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Help With Checking for Dementia
Needing help with the beginning process of figuring out how to check for dementia. My mil just had a CT scan and is going to have an apt to check the results tomorrow. She has a lot of signs already, but more recently it's been forgetfulness more so plus incontinence (she doesn't try to go to the toilet anymore) and won't…
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Bringing Dad home?
In the mild-moderate-severe way of describing stages of Alzheimer's, my dad has one foot in "severe". He is in MC and the care there is pretty good. But he is so sad not to be with family. My mom is living with my husband and me. We tried to care for both of them, but my dad is very independent and would not let me or my…
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Antidepressant usage
I was wondering about other’s thoughts/experiences with anti-depressant usage in Alzheimer’s patients. For context, my mother is late stage 5. She previously was on an antidepressant though apparently not taking it when she was still living at home. I moved her into assisted living (not memory care yet) a little over a…
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Memory care / Medicaid / quality of care in New Jersey VS New York
Hello everyone, I’m in the process of attempting to move my dad who is in the early to mid stages of Alzheimer’s from a retirement community in Arizona to the east coast where i am. There’s no other family around and we both want to be closer to each other. This process is beyond overwhelming. I began my search a few…
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Asking for Help
My dad is scheduled in February to start Leqembi. I am having a hard time wanting to try this experimental treatment. I love my dad. I am worrying about the negative side effects. My dad is at stage 3-4 of Alzheimers. He is coherent. My mom agrees with my dad. I have already let go of my father. He isn't the father, I once…
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Her Sun Has Risen...
I know the discussion title is a little unusual, but I chose to title it that way to reflect her freedom from the disease on this side of life. That's how I like to think of it anyway in order to retain some sort of sanity. My mom, diagnosed with Alzheimer's in 2018, transitioned in late-August of this year. I am her only…
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I Feel Lost, Depressed and So Very Sad
Hello. I am new to ALZ Connect. I am looking to connect with others who have or are experiencing what I am going through as an adult child with a parent with ALZ and another parent who is losing it as the care giver. I am hoping to connect with others who feel similar to what I feel so maybe I won't feel so alone in this…
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Feedback on a Draft Manuscript on Caring for an adult child
I’m looking for feedback from caregivers in Alzconnected about my manuscript based on the years from 2017-24 when I cared for my daughter. She died from Alzheimer’s n 2024 at the age of 58. I thought members might be interested in reading about my experience managing my emotional highs and lows. All I ask is that readers…
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I smell poop
Today started early because we had a dentist appointment an hour away. Dad was already up using the bathroom at 8am. So I explained that we need to get dressed and change diapers. I gather items to bring then look in to find Dad went back to bed. I wake him and say we'll be late. Now he switches into slower mode. When we…
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Worn out and stressed out
Hello all. I’m currently dealing with an 87 year old father with dementia. He has fallen at home about 15 times this year, and ended up breaking his hip in July. I moved him into assisted living as I didn’t feel he was safe to be alone at home. He was a smoker and the last time I was there I watched him not pay attention…
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Advice on Transition to MC
Hi. With reluctance and fear, we are going to move my Dad from independent living with my Mom into MC. I know this is a painful process for all families, My Mom and Dad have been together for 65+ years. My family is scared that my Dad will become very angry at us, especially my Mom (the dutiful wife). We don't know what…
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Really Need Help With My Mom and Dad, Could This be Dementia? Dad’s Behavior
Hi, I’m 49 and living with both of my aging parents. My dad is almost 80 and has been obsessively bringing up my mom’s past—accusing, interrogating, then apologizing and repeating it again. It started suddenly in early May. He has also: Forgotten recent events or where he placed items Told the same old stories repeatedly…
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What Should I Say?
I am visiting with my parents for a few days and my Mom is very confused. She has Alzheimer’s . She often does not recognize my Dad and thinks he’s an imposter. She is scared of him. He will tell her it’s him. My brother lives with her and he says “that’s Dad.” My Mom is very confused. She says the only two people she…
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It’s finally real
I’ve known my mom has dementia for at least a few years but we finally got the official Alzheimer’s diagnosis a couple months ago. I moved her into an assisted living community a little over a year ago because it wasn’t safe at home but we were dancing around the dementia issue and focusing on getting her heathy otherwise.…
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Lost My Father Tragically - Learning How to Move Forward
Hi everyone, My father died as a result of dementia. During the night, he became confused and unsafe, something dementia had been causing more and more often. He left the house, and by the time my mother found him in the morning, it was too late. Writing that still feels unreal. What I am struggling with most now is guilt.…
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Capgras Syndrome
I believe my mother has Alzheimers. She is 78 years old. My father is her primary caregiver. The challenge is she often seems to have Capgras Syndrome. She will go through periods where she does not recognise him and thinks he is an imposter. My brother lives with them and tells her this is Dad. My Dad tells her it's him,…
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Learning to grieve
My mom was officially diagnosed with early onset Alzheimers in January, although she has been showing symptoms for quite some time now. My mom and I have always had a close, yet complicated relationship as she was a single parent and she had a hard time "letting go" of her baby. Back in August, she had ended up with strep…
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rough day w dad in MC "Get me out of here!"
Hi community, Dad was pretty agitated today during our visit. Redirecting was not working, so I had to cut my visit short. I'm wondering what I am missing or if you all have more ideas for me to consider. Here's some context plus what I'm seeing lately. He tells me that he just has to get out of there. Over and over. I…
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NYT Opinion Piece on Caregiving Crisis
https://www.nytimes.com/2025/11/24/opinion/caregiving-crisis.html?unlocked_article_code=1.308.kBxI.CmNVAb2397Tf&smid=url-share
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Alzheimer's & Alcoholism
My grandmother is a functioning alcoholic & just got diagnosed with Alzheimer's. She refused to have the all day testing done because she would rather sit at home and drink & she hasn't been deemed incompetent to make her own medical decisions so we can't make her do anything she doesn't want to do but they were able to…
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Grief Counseling: Yay or Nay?
My beautiful Mom transitioned this past August. I miss her every single day. It's painful, actually, and I know only a couple of months have passed, but time is not healing. Every day without her is painful. As her only child and primary beneficiary, I have access to grief counseling that her health insurance policy offers…
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Double Trouble - New to the group
I moved back to NE from Florida almost 3 years ago. I knew before I moved to Florida that my mom’s memory was getting increasingly worse. Once I moved back, I realized just how bad it had become in that short amount of time. We were able to get her to a neuropsychologist and have her tested. She has Alzheimer’s.…
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I am so scared
I'm so scared of what this diagnosis means for me and my mom. I've worked with a number of Alz patients while working in emergency psychiatric departments or adult psychiatric departments. It was brutal. Devastating to their kids and devastating to see their moments of clarity, briefly realizing they are losing their…
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NHTD waiver for my Mom living with me Stage 6 Alzheimer’s
hi everyone, I’m pretty new on this forum especially posting a discussion so I’m not really sure if I’m doing this correctly. I live in upstate New York and I am my mom’s soul care provider. I moved my mother into my home eight months ago and I’m still trying to tap into NHTD waiver services in our area. Is there anyone…
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New here.
Hello! I’m new here, but unfortunately not new to dementia. My mom was diagnosed about 3 years ago, and this past March we decided that things were getting to the point we were unable to handle her care. We found a great MC facility. And she is doing the best she can. The hardest thing I’m having to deal with is my dad. My…
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Continual Grief: I Miss My Mom
I visited my mom again today at her skilled nursing facility. She was diagnosed with Alzheimer's disease in 2018 (she had probably been experiencing it since the early 2010s, in reality), and I made the gut-wrenching decision to place her into an SNF in 2021. She's currently experiencing late-stage Alzheimer's. She has…
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Mom caring for adult child with memory loss
My first post. I'm 84 and my adult child was diagnosed with moderate cognitive decline 4 months ago. Has been on doctor prescribed vitamin /depression /antipsychotic protocol since then. Has anyone else got this issue?