Have any questions about how to use the community? Check out the Help Discussion.

Help with getting a diagnosis

Options
mooreal
mooreal Member Posts: 3
First Comment
Member
My DH has many AD symptoms. I've called his Drs office and notes were made to give to his med team. He refuses to let me accompany him for checkups. His false accusations, hallucinations and "hearing" things are really affecting my health.
What more can I do, I'm at the point of leaving.

Comments

  • H1235
    H1235 Member Posts: 960
    250 Likes 500 Comments 100 Insightfuls Reactions 100 Care Reactions
    Member

    Welcome. So sorry you have to be here. Is there a patient portal available? If he doesn’t use it you could sign him up and get information that way. Do you have hipaa rights? Could you just call the office and get information after the appointment? If he is having hallucinations and hearing things I hope he’s not driving. What if you just went to the appointment with him and let the chips fall where they may. If he acts up in front of the doctor maybe there would be some urgency to diagnose and treatment. If you ever feel unsafe I would not hesitate to call 911. If he is taken to the hospital you could then request a psychiatric evaluation.

    A person with dementia often has anosognosia. This is the inability to recognize their symptoms and limitations. If you are pointing out his symptoms this is probably not going to go well. It usually works best to use work arounds or fibs to get them to do what you need. This is still not easy and it takes time to get used to this approach(and even then may not work). So ask to go with him because you want to quickly ask the doctor about something to do with your health (I know that’s not the way things are done, but it might work). Or maybe you need to schedule an appointment for yourself, or have a question about the bill. I hope you can find a solution.

  • mooreal
    mooreal Member Posts: 3
    First Comment
    Member

    Thank you for the suggestions.

  • Chris20cm
    Chris20cm Member Posts: 44
    25 Care Reactions 25 Likes 10 Comments 5 Insightfuls Reactions
    Member

    I went through the same thing with DW and the hostility and paranoia were intolerable. Seroquel (Quetiapine) pretty much solved that problem, with the side benefit that she sleeps a lot and that gives me a couple of hours of refreshing solitude most mornings. She takes both Zoloft and Quetiapine which seem to be the right combination for both of us to get through each day. She is in stage 6 of AD now.

  • mooreal
    mooreal Member Posts: 3
    First Comment
    Member

    Thank you for the reply Chris. Our reg GP retired in Feb and he actually had prescribed both of those meds, although no true dementia tests have been done. They maybe (?) helped a little, but DH decided he was only going to take his BP and chloresterol meds 🤷. They did help him sleep, now he sleeps a bit from 11-3 or 4. He mostly stays in the hot, humid yard working. If he stops, he immediately sleeps. He scares me driving but still does.

  • Lgb35
    Lgb35 Member Posts: 145
    100 Comments Second Anniversary 25 Likes 25 Care Reactions
    Member

    do you have a new GP? I set up the patient portal for my DH for all of his doctors. I have sent the doctor messages about things so I don’t have to say it in front of him. Also if you have access to the portal you can see the after visit summary and sometimes you can see notes.

    Maybe you could say you want to go out to eat after his appointment so you should just tag along

  • SDianeL
    SDianeL Member Posts: 1,735
    500 Insightfuls Reactions 500 Likes 1000 Comments 500 Care Reactions
    Member

    So sorry you are going through this. I would go with him to the doctor and go in. Let him get upset. I would ask to speak to the doctor privately. Make up a fib about why. I would Take away his keys or disable the car. If he’s in an accident you could be sued and lose everything. Ask the pharmacist if the meds are able to be crushed and if so, put the medication in his food. His reasoner is broken and he doesn’t know he has memory issues. I would immediately take control of everything. We understand how difficult that is.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more