Have any questions about how to use the community? Check out the Help Discussion.

My husband has MCI and blind on rt side.

He’s has Mild Vascular Neuro Cognitive Dementia. I’m exhausted. And I Cry.

Comments

  • harrisonro
    harrisonro Member Posts: 1
    First Comment
    Member
    I can relate! My wife is having difficulty and sometimes, as her primary caregiver, I can “lose it!” I must remind myself all the time that it is not her fault.
  • cindie-san
    cindie-san Member Posts: 8
    5 Care Reactions First Comment
    Member

    There is so much responsibility for me. I take care of everything but he has his chores😊 which I’m thankful for.
    He gets so mad at me when I try to tell him something and it sounds like I’m angry.
    I have to be so careful.

    And it takes 3 or so times to have him come in for dinner when he’s in the garage.

  • cindie-san
    cindie-san Member Posts: 8
    5 Care Reactions First Comment
    Member

    we are supposed to leave at 5pm it’s now 4:18. I got his clothes ready. He’s walking to the garage. I said we need to leave @ 5 and it’s important. He said 2x “I hear you”.

    This happens all the time. No gage of time. I say the serenity prayer to myself over and over. I know it’s his brain. It’s so hard. We pd 150.00 for this fundraiser.

  • l7pla1w2
    l7pla1w2 Member Posts: 246
    100 Likes 100 Care Reactions 100 Comments 25 Insightfuls Reactions
    Member

    It's really hard to keep PWD on-task, I discovered. I always allowed extra time, and I found I had to stand around in nag mode to be sure DW got ready. Even then, it seemed she always had to pee. After she finished dressing, she would then need to pee, which, of course, entailed partially undressing. Once she got downstairs, she had to pee again before we could leave. If she got distracted for some reason and we didn't leave right away, she'd have to pee again. And pee at the destination.

    "Serenity now!"

  • Jazzma
    Jazzma Member Posts: 180
    Sixth Anniversary 250 Care Reactions 100 Likes 100 Comments
    Member

    cindi-san, my daughter offered to get me a pin that says "I cry: it's what I do" to wear in public.

  • SDianeL
    SDianeL Member Posts: 1,592
    500 Likes 1000 Comments 500 Care Reactions 250 Insightfuls Reactions
    Member

    not understanding days, dates and time is one of the first behaviors many with dementia have. Please read the book “The 36 Hour Day” which really helped me after my husband’s diagnosis. Search online for Tam Cummings caregiving videos which also help. Search online for the 7 stages of dementia chart that lists behaviors in each stage. It will prepare you for what may be the next behaviors to surface. Someone posted here that “ you can’t reason with someone whose reasoner is broken” and that was what I repeated to myself all throughout the day. It helped me control my temper.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more