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Newly diagnosed with early onset Alzheimer's I'm 59
Im single and work fulltime. I live paycheck to paycheck. I'm in early/mild , kinda crossing over. I have no idea what to expect. Or any kind of timeline. I have debts and need some direction. There is no long/short term disability where I work. I expect a 2 week severance when they find out. How long will i be able to…
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Medicare and Leqembi
Hi! Anyone out there on Leqembi and have Medicare? My wife is on Leqembi and just turned 65 and signed up for original Part A and B Medicare. We’re wondering how much Medicare pays for Leqembi? And how much is left over for the patient to pay? The first few infusions were given when she was still on my BCBS insurance. So…
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New, Scared and Confused...
I'm obviously a newbie to this site, as well as the amazing and mysterious world of Alzheimer’s. I began seeing a neurologist last summer because of an inability to think as clearly as I once did. Memory didn't seem like much of a problem since as far as I can remember, I always had a bad memory. Other issues that I…
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Costs of early to middle stage care
I am looking at purchasing some long term care coverage. One that I like starts benefits when I can't do two of the six activities of daily living (ADLs), like dressing, hygiene and eating. Others start benefits EITHER for that, or for having cognitive impairment. I assume that there are circumstances in which I could have…
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I have So Many Questions..
Hi My mom was recently diagnosed with Dementia. She has visual and auditory hallucinations. She is very suspicious of people and even think everyone is trying to kill her. We moved her from independent living to assisted living and she was not happy about it at all. We had to keep her safe and get her more help because she…
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Early On-set sadness
My DH seems to be advancing rapidly in his disease; he is only 61. I feel guilty that it's because I can't provide the level of care he needs. We've made too many trips to the ER lately. Most recently, he fell out of bed, tripped on a metal step stool, broke it, and then snapped the stabilizing bar, and it stabbed him in…
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Mom is in Assisted Living now
After rehab we were able to get her directly into an Assisted Living in a new community. I was all set to go with the same community where she lived for simplicity, but they were unwilling to work with us to get her placed directly and wanted her to go back to her apartment for a week or two, even though they had a room in…
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Doctor ordered MRI but she probably can't stay still. Is it worth it to try?
Hello, This is in Pennsylvania. My mother-in-law is 83, living with us, certainly has some kind of dementia, but we don't have a specific diagnosis. Her primary care doctor ordered an MRI to help us get a diagnosis. I told the doctor that MIL has a habit or tic of snorting and sniffling. It is almost constant. I am sure…
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High Anxiety / Anger Issues
I am trying to help my 81 year old father who is my mothers primary caregiver. They still live in the house they raised 3 boys in for the last 56 years. I work two jobs one of which is caregiving for seniors in the evenings and weekends. I am the only one able to help my father as my younger brother has passed and my older…
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My DH was just diagnosed with Alz
My Dh was just diagnosed with early stages of Alzheimer’s. He’s doing well now but we are both overwhelmed with making decision s for the future. Do we stay in our home of 45 years or downsize to an adult community? If we stay put, how to prepare to make home safe? How and where do I get help when I need it? What legal…
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Resident Financial Application
is this a normal request to fill out? mom is in AL and the MC unit is full. Looking to move her to the sister location. Been negotiating pricing and today was asked to fill out a form about her finances. Then they ‘can see what they can do.’ Why would I disclose her assets?!
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AL to MC - need help!
I’ll try to make this brief. I need help deciding on a MC. Mom is 72 with AZ Lives in a corporate AL for the past 3 months Now needs MC MC unit at AL is full Have to make a choice between having her at the more expensive MC unit in mine and my sister’s town OR having her 25 minutes away for 30k less a year. My sister and I…
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Father on a fixed income
My dad is located in CA and is living on a small fixed income (less than $2,000 a month). He has zero savings and I am not in a position to help fiscally or in a position to have him live with me. Trying to find any additional help has been impossible. Does anyone know of organizations that help. He is currently in a…
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Early onset of Alzheimer’s and the cost of long term care
Hello All, My mother was diagnosed with early onset of Alzheimer’s in 2015 at the age of 51. She just turned 59, and the disease has progressed significantly. My father had to move her into a memory care unit housed in a nursing facility. She has been unable to take care of herself for years and needs additional one on one…
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Early onset Alzheimer’s (Stage 7)
We knew dad had been struggling for years with depression and insomnia but nothing prepared us for the effects of early onset Alzheimer’s. My mom has always been a working mom, 60 hours a week, every week without taking any sick days. My dad struggled with holding down jobs and was dealing with mental illness year after…
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Need simple companion for someone in nursing home
I need some advice on finding the right companion situation. I can usually find answers to my questions by searching the other posts, but I couldn't find exactly what I needed this time. My mom has late-stage Alzheimer's & went into a nursing home about a year ago. It's a lovely facility with wonderful staff, especially in…
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Figuring out double rent
Hi there! Has anyone experienced this and how did you handle it? My In-laws currently rent. My Mother in Law is considering downsizing to an independent living apartment at a community that also has assisted and memory care available. My Father in Law has dementia and we suspect in less than a year he'll need memory care.…
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Is Dad ready to transition to an Assisted Living Facility?
Hello everyone. I'm new here. My father was diagnosed with dementia 3+ years ago and has been living with me since then. I consider myself to be fairly patient and laid-back, but my dad has certainly tested these qualities more often recently. Financially, he doesn't qualify for MediCal but we also can't afford a facility…
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Am I Crazy?
My sister's day care is closing in a few weeks. The owner of her day care has another location we can send her to. It's only a few miles further than the current location, but traffic is worse, making transporting her more difficult. I've arranged transportation through an organization that provides rides to the disabled…
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Need volunteers and Adult Day Care in Seymour area
I am caring for a spouse and have no relief at all. I cannot seem to find any volunteers to come and stay with him for a few hours or an adult day care in the area to give me some time that is not costly. Does anyone know of any services in my area that might help, we don't qualify for Medicaid or Veteran aid unless we…
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Mom wandered for the first time. Ready to give up on doing it myself (NYC)
I've been doing this for about 3 years now, It's exhausting, frustrating, but it was all I knew. She's EO (66 now) I love my mother but at the risk of sounding selfish I want to start the process ASAP of getting her proper care that doesn't involve me staying by her side 24/7. Because now I don't know when she'll just up…
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Daughters caregiver rights Hawaii ,Pay has been cut off .
I am the youngest daughter careing for my 83 yr old mom with middle stage dementia ( not formally diagnosed).She has been living in my cottage for 1 year now with her 15 year old dog ,the love of her life.After a Small bowel obstuction surgery and 10 days in the hospital ,my mom had quite a big decline in her memory and…