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Husband with MCI-vascular brain damage and 2 little kids

Hello. My husband has MCI due to vascular brain damage. I work fulltime and am the sole provider. My husband is 74. I am 54. Our kids are 9 and 13. I have 2 questions. (1) How do I find a CELA in my area? (2) Is there a support group for kids?

Thanks, Kristi

Comments

  • Jeanne C.
    Jeanne C. Member Posts: 828
    500 Care Reactions 500 Comments 250 Likes 100 Insightfuls Reactions
    Member

    Hi Kristi and welcome. I'm sorry you and your family are going through this.

    Look for a CELA at https://nelf.org

    I don't have any experience with it, but I believe https://lorenzoshouse.org/ has information for kids whose parents have dementia. You may also want to call the Alzheimer's Association helpline (bottom of page) to see if they have information.

    There's a lot of other information saved in the New Caregivers group.

    DDon't hesitate to ask questions, vent, and chat with the members of this forum. They're kind and experienced- I know they've been a lifeline for me.

  • Hope5757
    Hope5757 Member Posts: 150
    100 Comments 25 Likes 25 Care Reactions 5 Insightfuls Reactions
    Member

    @khendrickson33 ,

    I’ve never heard of a support group specifically for young children whose parent has dementia. But there are a number of grief support organizations. Maybe start with one of those? I’m sure your 9 year old will have different needs than your 13 year old.

    I’m very sorry your children (and you) are going through this. It’s a difficult journey for everyone, but unthinkable at 9 and 13 years of age.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more