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Seeking Advise - I am 25
I am 25 and my mother was diagnosed with early onset Alzheimer’s at 60. I am new here and need help knowing what to do. She’s about in the mild/moderate stage. My father passed away 2 years ago and the only family around is my younger brother who is 22. She has a sister that lives about two hours away. Family and friends…
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Compassionate Use or Expanded Access options
Is anyone getting any therapies through Compassionate Use or Expanded Access programs? I saw a comment from someone in a Facebook group who was considering TB006 a compound being developed by True Binding. So it made me wonder if anyone here has considered it or other experimental options that are in development.
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Help needed… grandfather thinks he fell in love with a nurse and had a big outburst, dementia?
I'll try to keep this as short as possible. My grandfather recently had a toe amputated about two weeks ago as it became infected (diabetic). He had to then come home on IV antibiotics, that I was to administer (i'm his grandson and POA). One day when I went to visit, a few days after the surgery, he had a nurse in his…
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Waiting for Dr in Chicago
Finally got a referral for my LO for a neurologist at a clinic specializing in dementia and they can’t see my LO until February of 2025. Is that normal? (I’m new at this) My LO recently got an MCI diagnosis. We are seeking treatment and I worry things could change a lot in 8 months.
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Mom has AD and husband abandoned her.
I am writing this because I don’t know where else to turn and I’m hoping somebody out there has gone through something similar. My mother and stepfather have been married for 21 years and I’ve had a pretty happy marriage. My stepfather came down with Parkinson’s a few years ago and is in the later stages now and in an AL…
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Conflicting Neuroquant MRI and Petscan
I am have started Kisunla infusions, and after my first treatment I had a “ neuroquant MRI” in order to detect if there has been any brain hemorrhages due to the medication. The results fortunately came back negative and the report also mentioned that I do not have brain atrophy. Other MRIs have said I have more brain…
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New to forum just diagnosed with Amnestic MCI due to Alzheimers
After 7 months of testing, starting with Parkinson’s, which came back negative I have been diagnosed with MCI due to Alzheimer’s. I have had multiple cognitive tests, neuropsychological testing, blood work for Alzheimer’s bio markers (strongly positve for tau and amyloid) and now 2 positive Pet Scans I started Kisunla last…
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Medicare and Leqembi
Hi! Anyone out there on Leqembi and have Medicare? My wife is on Leqembi and just turned 65 and signed up for original Part A and B Medicare. We’re wondering how much Medicare pays for Leqembi? And how much is left over for the patient to pay? The first few infusions were given when she was still on my BCBS insurance. So…
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long distance - Mom refuses to be evaluated & Dad isn't taking action
My parents live in a different city, and we are deeply concerned about my mom’s health. She is 78 and has been showing signs of memory loss for the last couple of years, which are progressively worsening. She refuses to acknowledge the issue, won’t allow herself to be formally diagnosed, and has made my dad promise not to…
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Lecanemab 3 year data
We listened to a presentation the other day by doctor at Duke University. He mentioned there is 3 year data now on lecanemab. He presented the info in a support group for those who are getting lecanemab or who may be interested in getting it. Open Label Extension Data Shows Lecanemab’s Continued Effect on Alzheimer Disease…
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What is the best way to track cognitive changes?
I have asked my neurologist how I could get a neuropsychological assessment for the MCI that was picked up in a screening. They still have not found a cause. Is this the best way to track cognitive changes to get one of these assessments and have it redone periodically? If so, how often? Or is another method better? I…
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Looking for Support: MCI Diagnosis with Normal Test Results at 51
Hi everyone. I'm looking for others who might have gone through something similar. I'm 51 and recently received a diagnosis of mild cognitive impairment (MCI) after experiencing memory issues, headaches, and possibly some minor balance issues. Given that my mother has Alzheimer's (I'm her primary caregiver), this diagnosis…
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New research on the timeline of Alzheimer's
Research is being called "ground breaking" Alzheimer’s May Progress in Two Phases, Transforming Understanding of Brain Damage - CogniFit Blog: Brain Health News
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Support group
My 76 year old wife was diagnosed in September with moderate Alzheimer's just 10 months after an initial MCI diagnosis. Luckily I have lots of local family support. I've just registered for an in-person support group. What can I expect from the meeting?
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Legal and Financial Transition
MY DH is in early stages of dementia, but I can see it accelerating. We need to shift responsibilities to me and also to our adult son. Though we own our assets and make decisions jointly, and it was he who insisted we revisit (together) our wills recently (thank goodness) DH has held the legal/financial reins for over 40…
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Moderate Sedation with MCI
I’m 51 and scored in the MCI range on a recent cognitive screening when I told a neurologist I felt like I had memory issues. The cause is still being determined. Initial blood tests show it’s likely not Alzheimer’s, though I still have an MRI and sleep eeg. That said, my mother has Alzheimer’s, as likely my paternal…
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When to move?
My husband was diagnosed with MCI a year ago and is declining. We had planned to downsize, but now I'm wondering if that would be too disorienting for him. He already carries a lot of anxiety before this diagnosis, and I worry that a move will accelerate his condition. On the other hand, it really is time to get out of…
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Mom with MCI and low dbp
Hello dear community, I usually come to you with questions about Dad in MC. This time I am concerned for my Mom. She still lives independently with an MCI diagnosis. Last fall and winter were really rough for her. So as daylight lessens and chily nights creep in I find myself watching her even more than usual. Anyway, she…
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When do you take the keys?
mom is in the early stages. She loses her phone and is surprised that all she needs is her pocket book to start the car (keyless ignition and “key” in her purse). She does drive to the same three places all the time and the doctor said she passed “that part” of the cognitive test. Given that she came to my house the other…
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The End of Alzheimer's
Hello, i'm new here. Months ago, my husband asked if i'd research Alzheimer's for him. He's noticing some congnitive decline. i resisted but then this book came to me: "The End of Alzheimer's" by Dr. Dale E. Bredesen. i read it and am 1/2 through his next book: "The End of Alzheimer's Program". i'm wondered if anyone here…
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Uncomfortable question
My DH watched his parents both go through Alzheimer's/Dementia and it terrified him. He always said "if I ever get like that please let me take my life". He was serious. Now he is at the beginning of this awful disease and on numerous occasions he has said to please let him take his life and "please don't let me live like…
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Scared and Sad
:'( I am new to this site. I was recently diagnosed with Mild Cognitive Impairment (MCI). I am a 51 year old woman. I have been married to the love of my life for over 25 years. We have a 23 year old daughter. This diagnosis has become devastating news to our family. I am scared, angry, sad, and unsure about what is…
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Losing my mom...
Hello. I'm 100% new around these parts, but I was encouraged by the counselor I spoke with at the Alzheimer's Association to post my story here in search of those with shared experiences. I (53) live in Texas with my wife, and my mom (83) lives in Miami, FL. Since moving to Texas in late 2012, I've traveled back to Miami…
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Questionnaire d'enquête
Bonjour à tous, J'effectue une enquête dans le cadre de ma formation qui porte sur "La nutrition peut-elle améliorer les troubles cognitifs dans la maladie d'Alzheimer et les maladies apparentées ?" et j'aurai besoin du témoignage de personnes touchées par cette maladie neurodégénérative ou les aidants d'une personne…
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cross-post: looking to trade visits with someone in Nashville who's parent is in San Fran Bay
hi there this is my first post and I’m so grateful to be here and for this community. My dad has recently been diagnosed with mild cognitive decline though once he quit drinking, I’m hoping he gets that diagnosis revisited. I’m exploring alternatives to the horrific options that I see in terms of forcing him into memory…
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Employment
Does anyone have any suggestions for employment for my husband who has early onset of dementia/mild cognitive impairment? He recently retired from teaching and still would like to do some type of work. Technology is not a strength of his. Does anyone have a loved one that is working with early onset? Any information would…
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Dementia diagnosis first post
My DH was diagnosed with MCI and we were told he had Dementia. How can we get a more accurate diagnosis? His neurologist said there is not currently a way to diagnose whether he has Alzheimer’s, that is covered by Medicare. Does anyone know something I can do? Thank you
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Overwhelmed
Hi everyone, I'm new to the group. I'm the caregiver to my husband who was diagnosed 4 years ago with MCI. Since then we have seen a neurologist and he is now at early onset Alzheimers. I'm feeling overwhelmed with things at this point. I just need to know that things will be OK.
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Unsure about my diagnosis
I had a brain scan that showed my hippocampus is at 5%, but no tau tangles so it’s not Alz. My speech is slower then it was, I forget things all the time, I have trouble with thinking things through. My emotions are ridiculous. How long before I’m lost?
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Neuropsych testing
When your LO has received neuropsych testing, were you given a copy of the results? I was not told anything other than DH has mild cognitive impairment and this was reported to us by his primary care doctor. I somehow feel we are missing indepth information.