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Unsure where to even start
It’s a long one…. My husband and I are 34 years old and have recently had my 68 year old FIL move in with us. Previously, my FIL lived with his wife, who had been recovering from a mild stroke she had in March 2023. They live about 2 hours away from us and we thought they were managing okay as my SIL lives in their area…
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Changing an Alzheimer patient's home base
:s Hi community! I'm new to the discussions and am so glad this exists. My husband and I are becoming caregivers to my mother-in-law who was diagnosed with Alzheimer's-Dementia a few years ago. She's at the point where her short-term memory is mostly non-existent, but her long-term is still mostly sharp, give or take a few…
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Sudden worsening of symptoms
Hi all, I am new here. My dad was diagnosed with dementia in March of 2023. I still live at home with him and my mom. He had been living pretty normally since his diagnosis with a mild decline as to be expected. At his last doctor appointment on Monday 1/29/24 his doctor started him on Wellbutrin to aide in his depression…
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When did you know it was time to move LO from AL to MC?
I've lived far away from LO for many years. My brother and I decided it was time for her to move to AL in December and that it was best if it is near me. I tricked her into visiting and temporarily staying in a community since no one is home during the day and she would have more to do. She still thinks that it is…
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Getting my LO into bed
My LO is in late stage dementia. She can no longer stand without a walker and assistance. Getting her into bed requires lifting her off her commode chair and, while holding her up, pulling on her pull-up. I then lift her onto the bed. She often resists or slumps in my arms. There must be a better way. The pull-up is a real…
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New to this site and Alz/Dementia info
My husband was just diagnosed with Mild Late Onset Alzheimer's w/Dementia with Mood Disturbance (depression/anxiety). I've been a mess, exhausted, frustrated, angry, then sad, isolate, alone... I'm in Los Angeles, CA and just hoping to reach out to anyone who could talk with me about all of this. Thank you!
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Mental Health Care
Hello everybody! I am currently looking for some mental health care options for myself (CG) and my mama (LO), but I am having a difficult time finding therapists/psychiatrists that have experience treating those with dementia/caregivers for LO with dementia. Every one that I've been in contact with either does have…
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My sister has dementia/ Alzheimer’s I am her guardian
I’ve been her guardian for 20 years, and recently, she has developed dementia/ Alzheimer’s and has become increasingly agitated. On top of this, she is special needs development mentally disabled, an IQ of 57. I work a few hours a day, and need resources to help me with day to day activities. Is there a system, that I can…
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Caregiving Burnout
Hello everyone. I’m new here. I could really use some advice. Can anyone recommend someone to talk to about how to handle severe dementia and sundowners? I’m single and live with my parents…only one is suffering from dementia. But it just feels like everything is in my shoulders. Clean the house. Do the laundry. Take care…
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Sadness and acceptance of my grandmothers late stage dementia.
I’ve joined this support group in efforts to make peace with acceptance. I would like to share an experience I had today with a beloved family member of mine with Alzheimer’s disease. In hopes that sharing, communicating it with someone will help bring some peace. My beautiful grandmother, Peggy, has been going through the…
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Is mom ready for MC? How advanced is her Alzheimer’s?
Hello and thank you for this valuable community. I’m new to these boards and am appreciative of the discussions. I think that my 88yo mother has moderate to advanced Alzheimer’s. I haven’t figured out what stage she is in yet. She lives in AL and can generally care for her personal functions. Her memory is shot. She can…
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Wanting to go home
Hello, My mom was diagnosed with ALZ a year ago. Due to her diagnosis, we relocated her to a memory care center. The center is very nice and has many amenities and I visit weekly. She is high functioning and able to take care of many ADLs herself. She constantly talks about moving home which is unfortunately not an option…
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Question about Ongoing Issue with LO
Hello all. My husband and I are caring for his mother who has Dementia. She is having an ongoing issue that we have taken her to multiple doctors for with no real answers. We are wondering if anyone may have experienced similar issues. Our LO says she feels like she has tons of phlegm or saliva in her throat all the time.…
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We Need Referral for Genetic Testing
@ Va Beach area willing to travel if telehealth not available. Waited 8 months to see Neurologist then he refuses to refer for (online) Genetic testing. Insurance not an issue. Says it "won't help him treat DH with MCI". Want answers not drugs. Dementia Panel logical next step. Should be OUR choice. Any ideas?? Need…
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No memory loss
My mother started hearing alarms at night last summer. Then she started smelling things, hearing music, and now has delusions at night. Her memory is excellent and she thinks these delusions she has at night are real. She has had a few during the day but mostly during the night. Has anyone heard of anything similar? Thank…
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Chemical sedation?
My dad (77) has Alzheimer's and is now in a VA-supported nursing home after a number of scary hospitalizations left us with no real alternatives. Recently I was visiting and found him sound asleep. I waited for over 30 minutes, making some noise here and there but he didn't wake. Eventually I went out to talk to one of the…
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Support & Advice
Hi. My name is Kate & I am new to the forum. My mom has been living in a memory care facility for a little over two years now just a few months after my dad died abruptly. The last two years have not been the easiest with losing a parent & losing a parent to dementia. My siblings and I relationship has been estranged since…
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New member, Mom has dementia, this is overwhelming
Hi, I'm new here. My mom was diagnosed with Dementia in October. We had to move her into a memory care facility. I've finally stopped crying every day, but this is so overwhelming. My mom was a computer engineer and had a brilliant mind, and now she can't even string together a coherent sentence. It's so hard to see this…
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New… Dealing with Mom’s Hallucinations
My mom is in her 60s and her pcp says she is having brain slips and in stages of dementia. I am trying to get her seen by a neurologist and someone recently recommended a geriatric psychiatrist as an alternative for an assessment. It has been 3 months since the diagnosis and she was given an antidepressant. She is now…
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Newbie here.....how to cope with my dad
My dad, unoffically, has alzheimers. He does not want to be tested. I am 52. He is 88. My mom passed 6 years so just him and I. He lives with me. I have my own business and work lots of hours. He has a part time care giver just so she can take him to doctor appts and get him out of the house for a meal. My entire life…
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Early onset of Alzheimer’s and the cost of long term care
Hello All, My mother was diagnosed with early onset of Alzheimer’s in 2015 at the age of 51. She just turned 59, and the disease has progressed significantly. My father had to move her into a memory care unit housed in a nursing facility. She has been unable to take care of herself for years and needs additional one on one…
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Early onset Alzheimer’s (Stage 7)
We knew dad had been struggling for years with depression and insomnia but nothing prepared us for the effects of early onset Alzheimer’s. My mom has always been a working mom, 60 hours a week, every week without taking any sick days. My dad struggled with holding down jobs and was dealing with mental illness year after…
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Angry forever?
My moms delusions and anger have become so taxing that our family feels like it may be time for full time care but she’s voiced she doesn’t want to go to a nursing home and “nothings wrong” with her. I KNOW she’s going to be irate with everyone. My question is, do you have experience with this and was your loved one angry…
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Early Onset Symptoms... What was your story? How did you tell your loved one that you were worried?
Hello everyone! I'm new here. My aunt reached out to me to let me know she was starting to become concerned about my great-uncle (who is in his early 50's.) He's been having some memory lapses and increased anxiety/frustration. His father had early-onset dementia, and this has us especially worried. We're trying to work…
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Reaching Out!
Hello, I am a new member and reaching out to help relieve my stress that I'm going through! My DH has had Alzheimer's for 6 years now, us being married 54 years and retired 20 years and within the last couple of months he is not recognizing me all the time. It starts late afternoons lasting until bedtime, which I found out…
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Troubles sleeping
My mom hasn't been sleeping properly ever since her surgery near the end of December. The first few days of the first week of her recovery I understood. She was taking meds that made her drowsy at times so naturally her sleep patterns are going to get screwy. However, she stopped those meds 3 days in. She leveled out the…
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Mom doesn't want to be cared for
Hi, My name is Stephanie and live near Albuquerque, NM. I'm new to this forum and dealing with dementia in general. I recently brought my 81-year-old German mom to the US as she cannot care for herself anymore (middle? stage of Alzheimer/Dementia). Back in Germany, she was hospitalized twice in Aug and Oct 23 and the…
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Need help but don't know what to do
My grandfather is 84 years old and has had dementia for years now but has recently been declining rapidly so I moved him into my house where my mother takes care of him. He has hospice care so nurses show up twice a week to asess him but thats the only care they provide .She quit her job because he needs fulltime support…
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Visiting my dear friend in Florence, AL35630 next week: How to adress the topic?
Hello, I am Kerstin from Germany. About 35 years ago I stayed with a family near Chicago for while to take care of their disabled son. I returned to Germany but we stayed in contact ever since, we are like family. The mother (age 76) has now been diagnosed with dementia, but is in denial. At present she lives at her…
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Convincing LO to Move
New here and need help... 4 months ago, I came to my parent's house out of state thinking I was going to support my parents for a few weeks, working remotely, for my mom's knee replacement surgery. Long story short, I have been back home for 56 hours because my mother fell and fractured 4 ribs, contracted asymptomatic…