Have any questions about how to use the community? Check out the Help Discussion.

Alz in Atx

deftlymaneuver
deftlymaneuver Member Posts: 2
First Comment
Member
Hi all – – I just joined the community today because, as many of you can understand, it’s really hard to see your loved one slip away.

My mother has had Alzheimer’s for a year or two, and recently she has been very up-and-down with what she is understanding and knowing where she is, etc. She frequently thinks her parents are alive, even though they died almost 10 years ago. at first, I resisted the comforting lies, and wanted to contradict her, but I’m starting to go with the flow and let her believe things without interfering.

She has been an independent woman for a long time since her husband passed away many years ago. Moving her to aShe has been an independent woman for a long time since her husband passed away many years ago. Moving her to a retirement home was necessary, because it became unsafe for her to be at home, but unsurprisingly. She has not been a cheerleader for the new situation.

My mother has been a very caring woman and has always helped other people for her entire life – – she worked in special education, and always took care of those less fortunate. When she sees the dementia patients around her, she often thinks that she is at work, helping those with mental difficulties.

I just needed to connect with a few other people who are experiencing this process . Writing this out is great, but I was also hoping to talk to people who are experiencing the same process – – is there a zoom support group or something else out there?

Thanks.

Comments

  • Anonymousjpl123
    Anonymousjpl123 Member Posts: 698
    500 Comments 100 Likes 100 Care Reactions Second Anniversary
    Member

    @deftlymaneuver it’s so hard to watch a person you know change before your eyes and lose their independence, and many of the traits you knew them for. This is very good place where many people are going through exactly what you are. I’m glad you found a safe place for your mom.

    No one loves these situations or the retirement communities, but I can share - truthfully - after some bumps my mom has really adjusted to hers. So it can happen. her disease is progressing, which is awful, but she is not unhappy with her surroundings. She does get sad when she sees people she knew from assisted living (in memory care now), but also really does find comfort where she lives.

    There are in person groups in almost every state, and this is a very good place to read others’ experiences and know you are not alone. Plus you can vent any time. I am sorry you are going through this but glad you found this site and the resources here.

  • deftlymaneuver
    deftlymaneuver Member Posts: 2
    First Comment
    Member

    thanks for your response. I asked about zoom because I have moved to Europe, and it would be great to find an online community since I travel a great deal.

    thank you for the welcome message.

  • mommyandme (m&m)
    mommyandme (m&m) Member Posts: 1,468
    1000 Comments Fourth Anniversary 100 Care Reactions 100 Likes
    Member
    edited March 27

    Glad you came here but sorry for the need. If you call the Alzheimer’s Association hotline they may be able to help.

    1-800-272-3900

    Covid allowed for many zoom support groups. I’m sure there are still some available. Since I’m in the US I just used my zip code to find them. If you go to the link below and then to find support groups that might work too, I guess if you use a US zip code? The hotline consultant will likely be more help.

    Keep coming back with any questions, concerns, vents, shares etc…

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more