Where do I start?

NikoleP929

My 72yo Mom was just diagnosed with dementia. She lives alone. I have no clue what I’m doing. I have an appointment with senior services to do an assessment (not even sure what they do?) and an appointment with neurologist (not until end of next month). Is there a checklist somewhere? ugh, I don’t know where to start. I just feel completely lost and overwhelmed.

H1235

Welcome. Sorry you need to be here. There is so much to do in the beginning. One of the most important things is to see a lawyer. She should appoint a durable power of attorney, a medical poa, a living will is a good idea, a will and it might be good to ask about Medicaid planning if there is any chance that might become necessary. If a patient portal with her doctor is an option, I would set one up. Driving and living alone are two touchy topics ( when are these things no longer safe). It might be a good idea to bring these up with the neurologist. Then you have a professional’s opinion. If the neurologist says no driving or living alone it also makes them the bad guy rather than you. You will need to take over finances soon if you haven’t already. It’s probably a good idea to start thinking about her care as things progress. Will you get 24/7 in home aides ( very expensive), move her in with a family member, or assisted living ( there can be a waiting list and this is expensive also). Another important thing to do is just learn all you can about dementia. I have attended some resources.

Anosognosia and Dementia - AgingCare.com.pdf

DBAT.pdf

understanding-the-dementia-experience.pdf