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Marie2020
Marie2020 Member Posts: 2
First Comment
Member

I’m in the stage in which I recognize my own diminished cognitive skills, but don’t have a diagnosis yet. My job performance is suffering, which is very stressful. How did you navigate this phase? Which came first, your diagnosis or problems at work? Did you resign, or use long term disability? Our family relies on my employment for health insurance as well as our primary income.
Thanks.

Comments

  • tboard
    tboard Member Posts: 119
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    I am sorry that you are going through this. I care for someone with mixed dementia. You should consider getting a diagnosis. I found that once my husband was diagnosed it opened the door for treatment and support and even for a sticker for our car so we can park in a handicap spot when needed. There are medications that help slow the progression. That might be what you need to transition into the next stage or to decide what you are going to do next.

  • eaglemom
    eaglemom Member Posts: 837
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    I'm sorry that you find yourself in this position. Its scary and frustrating at the same time. Let me say this, keep your job. Do not get into a situation where you are replaced.

    Having said that, have you been to your PCP and discussed your concerns? If not, I suggest getting an appointment ASAP. The PCP may refer you to a neurologist or may chose to handle your case. Get that in place now.

    You said your work is suffering. Has management spoken with you about it? Don't give them too many details, but equally do not fib to them either.

    Get these steps in place and we can help you go forward from there. We are here to help.

    eagle

  • Iris L.
    Iris L. Member Posts: 4,814
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    It is very important to get a diagnosis because some conditions may be reversible or manageable with treatment if caught in time. Unfortunately the diagnostic process can take some time.

    In the meantime you may request work accommodations to enable you to do your work. It is not necessary to tell your employer for what condition you are requesting the work accommodations. You can visit www.askjan.org for information about work accommodations.

    Depending upon your situation, you may think about requesting short term disability (sick leave) while you are in the diagnostic process if you cannot do your work.

    After you get a diagnosis, you will know if you may return to your work or if you will need to request long term disability. You may want to consult an employee benefits professional for guidance.

    Iris

  • shaffir
    shaffir Member Posts: 1
    First Comment
    Member

    So I'm 70 years old retired 3 years now and just got diagnosed with Alzheimer's early on.My mother went through it in her 80's. I have found about working is to continue what you know and have experience in if you can, exercising and eating right helps. I cant do what i did skill wise because my vision and motor control have changed with the decades. But i still want to do it none the less.Keep challengeing yourself and may find it can happen, maybe at a slower pace.

Commonly Used Abbreviations


DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
Read more