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NEW PERSON HERE: I need help/advice
My mom and I do not know what to do about my dad. He has been acting irrational and loses his temper a lot. I have heard him tell my mom he wants a divorce and that she is no longer his wife and I am no longer his daughter. He has disconnected from us and watches tv all day long. On Father's Day this year, he wanted to…
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My first time to reach out for support
Sometimes I feel like I’m a wits end. My mother just dies from Alzheimer’s after 3 years of not recognizing us & my husband has memory loss that is progressively getting worse by the day. I just needed to reach out to someone who may know what’s happening to me
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Parent always wants to go home…
Hello, I’m new here and my family needs assistance. My Mom constantly talks about going home and feels like her home of almost 50 years is not her home. We constantly reassure her that she’s safe but she’s getting really agitated to the point where she’s stating that she wants to be hospitalized or put in a home. Her…
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tamper-proofing machinery
My Dad has Alzheimer's and frequently checks the oil on his car, lawn mower, etc even when it doesn't need it. He often forgets to put the filler cap back and has ruined some equipment this way. Does anyone have suggestions on how to tamper-proof machinery so he can't damage it? We don't let him drive the car, but he likes…
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I need help
I dearly want to travel and visit my new grandbaby in California. I had given up traveling with my husband, who is probably stage six with Alzheimer’s, because it was so very disruptive to him. But he’s in a different stage now. He no longer shadows me everywhere I go, and he no longer has the intense anxiety/delusions…
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87 father is caretaker for 81 mom with severe Alzheimer's
Hi all, Have a situation where our mother is losing her ability to speak, extremely confused, has difficulty walking, is not showering or brushing her teeth and is incontinent at times. Our father is being difficult in that we had an aide for the summer who had to go back to her school job and now he is refusing another…
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Repetitive Sound
My 95-year-old father was diagnosed in 2018 with moderate-sever Alzheimer’s (at that time primarily in the medial/temporal lobes) and lives with my 96-year-old mother in an independent living facility. He is on Memantin (5mg) an Donepezil (10mg). Over the last year or my father began to rub his tongue along his cheek and…
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Guardianship Reports (NYC Based)
Good Afternoon, I hope everyone is doing well. I know we are located all over the world, but I was wondering if those near the NYC/NYS vicinity had any recommendations on who could help me prepare my annual guardianship report- due this past May, so very late. I've asked 100 people and no one can help. I think I just need…
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My mom hates her RCF and wants her cat back.
:'( about five months ago. We had to move my mom from an AFH to and RCF. She hates it. There are six other residents with varying degrees of disabilities and some with dementia. My mom has vascular dementia, and Alzheimer’s. She was diagnosed at 69 years old and will be 71 this year. since moving to the RCF, I have noticed…
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Pull-up with more coverage in back?
My husband does not have dementia but I have not been able to find help on this issues anywhere else. I’m hoping someone can help me. He has started having occasional bowel leakage and “accidents”. I purchased him some Real Fit Depends for the flair ups and he loves how they look (refuses to wear regular depends because of…
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Is my situation crazy? Need advice
Hi everyone, I am very new to this group. Just joined 5 mins ago lol. I am 23 years old and I live with my father, 56, who was diagnosed with early onset Alzheimer’s. He was diagnosed through a PET scan after going through a year and a half of scans, tests, workups. This diagnosis was given to us April of this year, 2023.…
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Grandma refuses to see psychiatrist
I'm primary caretaker to my Grammie, who has multi-infarct vascular dementia. She's still in early stages and very present, but has recently developed compulsive behaviors, heightened anxiety, and obsessive thinking. I'm not sure if she has anosognosia or is uncomfortable with acknowledging these issues, but she refuses to…
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Young Adults Dementia Relatives
This is something that often goes unheard when it comes to young adults in the world who loving as they are, when it comes to many of the concerns on how to care for a relative(s) that have Dementia, they don't have the full training in being a caregiver. People around them know they're the best family member, so they're…
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Should I let estranged granddaughter visit?
My dad is 85 and has moderate dementia. He is currently in a SNF. My niece (his granddaughter) has asked to go see him and bring her 2 kids. She hasn't had any contact with him for several years and he has never met his great-grandchildren (they're both teenagers). Am I wrong to not let her visit him? When he is asked if…
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My Dad thinks he needs to go to work
My father gets up in the middle of the night and thinks he needs to go to work at the business he previously owned. This started at 3:30 this morning and my mom even took him a drive to show him the store was closed. I suggested she bring him on to our house so she could lay down and get some rest. What are some ideas to…
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Dealing with Family Members
Hello, I need help with dealing with my sister who puts a lot of stress on me regarding our mother's care. She decided to move to Florida 1 year ago to take care of herself, understandably, because she had cancer. Her doctor encouraged her to quit working and to avoid stress. I'm the primary caregiver for my mom, but I do…
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Elderly Mother having episodes
Hi everyone I am here with a sad and heavy heart. My 74 yr old mother who lives quite a distance from me is having episodes with what I believe is Dementia. My younger sister is with her and she has health issues of her own. in the past three months my mom has been getting worse. This morning I spoke with her and she told…
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Online Fraud and Scams
Our father just had his second attempted scam. I was lucky enough to be walking past his room when I heard the discussion he was having over the phone. He allowed someone access to his computer to "run a virus" check. We ended the call and have contacted his credit card company, banks, and financial planner. We don't want…
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Moving loved one into MC
I am trying to move my mother into MC and after being very passive, she is now adamant about staying in her house (she says is her mothers who has been dead for over 55 years). How do you make this change as seamless as possible? :s :s
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A Group for My Husband to Feel Comfortable In...
Are there groups for patients with Alzheimers and if so are those groups aligned with the different stages of the disease? I ask because I think my husband would benefit from being a part of a group where he can identify with others and share experiences and learn. But, what I hesitate to do is have him in a group where…
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My stepmom and I are just beginning to deal with my dad's dementia care.
I am new here, and I need some help. We have known about my dad's dementia for about 7 years. It has been a slow decline in memory with a huge uptick in anxiety. The primary doctor ruled out Alzeimer's, but we aren't sure if that was done correctly. He has all the signs of being in the middle-stage. Now, his decline seems…
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Are white boards with reminders, names dates etc helpful
What is the best way to setup a need help setting up a whiteboard or something to write date, events, names, specific details to remind client and orient to present? Advice, tips and suggestions much appreciated!
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Hearing voices of family or friends calling her name that only she hears
My Mom has been diagnosed with Lewy Body Dementia and Alzheimer's. My husband and I live with her in her house. She has severe hearing loss. She claims she hears different members of the family calling for her. Some are alive and some are not. She will go to the front door looking for people. She calls my sister in…
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July 22, 2023
I never knew when the day would come that I would lose my grandmother, but sadly it has been barely a week since she had passed. I joined this community around 5 days before her passing, but had hoped we’d have at minimum, 2 weeks left with her, but timing was different than we had imagined. in my other post, I had…
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Support Groups - Virtual
Newbie here. I'm looking for virtual support groups for long distance caregivers. My mom was recently diagnosed with MCI and is resistant (or just flat out isn't doing) to any of the coping recommendations the doctor/social worker have made. She's a 6 hour drive away and on her own (father passed away in 2022). Although I…
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How to handle confusions
I'm new to this site. I could really use some advice. My father has dementia and living in nursing home. He is convinced that he was/is in WWII. He never served in the military. He keeps asking when his uniforms are going to come showing his new rank. I don't know what to say to him. I keep telling him they are out of his…
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Need advice! Mom recently moved to MC and hates it!
Hello! I'm looking for some help. My 85 yr old mother with dementia moved into MC after after a 2 week stay in the Geripsych unit at our local hospital. She was taken there very much against her will by brother while I was out of the country. She has macular degeneration very bad and has very poor vision. This poor vision…
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Coping with hospice
Hello everyone, I’m new to this community. I (26 years old) have been a caretaker for my 86 year old grandmother for 6 years since her diagnosis was made (aphasia dementia). She has recently been declining, and just this evening my family had made the decision to begin hospice care for her. It was an emotional decision,…
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MC for my mom soon. Anticipating the guilt, worry, fears, & overwhelm will increase.
Haven't posted or read for a while. No excuses, but a lot of reasons. Honestly, life has just gotten really hard. My mom ( early - mod dementia) will likely be moving to MC soon and i need to share my fears. (She is in rehab community now.) Ive been told that it's the right move, AND that the responsibilities, feelings of…
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Newbie
I'm new here because part of me is in denial. I got a call Friday from the nurse at her Speech therapist that my Mom wasn't safe. I've been told that she is not independently safe. She won't believe me because they haven't told her directly. She stayed with us & sometimes it was completely awful. She yelled. Said we were…