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What is Your Wife’s Name?
I’ve been dreading this day and it finally came - DH not knowing me! I thought I was prepared after reading what so many of you have already experienced, but that question hit me hard! I was speechless and caught by surprise. But I managed to take a deep breath, look DH in the eyes and stroke his cheek while I replied “My…
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Brilliant Analogy
This really resonated with me. https://www.facebook.com/reel/1101251472572052 HB
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My Mom No Longer Remembers Me ........
I live about an hour flight from my Mom and have been visiting her around every month or so. This trip she was asked who i was and one time she said "my sister," and another time "my sister-in-law." When someone told her i was her daughter she looked absolutely shocked. Yesterday we were looking at pictures and she pointed…
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Quiet Weekend = Worry
Why is it when I get a quiet weekend I am more paranoid of what might come in the following days is going to be a big one. This past weekend I had 2 calls, both for an alert that dad fell AGAIN, trying to get to the bathroom or just out of bed. Both times they didn't seem worried, but I was. I mean one of the times he hit…
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Sad, stressed, and need to talk to others
I am new to this site. My significant other (SO), is battling Alzheimer's. I just need to know what I am able to do to make both our lives easier. I feel like I have already lost a lot of the man I married. He has good days and bad days. But, it has taken a toll on us. I am having to do the things he use to do along with…
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Prepared for so much EXECPT every new symptom my Dad has.
My DD stage 4 has been doing really well. He adapted to the lifestyle changes, the MIND diet. His MRI & bloodwork results are encouraging. He wanted to take a trip with me to see my daughter in Law School (it’s always been his dream to have an attorney in the family) we live in PA she is in IL. The plan was to fly out…
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I am new to this community
Hello, I am new to this community and looking for support and help. I am 78, and my husband is 5.5 years younger. I have spoken at length with my doctor about what's going on in my life, and she has been very supportive and suggested I come here for guidance. I have seen my husband's decline over the past several years,…
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From the NYT: The Pain of Caring for a Parent Who Abused You
Gifted link. C&P into your browser. https://www.nytimes.com/2026/06/15/magazine/elder-care-parent-abuse.html?unlocked_article_code=1.qVA.g6x3.dCf7rxwmWlbP&smid=url-share
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Vascular Dementia
I would like to hear from anyone who is dealing with a spouse or LO who has this dx. My husband has been diagnosed with cerebral amyloid angiopathy—which seems to be the cause of this vascular dementia. We have been married since 1994. He is 79. This dx has turned him into basically a different person. He is 6'10" and has…
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Rational father trying to relate to emotional mother in stage 5/6
Hello. We moved my mother into memory care a couple weeks ago and she is slowly starting to adjust except when my father visits. My father is, by nature, very logical and rational. My mother is, by nature, very emotional with a tendency to complain/argue with my father (it's been that way for decades). When visiting, my…
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primary support person, not direct care-giver
Hi, I'm new to the group and looking for support. I don't know this is the right place for me. My mother is in assisted living with mild-to-moderate dementia. She lives 1/2 mile down the road from me. I’m her primary care partner and decision-maker, but I’m not providing hands-on care. I'm mentally and emotionally…
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What do you do when they push you away?
Dementia has really hurt my family tremendously. I live long distance from the rest of the family. My aunt has dementia. She's pretty upset with me for setting boundaries for myself. Long story short, I was expected to be her caregiver without any consent from me. So, when I would call my aunt, she would yell and cry…
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A New Level of Loneliness
I see that I had a post last year about the loneliness of living with a spouse with AL. Of course, the disease has progressed. I'm guessing that he is more stage 4 than 3. Really, who can tell for sure. We have a daughter who is not currently speaking to us as she works through some things. Exactly what things, she did not…
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New member. Caring for DH
My DH is somewhere between early and middle stage. He was diagnosed in 2022, at age 71, 13 months after my mother died of Alzheimer’s (she stopped taking nourishment) at the age of 93. That was a nightmare because it was Covid with my mom and no paid caregivers were available when she started needing 24 h caregiving so it…
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Concerned newcomer
Hi, I just created an account for this group,hoping to find support and helpful information. I am a loving partner to a 76-year-old woman who has been exhibiting memory lapses, delusions, and paranoia. I care deeply for her and am trying to figure out how best to help her, beginning with that first awkward, sensitive…
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When friendship is impacted
I suspect a dear friend of mine has early onset. This person's mother had Alzheimer's and passed away as a result. My friend is in their mid-60s and is dealing with the recent death of a spouse so for the past two or so years I've attributed recent behavior changes (verbal outbursts, mostly) to grief and having to navigate…
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Loved one spouse just passed
Spouse of the loved one with dementia just passed last week. They are good with day to day activities of course have moments of grief but they keep asking when the funeral is although the funeral Was last week. Then get upset to re-live that and to then upset because they cannot remember the funeral happened. How can we…
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DH hallucinating that he's going to have an affair
I am going to post this, because I haven't seen anything quite like our story. My husband is in Stage 5-6 of This Crappy Disease, and he is now telling me that he would like to start a new relationship. The woman he's interested in is a neighbor whose name we don't know. He has been irritated with me because I am the…
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Please help me keep my sanity
I wrote some of this in a reply to a comment, but thought I need some more support. I’ve been with my mom for the past week and she has done nothing but yell at me for the last 3 days. For context, I came to her house last week to take her to a doctor appointment, where she finally was given a memory test and did better on…
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Mixed Dementia Care Partner - I am new here
Good morning, I just found this resource and decided to reach out with my situation. My DH has a dementia diagnosis, not confirmed via MRI or bloodwork, but neuropsychological testing revealed "likely mixed dementia, due to vascular and alzheimer's". He has an aneurysm clip that is not MRI compatible. The neurologist says…
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When a long-term friendship is impacted
I’m concerned that a dear friend of mine may be experiencing early cognitive decline. They are in their mid-60s and recently lost a spouse. For the past two years, I’ve attributed their behavioral changes—especially increased frustration and verbal outbursts—to grief and the challenge of navigating life alone. However,…
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Bringing Dad home?
In the mild-moderate-severe way of describing stages of Alzheimer's, my dad has one foot in "severe". He is in MC and the care there is pretty good. But he is so sad not to be with family. My mom is living with my husband and me. We tried to care for both of them, but my dad is very independent and would not let me or my…
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New Here
Hi, my mom has been having cognitive decline for a few years but hasn't been diagnosed. She turned 70 last year and Ive been trying to help but have little help or resources. She can still mostly take care of herself, has my father.. so power of attorney is not in the cards yet. My father has his own problems and won't be…
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Stage 7 +++?
My DW, after years of going through the stages has entered the last weeks. Has been in home hospice care for 2 months. There was a fall about 10 days ago. Has been bed ridden since then. Just water and orange juice. Very few words and atrophy of the limbs. Just another new grieving phase. Thank goodness for daily nurse…
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Dealing with uncontrollable anger
My mother is 82 and was previously diagnosed with early onset dementia. I didn't think the condition had progressed much, as I was not noticing any severe symptoms, but in the past year she has had more and more outbursts of uncontrollable anger. I didn't know this was a symptom of dementia until I looked it up after a…
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Mother to Mother
Hi everyone, My name is Stacey. My mom was diagnosed with Alzheimer’s last year at 64 years old. We saw signs for a few years now looking back, but we always just chalked it up to anxiety symptoms. My mom is my best friend and I am having such a hard time with this diagnosis. Since last year, things have really progressed…
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It’s finally real
I’ve known my mom has dementia for at least a few years but we finally got the official Alzheimer’s diagnosis a couple months ago. I moved her into an assisted living community a little over a year ago because it wasn’t safe at home but we were dancing around the dementia issue and focusing on getting her heathy otherwise.…
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NYT Opinion Piece on Caregiving Crisis
https://www.nytimes.com/2025/11/24/opinion/caregiving-crisis.html?unlocked_article_code=1.308.kBxI.CmNVAb2397Tf&smid=url-share