EOAD Last Step
Nine years, two months from official Dx, ( she was 55 years old ).. and we are down to the final days. I kept her at home for six years, and the last three in LTC.. In the days following Christmas ,DW was struggling with swallowing.
As of noon today DW has not taken any food or fluids for 72 hours. The LTC has granted me some visitation with all the proper precautions . The Medical staff is not making predictions, but we all know the ending of this story.
Mike
Comments
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May God comfort you both.0
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Many of us here have been in your shoes. It is a hard place ....and can be sort of surreal. Please know we are with you on this last leg.0
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Very sorry to hear this. You two have had a long hard road and soon she will have ended her journey. She can then rest and be at peace. Remember her as she once was.0
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Dear Laurention, You have done your best, you have given your DW love, comfort, care, respect and dignity. God grant you serenity in the days of sorrow that lie ahead.
Love, ElaineD
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Dear Mike, I'm sorry to know that Carol's journey is coming to an end. I envy the two of you having married so young. I can only imagine the wonderful memories you have. May those memories and God's love sustain you through the coming days, weeks and years.0
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I'm sorry Mike.0
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Keeping you and your wife in my thoughts,0
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Hi Mike ,I am so sorry to hear that the two of you are taking that last step. You and I have much in common. I am from Barrie Ont. and my husband and I both worked for GM in the states. AND sadly DH and I are only a few steps behind you, as my DH is actively dying as well. I am almost there with you. Take care. Wishing you peace and comfort.0
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Mike, I am sorry to hear that Carol is nearing the end. You have been an amazing caregiver for her even after you placed her in LTC. I am happy to hear that you are being allowed some time with her, I will keep you both in my thoghts and prayers
Anne
P.S. Raf (extex) was asking about you last night
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Mike, I'm sorry. I think it's a good thing that you can be with her. That will make it easier for her.0
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So so sad.. My heart breaks with you!0
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Carol ...Was awake for a few hours yesterday ..Her eyes do not track me, but I do notice eye movement when I speak. I truly believe, she knows I'm there ??
Last night I was going through old photos ...(right up to the moment my emotions got the better of me.) ..... In one particular photo we were camping with friends Carol was slugging back a Beer while spoon feeding our one year old.
We should have been arrested. Certainly not for child abuse . Drinking age was 19 ..Carol was 6 months shy of that date., : )
Mike
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Hello! This is my first post. I am new to the boards. Your post touched my heart. Prayers to you it’s been a long road hasn’t it?0
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Laurention wrote:
Carol ...Was awake for a few hours yesterday ..Her eyes do not track me, but I do notice eye movement when I speak. I truly believe, she knows I'm there ??
Mike
Mike...you are right to believe that she knows you are there. I too believe that she recognizes your voice.
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Mike,
Sorry to hear Carol is at the end of her journey. I hope her passing is peaceful. I am glad for you that you can be there for her.Jeff
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Mike, so sorry...you have been a wonderful husband & caregiver, and she absolutely knows you are there...keep talking & saying whatever will help her move on. Tell her you will be there with her very shortly. God has allowed you to be with her and will stay with you both. I am sending prayers.0
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Mike, thank you so much for the update. I believe with all my heart that Carol knew you were with her. I'm happy you get to spend time with her!0
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Thinking of you, Mike, and sending strength and comfort....0
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I am thinking of you too...thank you for the update.0
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She knows your voice. Praying for you both.0
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My heart is breaking for you and my throat is tightening up thinking of the pain you are enduring. My dearest husband is also EOAD and in stage 7 so I feel your pain. Sending you prayers of strength and comfort. Know that you have done everything you could. You have been a wonderful, loving, and caring husband.0
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At noon we enter into day 7 no food or fluids.. Her respiration is erratic, they feel that her kidneys could be shutting down?
I mentioned in another post ...My virus test has expired. ( I'm waiting on an special approval that will allow me to visit today) ... One of my girls does have a valid negative test ..I think she's visiting now?
Mike
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Mike, I'm praying for you and Carol. Thank you for letting us know how she is. I hope you get the special pass to be with her today.0
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Mike, I went through that with my brother, but I can't imagine what it would be like with my wife. I'm sorry it's so hard.0
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Mike,
You and Carol remain in my heart and in my prayers.
-LT
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Mike,
I haven't been on in a really long time. So sorry to hear about Carol.
Cathy
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I know this disease means always leaving our spouses twice, once to the disease, and then finally, once to death. I'm sure you will experience her presence, presence of her better days, in the wit, personality, and character of all those whom she has loved over the years.0
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My prayers are with you. I recently lost my dear wife. It is very hard.
Hold her hand if you can and remember your love for each other.
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I was at her bedside afternoon Friday when Carol drew her last breath. Carol was 28 days short of her 65th birthday.
This site was invaluable to me. So many experienced people willing to share tips and ideas.
Then there was the Chat room !!!! Saturday night parties ..! Virtually socializing way before it was the" in thing" I can't remember all the names "Cathy, Debbie, Anne, come to mind . So many more.. 2014 -15-16 ..You folks literally saved my sanity. I never met y'all.. (did I say that right ? ) ... Up here in Canuckistan we speak and write a slightly different language eh !!
I'll check in from time to time . If I can offer some helpful hints..I will.
Till the next time
Mike
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Sorry for your loss, she is whole once again may you and your family find comfort in the coming days. Stay warm up there.0
Commonly Used Abbreviations
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