything with my DH that he couldn't handle.
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Well, today was the day. And much to everyone's surprise it went 1000 times better than I thought it would. He was a bit anxious and telling me he didn't want to go (which I totally understand, who would?). But once there our Son and I stepped out and left, I was kind of afraid that when he noticed we had left if would upset him but it didn't. I have had several updates from the Memory Care and he so far is doing great! The plan is to stay away for a few days and if all continues to go well I will go visit him daily. Thank you to all that responded with your kind words of wisdom! May God continue to guide us through this path we are walking.
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Such good news! I’m so glad it went well for you.
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That’s such great news! I can imagine it’s a huge relief for you.
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Very happy that it went well for you. Hope it continues to.
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So glad to hear day one is going so well. Now try to take care of you.
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Well, today is not as good as yesterday. He is already trying to get out the door (which they are locked) and is saying he has to get to me because I don't know where he is. I spoke with MC Director earlier and asked if they had given him his lorazepam this morning. She said no they had given him ABH instead because they didn't want to "snow" him. I have been having to google all these to see what they mean. Anyway he did get very agitated while trying to get out that now they have given him 2 Lorazepam a little bit ago. I have a call into his Hospice nurse to see if they can make the Lorazepam a daily dosage and not just PRN. Thank you all for your kind responses, I am reading every one of them!
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Hang in there, it often takes a little while to adjust.
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I would be very careful with having hospice put him on a scheduled dosage of lorazepam…make sure that they aren't going into a 'comfort drug' routine and get a second opinion. I didn't realize what was happening until it was not reversible…my fault as I was too exhausted to do due diligence. My DH was comatose within a week and died within 2 weeks.
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You know him better than anyone but, perhaps, staying away as they suggested will not work well for him. Maybe you could ease him into a new routine without changing/increasing medication. I am hoping this settles for you both very soon.
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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