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ALSP support group
My mom was DX with ALSP it’s a rare/genetic for of Alzheimer.. I was wondering if there was any type of support groups even virtual support groups that anybody has or has gone through that could help me. I love to join a support group, but I don’t know where to start, Can guide me?
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My DW & Hospice Education
Today, my DW of 25 years was released from the ravages of of this evil disease (+ cancer) and is, truly, in a better place. I was lucky enough to be by her side, holding her hand, when she passed. And I might have been alarmed at the changes she underwent, if not for having learned about the signs and sounds and changes…
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Grandmothers recent diagnosis - guidance
Hi everyone! My grandmother, and very best friend, was formally diagnosed with Alzheimer’s yesterday. We knew this was coming, as her mother had it and she began showing signs about a year ago. However, I feel so completely lost and heartbroken. I was hoping for a bit of guidance on how to handle the utter darkness I feel.…
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Competely overwhelmed and in tears or on the verge of tears ALWAYS
Hi all! I'm new here. My 59 yo DH was diagnosed with early onset alzheimer's and primary progressive aphasia in Sept 2020. He was able to continue working until Dec of 22. He's been home and frustrated and bored and angry since then. He gets so confused and believes things that haven't happened. Sees things and people do…
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Sex is not my friend
DH has been quiet about this for several months now. All of the sudden now he wants it again (he also has ED and things were not going well before). He grabbed a beer when we got home from church and then wanted to get all frisky. Unfortunately, I made the remark that he looked like he was more worried about getting a beer…
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It's so lonely
hi I am Amy (61) and my husband (64) was diagnosed with early onset Alzheimer's in June 2023. Since I am also disabled I knew we had to get out of our house and into a care environment before disaster struck. We are in a really nice Assisted Living place now. Currently Ive been feeling lonely even though we're together all…
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Children of parent's who have died from Alzheimer's
I have been the caregiver for my mother for the last 16 years. This August she died from the disease. I have not been able to find a single book or group about this and find it very frustrating. I thought since I grieved the loss of my mother for the 16 years that her death would be easier. Stupid I know....this is hard as…
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Wife refuses medical help
After 3-4 years of increasing memory loss, Finlay was able to get DW to her PCP (prescribed sertraline for anxiety) and neurophysiological testing. Diagnosed with presumptive AD but she is in denial and refuses further follow up. Related: about 12 months ago she began to not recognize me. Not sure what to do
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Suggestions please
Hey everybody, 1st time posting. I noticed hubby having memory loss and confusion over a year ago, he is 52. Last July, he ended up in the hospital for a week, and scans confirmed something was going on in the area of his memory and emotions. Bad short-term memory loss, can't remember places he went the same day, says he…
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Mom thinks I’m wearing a mask
Hi all! For the past few months my mom has made comments about how I am not her daughter although I look like her. She has made comments about me wearing such a good mask because I look so much like her daughter. She also says that her daughter hates her and does not want to be around her so I cannot be her daughter when I…
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Finding balance while managing guilt.
My mom is heavily dependent on me. Even though my mother is living in a AL, she expects and asks to see me everyday. I try to see her as much as I can as I know seeing me comforts her but I am having trouble balancing everything. In addition to caring for her, I also am trying to maintain my own household, care for my…
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Unconditional vs Obligation
The apple certainly doesn't fall far from the tree. I simply can't cope with caring for her personal challenges and then all of the other incidentals- bills, wills and care for example. I've been managing her bills, finances, doctors visits, care for 5+ years. Has it been easy, no. Has it been emotionally manageable, yes.…
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I'm new here and I want out...: (
DH diagnosed one month ago and our lives are out of control. I am the caregiver, now only driver, home caretaker, as well as the target of his anger, rage, distrust, you name it. Not sure what to do, where to start. I dont even know this person really...and I now realize thats been going on for years. Here I thought we…
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How did you get through the diagnosis?
My partner has been diagnosed with Alzheimer’s disease, he is 72 and I’m 64. Three years ago last August I lost my 91 year old mother to Alzheimer’s after a 6 year battle and I have no illusions about where this disease is going. I don’t have any friends or family that has lost their beloved this way, apart from my father,…
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Newly diagnosed DH
I'm not sure what resources are available to me. I know that there is so much that I need to do, but don't know where to begin.
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Sadness and acceptance of my grandmothers late stage dementia.
I’ve joined this support group in efforts to make peace with acceptance. I would like to share an experience I had today with a beloved family member of mine with Alzheimer’s disease. In hopes that sharing, communicating it with someone will help bring some peace. My beautiful grandmother, Peggy, has been going through the…
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New
Hi All- Just found this site and wanting to learn. Wife was practicing Endocrinologist diagnosed in april 2023. Lost all income and moved to another state to be closer to family. She is only 57. We were not ready for this-- Financially or emotionally. Finally able to find a house so settling in, but just overwhelmed with…
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Angry forever?
My moms delusions and anger have become so taxing that our family feels like it may be time for full time care but she’s voiced she doesn’t want to go to a nursing home and “nothings wrong” with her. I KNOW she’s going to be irate with everyone. My question is, do you have experience with this and was your loved one angry…
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Safety when cooking
My 76 yr. old DH is becoming more and more forgetful. He has several of the symptoms of cognitive impairment. He hasn't been tested or diagnosed yet but agreed to have me attend his next medical appt. in February. I've told him I'm noticing more instances of forgetfulness, which he'll accept for the moment, but doesn't…
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I am realizing that my friends,
while trying to support me, do not truly understand my situation of having a sibling with dementia/Alzheimer's living in a far-off state, commenting "things will get worse before they get better," or "hope things look up for you soon," when there is no "getting better" or "looking up." I think that perhaps my situation is…
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Venting
It's been 4 months since my mom moved here to my neck of the woods. She moved away from her home of 40 years, her things, her friends, the sunshine, warmth and the ocean. She was worried that when the time came, when dementia was in full swing and she was stuck in SC, she would be all alone. Yet, she's so very unhappy…
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Feeling Conflicted and Guilty about moving on…
My wife is in the mid to later stages of AZ and is struggling to communicate, she sits quietly most of the time. In addition to AZ she has a genetic eye defect that is incurable, she is legally blind and needs help with everything. I am her caregiver and have given up most of my exercise and outdoor activities to support…
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How to hold a conversation with a relative who has dementia?
I have a relative who was first diagnosed with dementia a few years ago and over the last few years I have noticed it is becoming increasingly difficult to maintain a two way conversations with her. I feel awkward about asking too many questions as I don't want to make her feel uncomfortable and she is quick to hang up the…
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Are my dad’s visits making my mom more anxious
Hello- my mom currently lives in memory care which I am so, incredibly grateful for every day as neither myself or my dad could support her needs at home anymore. We had to move out with our young children when my mom had delusions and hallucinations because she thought my husband was abusing our kids, abusing me, it was a…
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New to Forum: Introduction 👋🏻
Hi all, My partner was about 26-27 when she started to realize her mother was having difficulties recalling basic things. We are 31 now. Her mother lives independently (alone) and does not know what is happening. My partner is more or less her mother's only family. My partner's sister, her mother's other daughter, lives on…
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Moving my folks into my house
My dear mom (DM) has Alzheimer's. My dear dad (DD) is her primary caregiver. They are both in their mid-eighties. We live in the same town, as does my sister and my brother. I assist my DD care for DM, plus a caregiver comes in 3 days a week. Additionally, DM attends a day program 2 days a week. Three years ago, I had my…
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What to do after the diagnosis
My dad was recently diagnosed with Alzheimer’s. However, his neurologist said he’s been on the cognitive decline for about 3 years already. Unfortunately, I only started noticing changes in his personality and memory at the beginning of this year. The things that were most noticeable were problems with his short term…
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Care Taker Under 30
Hello to all! I'm making my first post here to try and gain some insight from people who are in a similar position as I. My mom is not even 60 yet, but she was diagnosed with Alzheimer's (early stage thankfully) back in 2022, so this is all still fairly new as we both adjust to our new realities. It's been quite difficult…
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Mother in law- and supporting my husband and brothers to best support her
My MIL recently moved close to us from our of state. Since she has been closer we see increased memory impairment and getting lost while driving. I would like to chalk up some of it to learning a new area, however a few weeks ago she came into a restaurant disorientated and confused and the waitress called for a welfare…