Cost of Care

My dad is in an assisted living facility and my siblings and I are doing our best to try to do what is best for him. I have been looking for a support group, but they are all during the day geared toward retired care gives. I would like to find or start a group for adult children in the evening or weekend. Is there any…

Hi all, I'm new here. I have a much older sister in her mid-70s (one who I hardly knew growing up) who lives in another county, about an hour away—still in her own apartment. The only other family member is our brother, closer in age to her, who lives a bit closer to her, but is rarely involved. As I agreed years ago to be…

Although given preliminary FDA approval in July, has anyone had experience getting insurance coverage for weekly home injections instead of infusions every two weeks?

Hi, I am looking for support on finding in home care for my dad once or twice a week and how to navigate it financially. He is not on Medicare and early onset. My parents also most likely would not qualify for free services but cannot afford most private pay places. I am trying to find something in the middle near bucks…

My 87 y/o mother is in the early stages of Alzheimer's and lives in an apartment building that has stairs to get to her apartment. We have been looking at a smaller apartment that she could purchase that has no stairs for entry. At this point she is still able to do everything except more executive function type things…

Hi everyone! I hope you and all of our loved ones are doing well. I (27 F) am one of three care givers for my mama (62 F). I have just recently felt as if I have a handle on her Alzheimer's, but am wondering if I'm missing anything that I can set up for her/us to support us some more as she continues to progress. So far I…

Hello, My dad is being discharged from a hospital soon after treatment for a blood clot and heart failure. We aren't sure what is primary right now, the heart disease or the memory loss, but he's very immobile so we're afraid he'll get a clot again. He lives with my mother and my disabled sister (my mom has her hands very…

My daddy has had dementia for awhile. He was walking and following directions while he was with my mother in assisted living. They actually were quite active. Unfortunately, they were not in a facility that provided good care. I received a call informed me that my dad's legs were swollen. I checked them and took him to the…

Hello, My mom was recently diagnosed with Alzheimer’s. She’s only 63, so we are highly unprepared for this. To make matters worse, she has very little money saved and my family is not a position to help financially. She also lives in CA while I’m in WA state adding more hurdles to finding her adequate help. We’ve set up…

Fellow travelers: I recently learned that a PWD may have progressed beyond a point where Memory Care will take them. I've always assumed that at some point I might need to put my DH in Memory Care, but the idea was always to have him stay home as long as it was not too difficult and/or expensive to care for him. (I work…

Hi. Just signed up. My first time on here. Mom was just diagnosed with Alzheimers. I am not sure what my steps are to get her everything she needs and where I can obtain from a financial point and medical care (medicaid??, walker, assistance) She lives alone and is in early to mid stage. Any suggestions? We live in NY. Are…

My 75yo father has been experiencing memory issues for years. We just received the alz diagnosis with a blood test confirmation. Living alone, no family other than me, driving, medications, food, safety, poa - all of it is a lot, but we are navigating. My biggest question and concern is where and how to navigate his…

Hello all thank you for providing a network of caregivers to help guide others through this horrible disease. My grandfather was officially diagnosed over a year ago with Alzheimer's. I am his MPOA and am new to all of this. I am just wondering if anyone has any advice on the following. He has UHC Medicare Advantage and I…

https://www.nytimes.com/2025/11/24/opinion/caregiving-crisis.html?unlocked_article_code=1.308.kBxI.CmNVAb2397Tf&smid=url-share

My DH seems to be advancing rapidly in his disease; he is only 61. I feel guilty that it's because I can't provide the level of care he needs. We've made too many trips to the ER lately. Most recently, he fell out of bed, tripped on a metal step stool, broke it, and then snapped the stabilizing bar, and it stabbed him in…

I know this is not the forum for this but this group may have some good advice and resources to look at, that we may all benefit from Thank you

My mother has lost a lot of functionality since receiving her Lewy Body Dementia diagnosis a year ago. She now needs some help with toileting, dressing, and has shown a reluctance to eat regularly. We are concerned that she may need full-time care and that my father can't support her anymore, but the costs of care are…

Hi! I have never been on here before. My dad was diagnosed with vascular dementia years ago after insisting my mom bring him in. I have a fractured relationship with my mom and she is his primary caregiver. Lately my dad seems to be declining. He is disoriented at night, getting up and spilling things, having toileting…

My husband is only 61. The confusion started 3 years ago. In the last 7 weeks he has decided fast - no longer uses the restroom, does not eat, have to force him. Can stay up for 2 to 3 days with our much sleep (cat naps - 15 to 30 minutes), constantly pacing, has left the house in the middle of the night with no shoes,…

My mom has alzheimers and my dad is her primary caregiver, I am with her every saturday. It is to the point that my mom cannot be left alone and I am worried about my dad. I am looking for adult day services or in home companion care in my area to give my Dad a break- Beaverton, Hillsboro, Aloha, OR, I am completely…

My 75-year-old grandmother was diagnosed a year ago with moderate dementia, which has now later turned into an Alzheimer's diagnosis. She is starting to slowly have "out-of-mind" episodes, confusing a very close family member with their parent (her son), etc. while these are infrequent as of now, they are suddenly onset…

I'm obviously a newbie to this site, as well as the amazing and mysterious world of Alzheimer’s. I began seeing a neurologist last summer because of an inability to think as clearly as I once did. Memory didn't seem like much of a problem since as far as I can remember, I always had a bad memory. Other issues that I…

Hello, I live a plane flight or 1.5-days driving away from my mom and I am only son. She has dementia and lives alone with her dog and cat. I can see her deterioration and have taken over all of her bills, taxes, online shopping, ordering food deliveries, etc for her. I have three children (teenagers) living with me and…

Hi, I am posting for the first time regarding my 83 year old Grandma. She has had cognitive and memory issues for years, but in the past month she was properly diagnosed with dementia. I had previously lived with her 3 years ago after she was a scam victim, but after about a half of year, I moved back home. I am now…

Mom was diagnosed a little over a year and a half ago with dementia and stage 4 kidney disease. There's a boyfriend in the picture who does not live with her - she's still living alone. There's strong feelings that he's not sticking around for the right reasons. Today, he inquired again about being reimbursed for doing…

hi community, just wanted to get advice on how to finance your DH staying at a memory care facility. Does insurance cover that?

Hi! Anyone out there on Leqembi and have Medicare? My wife is on Leqembi and just turned 65 and signed up for original Part A and B Medicare. We’re wondering how much Medicare pays for Leqembi? And how much is left over for the patient to pay? The first few infusions were given when she was still on my BCBS insurance. So…

My father has developed a tendency to break appliances in our home, adding a new layer of complexity to our responsibilities. Over time, he has managed to break the washing machine, dryer, oven, and now the refrigerator, which is barely functioning due to the damage. We have been left to find alternative solutions for…

Our father has been cutting out holes in the walls, creating a significant challenge for my sister and I. We have so many repairs to do after he dies. We have found that taking away tools does not deter him from causing damage, as he resorts to using alternative objects, such as metal rods or other items he can find in the…