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Trusting the "Experts"
This is my first time posting on this website. I am almost 60 years old and my 90 year old mother was recently diagnosed with dementia. She and my father live in an RCAC 2 hours away from where my sister and I live. In the past few months my mom's memory has declined and has required more care. She and my dad have been…
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New Here & Just Trying To Keep Up
I’ve been feeling really overwhelmed and alone, and I’m so thankful to have found this group. I’m 29 and live in Georgia. My mom is 65, lives alone in Florida, and was recently diagnosed with Alzheimer’s. My parents are divorced, and my sister isn’t able to help due to her own challenges. My mom’s brother offered support…
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Overwhelmed caregiver.
My mom just got diagnosed with frontotemporal dementia 6month ago. Sometimes she will be her normal self then she someone I don’t recognize. Someday I can get her to take her medication with no problem then another day she resist. I’m having hard time keeping the house clean because she leaves things everywhere and brings…
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Caregiver who is a nurse
Hi, This is my first post. My mom has dementia that has progressed to moderate. She is very stubborn and becomes belligerent if she does not get her way. She does not realize that she has memory issues and doesn’t understand why we are not allowing her to be alone. She is refusing to shower because she thinks she showers…
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LO Has Been Diagnosed 15 years
Has anyone dealt with slow progression AD? My MIL was initially diagnosed in 2010. She was in early stage AD. 15 years later, she is at Stage 4. Her husband has been a faithful caregiver. No one is complaining. We have had the opportunity to share many more holidays and special events than we ever thought we would. Has…
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Family Visit
Our beautiful son, daughter-in-law and two young grandchildren are visiting next week. Staying elsewhere but I'm a stressed wreck already. Our son and wife are the nicest, kindest couple but this situation with his dad (VD and aphasia) is hard for anyone to comprehend, understand and cope with. He knows that his dad is not…
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writing to you all here helps so much
Hello dear community, It's been a little over a year for me and my dad on this journey. Emotionally it's still a roller coaster for me (as I know you all understand), but I can tell that I am improving in my knowledge and awareness of this disease. Am I still having the rug pulled out from underneath me from time to time?…
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I don’t know what to do!!
My mother will be 70 years old and my sister and I started seeing changes happening with my mom. We thought it was because my our brother passed away at age 38 and threw my mom in a depression. But it’s been four years and my mother‘s behavior is scaring us. She started hearing things seeing things tasting things smelling…
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NHTD waiver for my Mom living with me Stage 6 Alzheimer’s
hi everyone, I’m pretty new on this forum especially posting a discussion so I’m not really sure if I’m doing this correctly. I live in upstate New York and I am my mom’s soul care provider. I moved my mother into my home eight months ago and I’m still trying to tap into NHTD waiver services in our area. Is there anyone…
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Worried about Mom’s Memory
My mom is 73 and she is forgetful. Meaning she forgets to charge her phone at night, get up and out the door for appointments first thing in the morning. Never sets alarms to get up. Forgets her purse and phone when she leaves the house. She sees a neurologist where we live and had been tested for Alzheimer’s by blood test…
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Continual Grief: I Miss My Mom
I visited my mom again today at her skilled nursing facility. She was diagnosed with Alzheimer's disease in 2018 (she had probably been experiencing it since the early 2010s, in reality), and I made the gut-wrenching decision to place her into an SNF in 2021. She's currently experiencing late-stage Alzheimer's. She has…
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Really Need Help With My Mom and Dad, Could This be Dementia? Dad’s Behavior
Hi, I’m 49 and living with both of my aging parents. My dad is almost 80 and has been obsessively bringing up my mom’s past—accusing, interrogating, then apologizing and repeating it again. It started suddenly in early May. He has also: Forgotten recent events or where he placed items Told the same old stories repeatedly…
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New here. Overwhelmed
I’m caring for my dad, 84. He’s at home. Still able to walk, bathe, use the bathroom and dress by himself. He gets so depressed, though. Just hangs his head almost to his chest. He often thinks we are at a home that looks like his, but it isn’t. He is getting more and more assertive when talking to me. I just needed to…
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Anger
My mom, 73, is diabetic, in congestive heart failure, and dementia. She started having memory issues a few years back following diabetic keto acidosis followed by Covid. Her memory has continued to deteriorate and her regular practitioner has diagnosed dementia, she refuses to see a specialist. She has extreme mood swings…
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Morally Conflicted about Nursing Home
My 75-year-old grandmother was diagnosed a year ago with moderate dementia, which has now later turned into an Alzheimer's diagnosis. She is starting to slowly have "out-of-mind" episodes, confusing a very close family member with their parent (her son), etc. while these are infrequent as of now, they are suddenly onset…
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Mom has auditory hallucinations need help
My 96 year old mom has alzheimers and recently has been having auditory hallucinations - she hears the same part of a song over and over ( i can't id the song). this started about 6 weeks ago for 1 day, then again a month later the 14 days later and then 4 days later. it really upsets her. she thinks its coming from a…
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Mom and Dad with Alzheimer’s
About a year ago, my mom was diagnosed with Alzheimer’s. Last week, so was my dad. They live independently together about 15 minutes from me, my husband and our 15 year old son. We knew something was wrong long before Dad’s diagnosis…but by the time we got his cooperation and finally got him to a doctor as a new patient,…
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Rehab versus hospice
My 91 year old Mom is somewhere between late stage 5 and early stage 6. She was fairly stable for the past year, but I (and her caregivers in memory care) saw a precipitous decline over the past couple of months. She has completely lost her appetite and is eating very little. Even her former favorite sweets have no appeal.…
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I don’t know what I’m doing
Hello, I am 25 years old. My mom (58) was diagnosed with early onset alzheimer’s recently. She was originally diagnosed with FTD last year, but due to genetic testing that discovered she has 2 copies of the APOE4 gene, her neurologist changed her diagnosis to EOA. Both her parents passed in the last few years from…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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Dad's anger and my mental well-being
Hello, I am beginning to wonder if my visits with dad do more harm than good. He really wants to go home. The demands increase and intensify. I end up just having to figure out ways to excuse myself so he doesn't escalate more. Agitation and pacing have already been concerns for the nurse practitioner at his memory care…
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Sandwich generation - having a baby while caregiving for dementia
Hi everyone, I have posted a few times here before and this forum has been so helpful. My dad (77, mid stage 5) moved to memory care in September. He has adjusted really well. He doesn't remember home or ask to leave, he is always engaged in activities when I visit, the staff love him, and I think he has made some friends…
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Feels Like a Lose-Lose
We moved my 82-year-old stage 3-4 Alzheimer’s mom from an independent living place near me to an urban assisted living place while she was on a trip last week. She is very angry and refuses to let us stay when we visit. She says she is being surveilled and kept prisoner (she can walk out anytime she wants, she just has to…
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Feeling Fragile
I feel so sad. My DH of 54 years has VD stage 5 or 6 our partnership over the years has been so strong, we've worked together in our own business, sailed together, flown together, had our children together, and always relied on and supported each other, and now it's just me calling all the shots. I love him dearly and I am…
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In-home care for parent--where to start?
I recently moved back to near my family after decades away b/c my father was diagnosed w/ ALZ a few years ago. He and my mom are adamant about remaining at home. My dad has fallen 3x in the past couple of weeks. Does anyone have recommendations for where to begin to search for an entity/agency to start getting in-home…
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Guilt around visiting MCF
Hello, I’m a new member and I was referred by a Dr. to connect with some others going/gone through it. I am in my early 30s and I cared for my mom for ~4 years at our family home before it became too difficult for me to care for her. I didn’t have the skills to provide the care she needed nor the mental strength. I was in…
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Needing to move mother to memory care
92 yo mother has been in assisted living for 18 months. Over the last year she has had more episodes of confusion and disordered sleep. She often refuses to dress for bed and will wander the hallway at night - we have an upcoming care meeting and I expect that they will say she needs to move to the memory care unit. We…
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X2 now
My dad was diagnosed with Alzheimer’s the Monday after Thanksgiving in 2022. Luckily, it has been progressing very slowly. He lives with my mother and is watched by her full time. On Monday, my mom was also diagnosed with Alzheimer’s. It completely threw me for a loop and I am completely devastated. I’m their only son (I…
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Moving parents from home to IL/AL
Both parents have ALZ diagnosis and currently live independently with support from a 2x/week care giver and daily support from sibling living nearby. Their needs are increasing and we want to move them to an IL w/cont home health aide support. The place has AL (currently no openings) but no MC. The mom is very resistant to…