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I would like to speak with someone else who has Alzheimer's

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  • ricardo
    ricardo Member Posts: 189
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  • ricardo
    ricardo Member Posts: 189
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  • Iris L.
    Iris L. Member Posts: 4,412
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    Richard, I had a kind of a shock today. I got diagnosed with heart failure by my cardiologist. Up until now I have had only hypertension.

    I was diagnosed as having cognitive impairment not otherwise specified several years ago, but not Alzheimer's Disease. I have been using Exelon patch and memantine for several years, and they are helping me.

    I have learned quite a lot about living with a progressive debilitating illness. I like to help the newcomers. I hope you and the others continue to support each other.

    Iris

  • ricardo
    ricardo Member Posts: 189
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    wow . Must have been a bit of a shock. Does your cardiologist recommend anything?

  • Iris L.
    Iris L. Member Posts: 4,412
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    Yes, Richard, the cardiologist recommended a change in medication.

    Iris

  • ricardo
    ricardo Member Posts: 189
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    ok that’s good. No PT?

  • ricardo
    ricardo Member Posts: 189
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    I’m blocked due to privacy from viewing your profile

  • Iris L.
    Iris L. Member Posts: 4,412
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    Richard, the doctor did not recommend PT. My profile is not privacy blocked.

    Iris

  • ricardo
    ricardo Member Posts: 189
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    no response?

  • ricardo
    ricardo Member Posts: 189
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    I’m still blocked from viewing your profile

  • ricardo
    ricardo Member Posts: 189
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    I would love to chat with another Alzheimer’s connected individual

  • Iris L.
    Iris L. Member Posts: 4,412
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    edited August 15

    Richard, what would you like to know about me? I posted a long version of my story on April 15, 2024. (Iris' story + MCI).

    Iris

  • ricardo
    ricardo Member Posts: 189
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    I’m 73 w/m recently diagnosed

  • ricardo
    ricardo Member Posts: 189
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    Have very few symptoms

  • David1946
    David1946 Member Posts: 765
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    https://alzconnected.org/discussion/comment/219436#Comment_219436

    ricardo, I am 78 I was diagnosed last fall and it was a shock and my mind is still reeling but with the help of my wife I am learning to live with it. With all the meds that I am on. I am having no more nightmares I would wake up screaming NO! ! NO!! NO!! I no longer drive per doctors' orders. David

  • ricardo
    ricardo Member Posts: 189
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    Richard here. Anyone around?

  • ricardo
    ricardo Member Posts: 189
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    Spent yesterday alone for most of the day. Coffee on porch, reading and a little TV

  • Iris L.
    Iris L. Member Posts: 4,412
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    Richard, are you satisfied with your daily activities? Is there a way for you to get out?

    Iris

  • David1946
    David1946 Member Posts: 765
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    https://alzconnected.org/discussion/comment/219489#Comment_219489

    Why don't you go to Senior Center i did when my wife died and it helped me a lot.

  • ricardo
    ricardo Member Posts: 189
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    I don’t need a center as I usually have alot of family with me. Yesterday was not a routine day. Thanks anyway

  • ricardo
    ricardo Member Posts: 189
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    https://alzconnected.org/discussion/comment/219436#Comment_219436

    Your profile is still marked private

  • ricardo
    ricardo Member Posts: 189
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    Anyone else trying cannabis. The Canadians and Australians do as do I? Thoughts ?

  • ricardo
    ricardo Member Posts: 189
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    anyone?

  • llkahl
    llkahl Member Posts: 6
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    https://alzconnected.org/discussion/comment/218990#Comment_218990

    (M72) diagnosed with mild to moderate Alzheimer’s 2 days ago. Was put on Memantine and Donepezil , currently at 10 mg. Each, Mem. 2X/day,- Don. 1X a.m. The medications have been phenomenal. I have clarity, focus, energy, and motivation. Before that it was a daily struggle to function. I have underlying health problems that exacerbate my situation. I have been forthright and open regarding my health. The only unknown is my rate of cognitive decline. My wife is my #1 cheerleader, but doesn’t handle this sort of thing very well. However, she is buckling down and helping tremendously. We have appointments with our estate attorney and financial advisor next month. Both practice in the Sun City AZ. Area, so we’re confident they’ll be positive and sympathetic partners in this process. We are just now starting our process of support and discovery. Any suggestions to expand our levels of knowledge are appreciated. Thanks

  • Iris L.
    Iris L. Member Posts: 4,412
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    Welcome Ilkahl. I'm sorry you have received that diagnosis. It's good that the medications have made an improvement in such a short time. Please read about the Mediterranean or the MIND diet to enhance your brain health. Continue to exercise, to socialize and to stay engaged cognitively. I hope you will continue to post and feel free to start your own threads with questions or concerns.

    Iris

  • llkahl
    llkahl Member Posts: 6
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    Thanks. I have made diet, lifestyle and meds changes already. The meds are the biggest difference, much better. I have 3 more appointments scheduled in the next 4 months with the neurologist . We'll go from there.

  • ricardo
    ricardo Member Posts: 189
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    mine gave me a script for Memantine and advised I get NADH via Amazon but instead got NAD+

  • ricardo
    ricardo Member Posts: 189
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    from Neurologist

  • ricardo
    ricardo Member Posts: 189
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    Meds help I guess

  • ricardo
    ricardo Member Posts: 189
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    Who knows Alzheimer’s is Alzheimer’s

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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