93 yo Mom that has Late Stage Dementia ALZ I am at Caregiver Burnout Stage

Mlewis1959

I have a 93 year to be Mom that is in the middle late stages of ALZ Dementia I have two businesses that I cannot run and must fulfill my broadcast schedule on the road broadcasting high school games. I have no to little help and neighbors and friends ask but advise or critique me on how to care for my mom but not lending a hand Anyone going through this

towhee

Welcome, although sorry for the reason you need to be here. Two businesses, goodness. We do have people on here who work full time and care in home but they are only able to do it with adult daycare and paid in home help and flexible hours. Clueless and unhelpful friends and relatives are the norm it seems😒. We do understand on here.

H1235

Welcome, but sorry you have to be here. It sounds like you might be in an unsustainable situation. It won’t be long before she is not safe to be left home alone. Even if you have hired aides (very expensive) come in while you are gone, you will still have to deal with no shows and issues if someone is not a good fit. If you will need someone to cover evenings it’s going to be even more expensive and it might be difficult to find someone if your in a rural setting. If you are even considering assisting living, you should keep in mind there can be a waiting list. Al offered my mom a chance to visit and make friends with people her age. She enjoyed some of the activities and liked having her own little apartment. Do you have DPOA? This is very important. This is such a difficult journey it’s a shame when friends and relatives make things even worse.

SDianeL

welcome. Yes it’s very common. Sadly family and friends don’t help for many reasons. Develop a plan for your Mom’s long term care. Don’t delay. Here’s a post from a caregiver on this forum who summed it up:

https://alzconnected.org/discussion/71052/the-cavalry-is-not-coming-9-year-edition