Excellent Handout Packet: dementia, stages, CGs, actively dying - Tam Cummings
(Sharing here as well as Spouse/Partner CG Forum) -
Recently there was a post requesting Stage 7 information. The attached includes some staging tools and also 1 pg info sheets on what to expect in final months, weeks, days, hours.
I also am seeing for the first time, a nursing care notes section with Tam Cumming's staging tool that includes how the caregiver is likely progressing (suffering) along with their LOs decline. Sobering, especially the actively dying descriptions of what to expect, but very helpful.
Comments
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An excellent resource; thank you very much.
J.
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My pleasure. I was happy to find it and always glad to share.
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ttt
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ttt
Can we pin this???
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ttt
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That’s really great info. I found the Stage 7 section very accurate. I also appreciated the Stage “ 8” part about grieving after it.
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thanks so much. My DH is going toward Late Stage 5. This made me cry. Hard to read but necessary to know.
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ttt
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Sobering and a difficult read, but really useful. I'm going to share this with my small Team Peggy group.
I'm with @harshedbuzz -- is there a way we can pin this?
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I agree…I linked to it in a post, but couldn’t remember who initially brought it here—sorry BW. I think it, and ‘The Dementia Experience”, and Iris’s book thread shouldbe pinned as resources.
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ttt
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HB - thank you for sending this back to top. Wow! BW - thank you for sharing.
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Thank you! I’ve passed it on to other brave warriors who don’t come here.
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ttt
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It's that time again.
ttt
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Thanks HB
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Thank You for all of this great information! I appreciate it!
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It's that time again.
ttt
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ttt
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ttt
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Thanks for staying on top of this, HB. I just reviewed it again and we have stepped into Stage 7, no question. Sad but inevitable, unless my LO was lucky enough to check out of this heartbreak hotel before now. That is not the case so far, so...here we are.
When I shared the resource, I tried to stay a bit detached from what it currently means for my DH and me. We are approaching the last years if he actually has to suffer through all of 7, which is possible due to his otherwise overall good health. I really, really, hoped he'd be spared the worst. I'll do a separate post on this.
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whats with the ttt? Is this a way to keep the discussion active or does it mean something? Thanks!
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"ttt" means take to the top.
It's a means of keeping it on the front page where new members might see it when they first visit. Another option would be for a moderator to "pin" it, so it remains at the top of the posts. Despite the suggestion, it hasn't happened.
HB
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Thanks so much for this resource. It helps me see that my Mom is at Stage 3 😕, and this document will help me tremendously in getting a diagnosis very soon.
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ttt
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Thank you for this. Found it tonight and will be looking through it
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Thank you for this. I have never seen this document before and for once, I can understand what stage my DH appears to be in.
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> @ButterflyWings said:
> (Sharing here as well as Spouse/Partner CG Forum) -
> Recently there was a post requesting Stage 7 information. The attached includes some staging tools and also 1 pg info sheets on what to expect in final months, weeks, days, hours.
> I also am seeing for the first time, a nursing care notes section with Tam Cumming's staging tool that includes how the caregiver is likely progressing (suffering) along with their LOs decline. Sobering, especially the actively dying descriptions of what to expect, but very helpful.
> Tam-Cummings-LLC-Handouts.pdf (tala.org)
Thank you for this. It helps me understand what She's going through and why.1 -
There is a newer version (2022) of the Dementia Behavioral Assessment Tool (DBAT) on Tam Cummings website. https://www.tamcummings.com/tools
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Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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