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My Grandma has been diagnose but family won't accept it!
Hey there... long story short, my Grandma was diagnosed with dementia back in 2023 and my mom and aunts and uncles didn't share this information with anyone! Fast forward to today, my Grandma was in the hospital due to an UTI infection, and while I was there, the doctor mentioned her vascular dementia diagnosis and said he…
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New To The Group
Hello All - I am taking care of my 80 year old mother who was officially diagnosed with Alzheimer's last year. She has lived with my wife and I since 2024. She has had noticeable behaviors since 2022 when our dad passed away. Mom has progressed to the point where it is not safe to leave her home alone for extended periods…
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Home care aggression
Hi! I’m looking for some advice - mom my was “approved” for 24/7 at home care but we’ve been struggling with her being aggressive to outside caregivers. She’s so sweet - until she’s not- which seems to take about a week then she wants them “out of her house”. She’s on all the typical Alzheimer’s medications & mood behavior…
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MOM IS WAKING FAMILY MEMBERS TO FIND CAT THROUGHOUT THE NIGHT … HELP !!
My mom lives in the same house as me and my family and has for the last 10 years. We have a family cat that over these years has decided, especially in the last six months to a year only have … meaning she is completely fixated and obsessed with all things cat related. All day she asks where the cat is if he’s not with…
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New Alzheimer's Diagnosis
My 70 year old wife just diagnosed with moderate late onset alzheimer's dementia. Looking for caregivers in similar circumstances that would like to discuss what you are going through and share support.
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When a long-term friendship is impacted
I’m concerned that a dear friend of mine may be experiencing early cognitive decline. They are in their mid-60s and recently lost a spouse. For the past two years, I’ve attributed their behavioral changes—especially increased frustration and verbal outbursts—to grief and the challenge of navigating life alone. However,…
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Recomendacion para un Geriatrico doctor que hable español en los angeles county?
Hola, mi mama (75) ayer fue diagnosticada con alzheimer's. Esta en las primeras etapas y el hipocampo apenas se esta agrandando. Tengo muchas preguntas pero no se ni donde empezar. Vivimos en los angeles, yo vivo con mi esposo y mi hermana mayor. Mi mama vive sola a 5min de nuestro apartamento y la visitamos diario. No…
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Sleep too much?
My mother’s sleep patterns have changed over the month. She previously would sleep 9-10 and nap once during the day. Now, she goes to bed as early as 5pm and sleeps until 11am AND naps from about 1-4pm. It can change day by day, but she is just constantly sleeping. She’ll eat breakfast but that’s the only meal. No…
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Mom Passed Away & Dad’s Struggling - Advice Needed Badly
Hello! I’m in bad need of some advice. My Mom passed away on January 4th and my Dad, who is in the middle stage of Alzheimer’s, is really struggling. They were married for 66 years and had been living in assisted living for the past couple of years. Neither of them could drive or leave the facility with our help. They were…
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My mother
My mom has dementia and extreme aphasia (trouble with speaking/words). I have a tough time dealing with active grief around certain things like forgetting it’s my birthday and other life events. Wha suggestions do you have?
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Burn out
Hi, Lately, I feel so tired and burnt out physically, mentally, and emotionally. My dad was diagnosed with Alzheimers in August. He started his first treat with Leqembi on Tuesday. He was sicker than a dog. I am watching my mom struggle to take care of him. I feel like I don't know what to do. I give my mom good advice. I…
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New Here
Hi, my mom has been having cognitive decline for a few years but hasn't been diagnosed. She turned 70 last year and Ive been trying to help but have little help or resources. She can still mostly take care of herself, has my father.. so power of attorney is not in the cards yet. My father has his own problems and won't be…
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Looking to connect in or near Houston Tx area
Hello friends- I am newly diagnosed Early Onset. I'm looking for support groups, counselors or therapists/social workers who can offer support in this stage. I am in my early 50s, still working, kids in college, mortgage, mom with Alz. I need help and a place to be able to talk about what this means for my life. Like,…
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Dealing with uncontrollable anger
My mother is 82 and was previously diagnosed with early onset dementia. I didn't think the condition had progressed much, as I was not noticing any severe symptoms, but in the past year she has had more and more outbursts of uncontrollable anger. I didn't know this was a symptom of dementia until I looked it up after a…
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Looking for Girl Friday help in the Pittsburgh area
My father is caring for my mother who has dementia. She is recently in Memory Care and my father has to spend a lot of time with her in Memory Care b/c she doesn't like it. Spending all this time with mother has left a lot of things undone. He is looking for someone who can run errands for him, light housework, maybe work…
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New to this and in need of guidance
Hi. Just signed up. My first time on here. Mom was just diagnosed with Alzheimers. I am not sure what my steps are to get her everything she needs and where I can obtain from a financial point and medical care (medicaid??, walker, assistance) She lives alone and is in early to mid stage. Any suggestions? We live in NY. Are…
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Tips for taking care mom has alzheimer
Hello, my name is Cindy. I and my sister live with my mom who is 84 years old and has alzheimer over 14 years now. Her behavior is changing every moment especially at night time. She was happy, and talking and certainly turned strange to us like saying we steal her stuff. She made up stories that never happened. We have to…
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Memory care / Medicaid / quality of care in New Jersey VS New York
Hello everyone, I’m in the process of attempting to move my dad who is in the early to mid stages of Alzheimer’s from a retirement community in Arizona to the east coast where i am. There’s no other family around and we both want to be closer to each other. This process is beyond overwhelming. I began my search a few…
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Suggestions please
My DH was diagnosed a few months ago with younger onset and we're both struggling with how to process it and move forward. Even though we've been pushing for the diagnosis for several years it's still turned our world upside down. We're in our 40's with kids and I'm just not sure how to navigate or handle everything or…
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Caring for mom at home
I’ve been caring for my mom pretty much full time since 2020 but my Dad helped until he passed in early 2024. She already had mobility issues from a stroke and a fall, but since he died she’s gone downhill with her dementia. She’s maybe a mid-stage 5 but it’s hard to assess since I’ve been helping her do her ADLS for years…
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Travel documents for parent with dementia?
(Apologies, but I feel like I have to redact this post and the follow-ups at this point to keep some details private. Thank you all, especially H1235 and Victoriaredux.)
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Asking for Help
My dad is scheduled in February to start Leqembi. I am having a hard time wanting to try this experimental treatment. I love my dad. I am worrying about the negative side effects. My dad is at stage 3-4 of Alzheimers. He is coherent. My mom agrees with my dad. I have already let go of my father. He isn't the father, I once…
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Mother to Mother
Hi everyone, My name is Stacey. My mom was diagnosed with Alzheimer’s last year at 64 years old. We saw signs for a few years now looking back, but we always just chalked it up to anxiety symptoms. My mom is my best friend and I am having such a hard time with this diagnosis. Since last year, things have really progressed…
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being prevented from communication
My DW of 45 years has ALZ and is living in an assisted care facility. The oldest daughter has POA. She and an unknown DR have implemented what they call a "NO CONTACT" plan where I am being prevented from any communication with my wife. They say this is for her "well being" and that it is permanent. She is taking 3 or 4…
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Kisunla vs Liqembi
I was recently diagnosed with AD after having MCI for the past 5 years. My neurologist is recommending that I start a monoclonal antibody treatment regimen and has suggested Liqembi. As I do my own research, it looks like Kisunla is considerably more effective. It more aggressively removes existing plaque while preventing…
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Forgetting a loved one has passed
What do you tell a person with dementia when they don’t remember their spouse has passed away? How do you deal with them feeling like the death just happened even though it has been years?
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Constantly saying Help Me please
I am a daughter with autism age 50 and live with my elderly father age 85. He keeps repeating the phrase Help ME please, very insistently, and then switches to Help me Jesus or praying the Hail Mary. He has a caregiver in the morning and my brother comes in the evening for a small amount of time. I’m left alone to hear him…
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Early stages of the disease
Hello, I am hopeful these discussions can offer me insight and a community to share our journey. My husband is 54 years old and has been experiencing cognitive decline over the past few years. In the Spring of 2025 he had an MRI and a CT scan of his brain. All appeared normal. His blood work showed his p-tau 181 levels…
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Suggestions on making the move to MC
My father has been the primary caretaker for my 78 y/o mom for the last 5 years of her Alzheimer's diagnosis. A daily routine was working "well" in that it was predictable, and her ability to live in a well-managed environment was working as good as one might expect. In the past 3 months however, she has experienced…
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Infusion Treatments Leqembi vs Kisunla which is better treatment?
My dad was recently diagnosed with mild Alzheimers. His doctors selected him to be a good candidate for Leqembi and Kisunla. Has anybody gone through the infusion treatment? Can someone give their best opinion on this topic? Any help would be greatly appreciated.