Have any questions about how to use the community? Check out the Help Discussion.

How and when should I tell my DH I am placing him in MC

Thanks to encouragement from people on this forum, I have decided to put my DH in a Adult Family Home dedicated to memory care. A bed will open up in about one month. I can't decide when to tell him he will be living somewhere away from me. If I tell him the day before placement, I am afraid he will refuse to get in the car to go with me. If I tell him when I drop him off in MC, he will feel betrayed, shell-shocked, and angry that I didn't tell him beforehand. This question and all the grief of knowing how abandoned he will feel keeps me up at night. Any insights, suggestions, and personal experiences would be greatly welcomed.

Comments

  • SDianeL
    SDianeL Member Posts: 967
    500 Care Reactions 250 Likes 500 Comments 100 Insightfuls Reactions
    Member

    I had to place my DH last January due to my cancer diagnosis. Do not tell him at all. Make up a fib. The facility will assist you with suggestions. We told my husband we were going to lunch to meet my daughter’s friend. After he sat at the table we both made excuses to leave the table and just left the facility. No goodbyes. The nurse said he cried but she explained I had to go into the hospital for a month and I would visit soon. It broke my heart but it would have caused him unnecessary trauma to tell him. The nurse watched him closely for 2 weeks and he adjusted. They called me so we could talk. They told me not to visit during that time. When we did talk he asked me when he could come home and I said when the doctor says he could. Make up a story about work being done on your house or that you have to have surgery. He won’t remember in time. Remember you’re doing it for him. The less traumatic for him the better. I know what you’re going through. Stay strong. Keep us posted. Hugs.

  • TyroneSlothrop
    TyroneSlothrop Member Posts: 51
    Third Anniversary 25 Likes 25 Care Reactions 10 Comments
    Member

    Sweetfire, if your experience is like mine, the anxiety you’re feeling now will be replaced by relief once you go through with the move. The staff at my wife’s residence is experienced, kind, and capable, and they made it easy for me and her, and continue to help every time I visit. She is no longer able to remember 5 minutes ago, so the story I made up to explain why she was moving to this “charming hotel” has not been needed.

    Maybe you have a friend who could help you deliver him, together?
    When I left, I said (honestly) “I will be back!”

  • Joe C.
    Joe C. Member Posts: 964
    Fifth Anniversary 500 Comments 100 Care Reactions 100 Likes
    Member

    I agree not to tell him beforehand. Make up a fiblet like some renovation are being done on the house, there is mold or termites and he is going to stay here while the work is completed. Talk with the MC staff and have a story everyone will use. In my case I just took DW to the MC while there was a music activity going on and the staff took over. I was fortunate, she never once asked why she was there. She acclimated to MC right away.

  • easy23
    easy23 Member Posts: 212
    Fourth Anniversary 100 Comments 25 Care Reactions 25 Likes
    Member
    edited September 20

    I placed my DH in MC 2 1/2 weeks ago. I thought the stress beforehand was going to give me a heart attack!

    I didn't tell my DH about MC; I just took him there. I had a staff member meet us at the front door and bring us to the dining room. Once there, another staff member took my DH to a table with other people, for lunch. I just slipped out the door.

    I waited 5 days before visiting and my DH was fine. When he asked about home, I just told him that the house was being renovated and that he needed to stay where he was. He said ok - no questions asked!

  • TooEarly
    TooEarly Member Posts: 21
    10 Comments 5 Likes 5 Care Reactions
    Member

    Sweetfire, I'm going through the same mental gymnastics though I haven't made the MC placement yet. I know the day is coming and I have no idea what to do or say.

    I anticipate my DW will be angry and will try to run away at least once.

    A friend who recently placed her husband told me all she said in advance was right before they got into the car, telling him they were going to some place that can help him. But you should know, this person also was at the point where he didn't really know where he was any more; maybe that made it easier for them.

  • tucson anne
    tucson anne Member Posts: 30
    25 Care Reactions 10 Comments First Anniversary 5 Likes
    Member

    Sweetfire I'm there too. I'm not going to tell him ahead of time. He's not argumentative nor angry, so I will do what others have done which is go at lunchtime and figure out something to tell him. But he will know. It eats me up to think of him, but so does caring at home. Sigh.

  • Sweetfire
    Sweetfire Member Posts: 8
    5 Care Reactions First Comment
    Member

    I appreciate all the great comments and suggestions. I deal with chronic illness (and my DH still knows that) so I was considering telling him that I could no longer care for him because caring for him was making me sicker (which it is). Therefore, he needed to stay somewhere else until I felt better. Does anyone think that is a good or bad idea?

  • CampCarol
    CampCarol Member Posts: 80
    25 Care Reactions 25 Likes 10 Comments 5 Insightfuls Reactions
    Member

    I'm having the same mental anguish; I am getting very close to placing my DH, but I’m just not there yet. The whole situation is making me physically sick. There are many discussions on this forum regarding placement, how to/when to, etc., and the advice & counsel from those who have gone down this past already is sound. For the majority of cases, placement turns out to be fine. It’s apparently harder on us then them. But I can’t help but think sometimes that my DH is different, our situation is different, and the whole thing will go south. We’ll never know until we try. (And when I do, I will not tell him in advance - see SDianeL's post above, she did exactly as you describe.) Please remember though, as others have said: You’re doing this FOR him, not TO him. This will enable you to be his wife again. Please, please keep us posted, we’re all here for you!

  • Sweetfire
    Sweetfire Member Posts: 8
    5 Care Reactions First Comment
    Member

    Thank you for sharing your journey. Mental anguish is how I would describe my situation, as well, and also feeling, as you do, that my DH is different and so on. I know I will get through this and be relieved once he is moved, but the process is agonizing. After I move him I intend to post how it all went down. Hang in there! This community is helping us all and making us feel less alone.

  • Jeanne C.
    Jeanne C. Member Posts: 826
    500 Care Reactions 500 Comments 250 Likes 100 Insightfuls Reactions
    Member

    I really don't think that is a good idea. If he's still cognizant enough to understand that, it will make him feel bad. Try to think in terms of what is kindest to him.

  • ghphotog
    ghphotog Member Posts: 673
    500 Care Reactions 500 Comments 100 Likes Second Anniversary
    Member

    When I placed my DW it was the most heartbreaking thing I have ever done. I didn't tell her I just drove there and the administrator and head nurse were waiting for us in the parking lot. My DW thought they were her friends. As soon as entered the locked part of the facility the staff took her and I walked away. There is no way to make that decision without agony.

  • terei
    terei Member Posts: 578
    Seventh Anniversary 500 Comments 100 Insightfuls Reactions 100 Likes
    Member

    If he asks where you are going, tell him you are going to lunch. Take him the the facility + they will take him to lunch there. If you ‘must’, tell him then that it is a special rehab place that the doctor recommended ‘til he gets better’

    IMO never tell them in advance. It is not helpful to the PWD or the caregiver

    d or

  • Dio
    Dio Member Posts: 712
    250 Care Reactions 500 Comments 100 Insightfuls Reactions 100 Likes
    Member
    edited September 20

    My situation was slightly different. DH had been paranoid that I'd leave him and he'd become homeless. So I've been comforting him since day 1, reassuring him that he'd always be well taken care of. When I started to research MCFs I was very transparent about it. I told him that since we don't have any children, I wanted to make sure he'd be well taken care of if something should happen to me, that I was looking for and setting up his long term care, that he would not be homeless, in spite of me. He even peeked over my shoulder and read some dementia info on the MCF's websites and asked if that's what he had. However, on the move-in day, I chose not to tell him in advance. I rallied one of his best friends to do the drop-off in the guise of a lunch date. DH seemed to have ESP; for some unknown reason refused to go to lunch. His friend and I almost had to push him out the front door while emphasizing it's just lunch. Upon arrival, he knew immediately it was a memory care facility. His friend said, "yes, it's a memory care facility, let's check it out." As luck was on our side, the MCF director also arrived in the parking lot at that time and immediately, and nonchalantly, escorted DH directly into the activity room. Then lunch was served. Staff came after lunch and guided DH back to the activity room for bingo. His friend slipped out without saying goodbye. DH acclimated well that night and the next couple months, until the disease started to exacerbate aggression and combative behavior.

    That night, I felt a huge sense of relief. I slept peacefully. The guilt came later.

  • SDianeL
    SDianeL Member Posts: 967
    500 Care Reactions 250 Likes 500 Comments 100 Insightfuls Reactions
    Member

    My husband didn’t understand that I had cancer and couldn’t care for him. The facility suggested the lunch fib which worked. My husband could no longer remember or reason. I know how you feel.

  • Denise1847
    Denise1847 Member Posts: 852
    500 Likes 250 Care Reactions 500 Comments 100 Insightfuls Reactions
    Member

    My DH will be transferred from the hospital (COVID recovery) to a rehab for 2 -3 weeks. The rehab is going to transport him to the Memory Care facility. I plan to tell him the night before that he will be going to another place that will help him recover more with his physical and memory problems. Someone from the facility will be greeting him and I will meet them there. It is a nightmare to even think about it.

  • tryingtodurvive
    tryingtodurvive Member Posts: 48
    100 Care Reactions 25 Likes 10 Comments 5 Insightfuls Reactions
    Member

    I think that’s a great idea but like others have said I wouldn’t tell him until you get there. Once you’re in the journey it won’t meter or be remembered once a day it even an hour has passed. Once we’re got there I just took him to his room and told him he needed to stay there while I was working out of town. He cried but by the time I left he was visiting with other residents and was fine. I did wait 2 weeks to visit and he was so happy to see me but has never once asked to go home. In that short period without the confusion of the outside world that was his home. When you leave Jon you might tell him you’re leaving him there while you have done inpatient medical testing done. Good luck and if you have faith just pray. God has lead me safely and sanely through every step of this horrible journey.

  • Joe C.
    Joe C. Member Posts: 964
    Fifth Anniversary 500 Comments 100 Care Reactions 100 Likes
    Member

    Sweetfire, I would not tell him that caring for him is making you sicker, that will only make him feel guilty for your health condition. Rather you might want to try something like saying you need inpatient treatment to help your condition and he is going to stay here while your in the hospital and recovering. If his short term memory is impacted then once in MC you can tell him your recovery is going well and it will only be a few more days.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more