writing to you all here helps so much

jen ht

Hello dear community,

It's been a little over a year for me and my dad on this journey. Emotionally it's still a roller coaster for me (as I know you all understand), but I can tell that I am improving in my knowledge and awareness of this disease. Am I still having the rug pulled out from underneath me from time to time? Absolutely, yes. I also still feel unsure how to reply to others' posts here to return the kind support that I've been given in this online support group so generously. Maybe that will come at another time on down the road.

I'm at dad's house in FL now wrapping up a few things before our school year begins. We did get it listed this summer, which was huge. (Dad's in memory care now near my in our home state and I am a teacher). We also got his inguinal hernia repair taken care of this summer, which was another big goal for summer break.

I remember posting from here last year when this was all so new. I'm sorta wondering when I might make my last broadcast from this station (my last new discussion post his home in FL).

Mom's health struggles continue. My fried nerves seemed to be improving somewhat over the summer, but I'd be lying if I didn't admit that I'm wondering how on earth I will be able to be all of the places that I need to be when the new school year begins. One foot in front of the other.

Writing to you all here helps me process my feelings. I knew I needed that. So thank you. Each time I walk away from this house I feel like I could be closing a chapter. It helps me in some odd way to be here and to feel the old dad here.

It's good to feel feelings and get some tears out. Thanks, as always, for listening/reading.

May we be well 💜

~jht

SDianeL

thank you for the update. I feel the same way about this group. I don’t know what I would have done if I hadn’t found it. Take one thing at a time. As my boss once said: Do, Delegate, Delay and Drop. Get some help on the things you can delegate. Housekeeping, caregiving, respite. Take care of yourself as best you can. We’re here anytime. Love and hugs. 💜🙏

jen ht

Hi @SDianeL Thank you so much for your kind words of encouragement. I like the encouragement from your boss too. And I love that you all are here anytime (but not the reason we're all here, of course). Greatly appreciated. Love and hugs to you too. 💜 🙏