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Untreated Nurosyphilis Dementia
We've quickly realized the importance of connecting with others who understand what we're going through. We're currently caring for our father, who has been suffering from untreated Neurosyphilis, GPI, Tabes Dorsalis, and dementia for several years now. Despite our best efforts to convince him to seek treatment, he has…
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What does Ptau 712 mean for Lecanemab?
Hello. My mother was diagnosed earlier this year with MCI and we just got to a neurologist last week. Her Ptau 712 came out at 1.7. I am having a hard time understanding this except that it is an "abnormal" score — but from what I can tell online it seems quite high. Can anyone offer any perspective here? Do people stop…
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Waiting for Dr in Chicago
Finally got a referral for my LO for a neurologist at a clinic specializing in dementia and they can’t see my LO until February of 2025. Is that normal? (I’m new at this) My LO recently got an MCI diagnosis. We are seeking treatment and I worry things could change a lot in 8 months.
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Having NO LUCK getting mom an appt with a Neurologist
I am in South Carolina, just south of Charlotte, so not in a rural area or anything like that. I have been attempting to get my mom AN APPOINTMENT with a neurologist for OVER A YEAR, I've had her primary care doctor send in referrals to every neurologist in a 20 mile radius and I've called them myself, only to leave voice…
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looking for some hearts and souls that understand
Hello Dear Community, Dad and I went to a neurologist appointment today to get him established with someone here after his move closer to me. You all have supported me through so much already. I thank you. It was our first time out together since his move here in late June. It was good to be out with him. I was so nervous…
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Doctor appointments
Hi all, My mom (69) was recently diagnosed with Alzheimer's and I (28) am her caregiver. It's difficult being so young and trying to figure some things out on my own. I don't have any experience and no one in my family does either. I am learning as I go. Since my mom has started her diagnosis journey, she finds every…
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Argumentative
Hi new here my mom has had dementia for 2 years she thinks she can do whatever she want .she cancels dr appointments when she knows they Important and she argues with me she not going she does have other health issues I don't know how to help her understand how to get her to go without a argument
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Trying to get diagnosis for resistant DH
This is my first post, though I’ve been lurking for a while. I have many questions, but right now I need advice on how to handle the portal message I am sending to our PCP prior to my 69 yo DH's appointment next week. First, some background: My DH is 69 and has been having noticeable issues for 3-4 years (noticeable to me,…
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Getting a diagnosis for someone refusing to notify a doctor
New here! My mother doesn't have a diagnosis yet--she's been refusing to address her memory loss issues or tell her doctor what is going on. My stepfather has been helping her with routine tasks and even going with her to doctor's appointments (for unrelated issues), which has masked her loss of cognitive function. Earlier…
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Trying to Help my Mother with Memory Loss
Hello all, This is my first post. I am an only child and my parents live a 7 hour car drive away. Last year, I noticed that my mother was experiencing memory loss, but my father is in denial. Last May, I went up to visit and got her to see a neurologist. Her memory loss has gotten worse. She can't remember how many days…
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Suspected Alzheimer’s/dementia
My mom is 57. She is forgetting the answers to questions five minutes after they’re answered and forgetting what store we bought something at when we were there the day before. She didn’t remember making a decision about travel plans until I reminded her of the decision and told her why. She feels like it’s nothing. I’m…
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After EEG and MRI - Questions for Doctor
After reading here for a while, and becoming familiar with the Tam Cummings assessment tool I have some ideas of what's coming. I have read here that a good strategy is to provide the Dr a list of questions/concerns to be addressed during the appointment, but to do it out of sight of the PWD. There are things I've read…
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Wife refuses medical help
After 3-4 years of increasing memory loss, Finlay was able to get DW to her PCP (prescribed sertraline for anxiety) and neurophysiological testing. Diagnosed with presumptive AD but she is in denial and refuses further follow up. Related: about 12 months ago she began to not recognize me. Not sure what to do
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Just starting journey…
My MIL has not been formally diagnosed with Alzheimer’s, but her mother had it and we have no doubt. She lives with my FIL, and we just went to visit after about 3 months absence. I had my doubts that she knew who we were before, but now she absolutely doesn’t know us. She calls us “hon” as a general catch all. She does…
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Upcoming Geriatrician Appt; questions to ask?
My mom has her appt w/ the geriatrician coming up on Wednesday. The day before, I'm scheduled for a phone appointment with a social worker. I have some general questions, but am wondering either what questions you wish you had asked or what are good questions to ask at a first geriatrician appt? I know primarily the appt…
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Primary Care (PC) Doctor is Undermining the Neurologist
Because Alzheimers runs significantly in my mother's family (killed my grandmother and three of her sisters), I knew as soon as I started seeing tale tell signs in my mother I knew what was happening. After many, many months I finally convinced her to see a neurologist. So I asked her doctor for recommendations for a…
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Neurologist visit questions
I am bringing my DH to a new neurologist tmrw. He is in the early stage of Alzheimer’s, and has already been evaluated by a neuropsych. Any suggestions on questions to ask, tests that should be done (CT scan suggested), other advice?
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Doctors appointments help!
I just took my mom yesterday to a new primary care. I just moved her closer to me and so we are starting from ground zero. She was undiagnosed before she left her last doctor but had taken a cognitive test and shows signs of dementia. Anyway, at this doctors appointment she told the doctor absolutely nothing. Told her she…
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Driving - got Mom’s doctor to have “the talk” - I feel so guilty
This is my first post. I apologize it’s so long. My 94 y.o. mother was diagnosed with dementia in July (mixed ALZ/vascular). I’d say she’s gone from stage 3 to stage 4 in just a few months. My brothers and I have been trying to get her stop driving. We encouraged her to take advantage of the on-call driver in her CCRC…
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Nursing Support for Hospital Visits
Hi All! I'm new to this group. My sister has dementia we believe due to vascular system issues. She lives in a Memory Care facility. Recently, she's had some health issues with declined responsiveness. The facility sends her to the ER via ambulance. The issue is I'm in FL and she is in MO. It frightens me that she is going…
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Grandma refuses to see psychiatrist
I'm primary caretaker to my Grammie, who has multi-infarct vascular dementia. She's still in early stages and very present, but has recently developed compulsive behaviors, heightened anxiety, and obsessive thinking. I'm not sure if she has anosognosia or is uncomfortable with acknowledging these issues, but she refuses to…
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Caregivers and doctors' appointments
My 88-year-old mom has mid-stage Alzheimer's. She lives in an independent living apartment in a continuing care facility. She can physically do everything to care for herself but can't always remember to do them. Sometimes she can't remember what I've said a few minutes after I've said them. I live 20 minutes away from…
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Fall on vacation, broken bones & worse dementia
So my mother owns a house where she and my father lived before he passed away. She insists on going there every summer since we convinced her winters are too harsh in lake effect snow, and until this year we had no problems because my sister is a school teacher and goes with her every year. Unfortunately this year mom had…
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If I Had One Wish…
…it would be that all medical professionals dealing with caregiver’s listen to them and treat them with as much care and respect as was perhaps taught to them in medical school. I am my husband’s caregiver. His primary care doc referred us to a home health agency. After a brief period of service provision - I requested a…
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Talking to doctors
My mom is the caregiver for my dad. Even with parents permission I have not been able to get his neurologist to tell me any thing and my mom doesn’t ask technical questions about his illness. I do t know what his diagnosis even is.
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Help finding a doctor for my mother
Hello. This is my first time on this forum. I am a daughter starting to support my mother who is showing signs of cognitive loss. I live out of state from her and need advice on how to find a good medical provider for her to see to get a diagnosis and start treatments.
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Getting mom with dementia to a doctor; what other options might we have?
My 69-year old mom has been increasingly showing signs of dementia for the last decade. She never saw a doctor for this (did not even discuss it with her PCP), until the situation exploded: about 18 months ago, she was basically having psychotic episodes in the middle of the night. It got so bad, she ended up in the…