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New Here - 33 looking for support for mother diagnosed with AD
I am not normally one to reach out for support in this format but I feel very isolated in my mother’s recent Alzheimer’s diagnosis. We have seen her condition worsen over the last few years and last year there was a huge red flag for us when she couldn’t remember opening gifts at Christmas. I was 2 weeks postpartum and…
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Feeling Fragile
I feel so sad. My DH of 54 years has VD stage 5 or 6 our partnership over the years has been so strong, we've worked together in our own business, sailed together, flown together, had our children together, and always relied on and supported each other, and now it's just me calling all the shots. I love him dearly and I am…
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What's your pleasure?
This is my first post! This year has been very hard for me. I moved in with my parents in February, got them well enough to move to AL in April. My mom never fully recovered from the shock of moving and she died in June. My dad will go into MC next week. Along the way, I've tried to find a few moments, a few things to…
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How to support my stepdad as primary caregiver
Hello. I am new to this platform. My mom is in Stage 6 of Alzheimer's. My stepdad is her primary caregiver. I can see that he is in over his head and is stressing out. But he is shutting out ideas for support, saying that he can't handle any more information. He is trying to do everything himself, and I can see the…
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reframe my thinking?
Hello community, I think I need a reframe for my thinking. Taking some time away from visiting my dad due to his anxiety and agitation. He has been in MC here closer to me for about a month. I've stayed away for a week and half previously and am currently in the midst of another week away. I keep thinking that he is…
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What does Ptau 712 mean for Lecanemab?
Hello. My mother was diagnosed earlier this year with MCI and we just got to a neurologist last week. Her Ptau 712 came out at 1.7. I am having a hard time understanding this except that it is an "abnormal" score — but from what I can tell online it seems quite high. Can anyone offer any perspective here? Do people stop…
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My young dad is gone but still here
My father is 65 and in the late stages of Alzheimer’s. I just got guardianship and conservatorship of him after discovering his wife could not care for him properly. I just got him into an assisted living facility with memory care, but after only two weeks they can’t handle his behaviors and we are seeking for a new…
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Need some word tracks
My Mom has been in MC for about 5 weeks. She’s not happy to be there but is slowly settling in. I live 6 hours away so most of my interactions with her are over the phone. I struggle with coming up with good answers to the same questions she asks me over and over again. “How long do I have to be here”? “Who do I talk to…
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New to the group, any advice helps!
My mom got diagnosed in September of this year with Alzheimer's. Right now, it is mild where she needs things explained to her a few times or gets confused about dates. She still has her memory and wits about her and luckily her and my father retired earlier this year so he's taking care of her. She can still function on…
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I feel like I’m losing myself..
Hello everyone, I’m just seeking help. My father was diagnosed with unspecified dementia 5 years ago while I was in bootcamp. As of 2 ish years ago until current, he’s been severely violent towards my mother and my brother. He’s threatened to kill them, my mom was so scared she’d sleep in her car in the driveway. She…
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Burnout
Today I want to rant, I’m tired and exhausted, I really thought I had a handle on all this, I love communicating and writing on this site, it balances me and helps me to understand that I am not alone but today I feel so despondent for the last few days all I want to do is cry. I don’t want this any more 7 years is enough…
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Having NO LUCK getting mom an appt with a Neurologist
I am in South Carolina, just south of Charlotte, so not in a rural area or anything like that. I have been attempting to get my mom AN APPOINTMENT with a neurologist for OVER A YEAR, I've had her primary care doctor send in referrals to every neurologist in a 20 mile radius and I've called them myself, only to leave voice…
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Struggling to get mother diagnosed
I have Medical POA thank goodness, but for last 6 weeks her dementia became worse very rapidly daily. I tried to get her to see her doctor, but she refused. I obtained mental health warrant and she was taken to a psychiatric hospital. My mom denied being suicidal, confused, and said I was trying to force her into a nursing…
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New person, first post - Trying to be the rock
To say I'm frustrated would be an understatement - my dad was finally diagnosed with dementia/alzheimers along with anxiety, depression, and OCD/fixation. We could sort of see signs of something not being quite right with him a year or so ago and I had to push my mom to get testing done. The first specialist they were…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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Parent with Early Onset Alzheimer's
Hi, I'm looking for a support group specifically for adult children of parents with early onset alzheimers. My mother is in her mid-60s and was diagnosed a couple years ago. As she is beginning to decline more and more I want to connect with others in a similar set of circumstances. Most people I speak with are dealing…
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Following our Request
Mom moved in Sept 8th, she has moderate dementia, almost no short term memory, long term is pretty good, last 11 years or so are fuzzy. She was mild to moderate until she got a UTI and low sodium and was hospitalized for 3 weeks, now she's fully moderate. It's difficult because she can remember how to use the chair to get…
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looking for some hearts and souls that understand
Hello Dear Community, Dad and I went to a neurologist appointment today to get him established with someone here after his move closer to me. You all have supported me through so much already. I thank you. It was our first time out together since his move here in late June. It was good to be out with him. I was so nervous…
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Struggling Only Child
Hi ya'll, I've recently become a caregiver at the age of 29 as an only child for my father with dementia who is 74. He was diagnosed back in December 2023 with very little notice and had to be moved into a memory care close to my home - I work a full time job and am unable to stop working. It's just him and myself in our…
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Painful Delusions
For about 7-8 years my step dad and I were the main caregivers (we luckily eventually had in home care almost 24/7, but we still managed a lot) for my grandma with dementia, my mom completely checked out and couldn’t face it. It’s been about 8 years since my grandma passed and now my mom is showing signs. We are still…
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Challenges over Loss of Control
Good afternoon! I'm a brand-new poster and am an only child to my 79-year-old mom with VD. She's in memory care and has been in decline for years, with bigger deficits after stroke-type symptoms and multiple falls. Over the past year, she's become more paranoid and accusatory about my not visiting enough, the management of…
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Feeling guilty
We’re moving my mom into a smaller apartment in Independent Living this weekend since I’ve had to up her caregiver hours recently and the cost of her 1-bedroom has recently gone up significantly. My hope is to give her more time where she is happy before making a bigger move. But of course she’s just annoyed and unhappy…
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Sad and caring formy mom 4 years
I'm new here. I've been caring for my 85 year old mom who was diagnosed with dementia/alzheimers in 2021. She just started asking about her mom, my grandmother every night, who I also cared for when I was a teenager right out of high school when my mom was working back in the early 1980's. My grandmother passed away in…
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feeling frustrated, alone with problematic family
To start; I'm 44, currently living in Colorado. My mom was diagnosed in 2016 at the age of 63 with early onset. I signed her up for medical trials, the first round did really well and was helping until it was de-funded. Tried again with another one, that treatment didn't take at all. She has obviously gotten worse as there…
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what is my aim? I still feel like I'm missing something
Hello dear community, I did take a break from visiting Dad. Mainly because it seemed to be upsetting for him. I've applied your advice (shorter visits, take someone with me, bring a treat to eat, stay in common area spaces) and it helped a lot. I do not go as often and I apply the wise advice given here when I do go. I…
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Emotional Abuse
Hi there, This is my first post and, I'm really desperate for help or advice. I am moving cross country to care for and support my mother who was just diagnosed with Alzheimer's (though, I think this has been progressing over the last several years). I am doing everything I can to help her and it never seems like enough or…
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Mom With EOAD Lacks Motivation
Hi, I’m grateful to have come across this resource. Last year, my mother (60 years old at the time) was diagnosed with EOAD. While the diagnosis came as a shock for someone of her age, we were noticing a decline in her cognitive functions, particular with regards to time (not knowing what day it is, showing up to to…
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Overwhelmed with guilt & grief
It was a long road but my father in law has been living in a memory care facility close to us for about 6 weeks. Even though I know that my husband and I would be unable to care for him safely in our home because he would mostly be alone, I still feel so guilty for this major decision. When family and friends ask about my…
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New behaviors from mom
Hi all I am new here. I live 5 hours away from my mom. She recently threw away her wedding rings including her beautiful 50 year wedding anniversary diamond rings my dad gave her. He passed away 12 years ago. She said since he won't come home and doesn't care about her she doesn't care either....the entire family is…